Bibliographic Details
| Title: |
Study retention and attrition in a longitudinal cohort study including patient-reported outcomes, fieldwork and biobank samples: results of the Netherlands quality of life and Biomedical cohort study (NET-QUBIC) among 739 head and neck cancer patients and 262 informal caregivers |
| Authors: |
Femke Jansen, Ruud H. Brakenhoff, Rob J. Baatenburg de Jong, Johannes A. Langendijk, C. René Leemans, Robert P. Takes, Chris H. J. Terhaard, Jan H. Smit, Irma M. Verdonck-de Leeuw |
| Source: |
BMC Medical Research Methodology, Vol 22, Iss 1, Pp 1-17 (2022) |
| Publisher Information: |
BMC, 2022. |
| Publication Year: |
2022 |
| Collection: |
LCC:Medicine (General) |
| Subject Terms: |
Head and neck cancer, Cohort study, Representativeness, Attrition, Retention, Medicine (General), R5-920 |
| More Details: |
Abstract Background Longitudinal observational cohort studies in cancer patients are important to move research and clinical practice forward. Continued study participation (study retention) is of importance to maintain the statistical power of research and facilitate representativeness of study findings. This study aimed to investigate study retention and attrition (drop-out) and its associated sociodemographic and clinical factors among head and neck cancer (HNC) patients and informal caregivers included in the Netherlands Quality of Life and Biomedical Cohort Study (NET-QUBIC). Methods NET-QUBIC is a longitudinal cohort study among 739 HNC patients and 262 informal caregivers with collection of patient-reported outcome measures (PROMs), fieldwork data (interview, objective tests and medical examination) and biobank materials. Study retention and attrition was described from baseline (before treatment) up to 2-years follow-up (after treatment). Sociodemographic and clinical characteristics associated with retention in NET-QUBIC components at baseline (PROMs, fieldwork and biobank samples) and retention in general (participation in at least one component) were investigated using Chi-square, Fisher exact or independent t-tests (p |
| Document Type: |
article |
| File Description: |
electronic resource |
| Language: |
English |
| ISSN: |
1471-2288 |
| Relation: |
https://doaj.org/toc/1471-2288 |
| DOI: |
10.1186/s12874-022-01514-y |
| Access URL: |
https://doaj.org/article/664497995e5e495396bd1acac0775d53 |
| Accession Number: |
edsdoj.664497995e5e495396bd1acac0775d53 |
| Database: |
Directory of Open Access Journals |
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