Bibliographic Details
| Title: |
The burden of systemic sclerosis in Switzerland – the Swiss systemic sclerosis EUSTAR cohort |
| Authors: |
Jasmin Hernández, Suzana Jordan, Rucsandra Dobrota, Michele Iudici, Paul Hasler, Camillo Ribi, Peter Villiger, Panayiotis Vlachoyiannopoulos, Alessandra Vacca, Ludmila Garzanova, Alessandro Giollo, Edoardo Rosato, Ina Kötter, Patricia E. Carreira, Andrea Doria, Jörg Henes, Ulf Müller-Ladner, Vanessa Smith, Jörg Distler, Armando Gabrielli, Anna-Maria Hoffman-Vold, Ulrich Walker, Oliver Distler, the EUSTAR collaborators |
| Source: |
Swiss Medical Weekly, Vol 151, Iss 2728 (2021) |
| Publisher Information: |
SMW supporting association (Trägerverein Swiss Medical Weekly SMW), 2021. |
| Publication Year: |
2021 |
| Collection: |
LCC:Medicine |
| Subject Terms: |
systemic sclerosis, Switzerland, Europe, Medicine |
| More Details: |
OBJECTIVES Characteristics of Swiss patients with systemic sclerosis have not been described so far. The aim of the current study was to identify unmet needs in comparison with other European countries that could inform specific interventions to improve the care of systemic sclerosis patients. METHODS We analysed Swiss and other European systemic sclerosis patients registered in European Scleroderma Trials And Research (EUSTAR) and the Very Early Diagnosis Of Systemic Sclerosis (VEDOSS) cohort. Demographics, clinical profiles, organ involvement and survival of established, early/mild and very early / very mild systemic sclerosis patients were described and compared between the cohorts. RESULTS We included 679 Swiss and 8793 European systemic sclerosis patients in the analysis. Over 95% of patients in both cohorts were Caucasian, disease subsets were similar, and no age difference was found. The Swiss cohort had more male patients (25% vs 16% European, p = 0.005) and higher prevalence of early/mild and very early / very mild patients (26.1 vs 8.5% European and 14.9% vs 6.7% European, respectively, both p |
| Document Type: |
article |
| File Description: |
electronic resource |
| Language: |
English |
| ISSN: |
1424-3997 |
| Relation: |
https://www.smw.ch/index.php/smw/article/view/3031; https://doaj.org/toc/1424-3997 |
| DOI: |
10.4414/smw.2021.20528 |
| Access URL: |
https://doaj.org/article/83c8ebadc31a40699d8154f6adff4d83 |
| Accession Number: |
edsdoj.83c8ebadc31a40699d8154f6adff4d83 |
| Database: |
Directory of Open Access Journals |
