Academic Journal
Sustaining care for a parent with dementia: an indefinite and intertwined process
| Title: | Sustaining care for a parent with dementia: an indefinite and intertwined process |
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| Authors: | Amy S. Hwang, Lena Rosenberg, Pia Kontos, Jill I. Cameron, Alex Mihailidis, Louise Nygård |
| Source: | International Journal of Qualitative Studies on Health & Well-Being, Vol 12, Iss 1 (2017) |
| Publisher Information: | Taylor & Francis Group, 2017. |
| Publication Year: | 2017 |
| Collection: | LCC:Medicine (General) |
| Subject Terms: | Alzheimer, dementia, caregiving, adult child, informal care, relational care, family care, formal care, grounded theory, focus group, Medicine (General), R5-920 |
| More Details: | This study aimed to understand how adult children sustain caring for persons with dementia (PwDs) within their family and formal care contexts in Canada. Half-day focus groups were conducted with adult daughters and adult sons in Toronto, Canada. Using constructivist grounded theory, we examined both substantive concepts and group dynamics. Sustaining care was interpreted as an indefinite process with three intertwined themes: reproducing care demands and dependency, enacting and affirming values, and “flying blind” in how and how long to sustain caring (i.e., responding to immediate needs with limited foresight). Family values and relationships, mistrust toward the institutional and home care systems, and obscured care foresight influenced care decisions and challenged participants in balancing their parents’ needs with their own. Positive and negative aspects of care were found to influence one another. The implications of these findings for research and policy are discussed. |
| Document Type: | article |
| File Description: | electronic resource |
| Language: | English |
| ISSN: | 1748-2631 17482631 |
| Relation: | https://doaj.org/toc/1748-2631 |
| DOI: | 10.1080/17482631.2017.1389578 |
| Access URL: | https://doaj.org/article/98e41b51e615457aa132e7f559876ed0 |
| Accession Number: | edsdoj.98e41b51e615457aa132e7f559876ed0 |
| Database: | Directory of Open Access Journals |
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| ISSN: | 17482631 |
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| DOI: | 10.1080/17482631.2017.1389578 |
| Published in: | International Journal of Qualitative Studies on Health & Well-Being |
| Language: | English |