Bibliographic Details
| Title: |
Convergence of neurodegeneration and the arts: a conversation between researchers about stigma, co-creativity, and transformation |
| Authors: |
Naila Kuhlmann, Pia Kontos, Maria Bee Christensen-Strynø, Stefanie Blain-Moraes |
| Source: |
Research Involvement and Engagement, Vol 11, Iss 1, Pp 1-9 (2025) |
| Publisher Information: |
BMC, 2025. |
| Publication Year: |
2025 |
| Collection: |
LCC:Medicine
LCC:Medicine (General) |
| Subject Terms: |
Community engagement, Patient involvement, Parkinson’s disease, Dementia, Stigma, Social justice arts, Medicine, Medicine (General), R5-920 |
| More Details: |
Abstract Parkinson’s disease and dementia are highly stigmatized, creating social exclusion and inequality by depriving persons living with these conditions of their human rights and threatening their health, well-being, and quality of life. Challenging the stigma associated with these conditions is a key public health priority across national and international settings, and arts-based approaches are advocated to achieve this. We are researchers who use artistic and creative media including documentary films, research-based theatre, dance, circus and graphic narrative to challenge dominant and oppressive cultural and social norms, and to imagine and affect inclusive, compassionate, and socially-just approaches to supporting people to live well with neurodegenerative conditions like dementia and Parkinson’s. This includes fostering opportunities for co-creative engagement with people living with these conditions, to promote their inclusion as co-creators rather than subjects in research initiatives. In this conversation-style article, we draw on our qualitative research and experiential knowledge to reflect on the challenges and opportunities regarding arts-based research with people living with Parkinson’s disease or dementia. We share examples from our own work, across a range of artistic approaches, to illustrate the transformative potential of the arts to affect social change and to bring to light the tensions that arise in co-creative processes. Through this conversation, we hope to inspire and equip others to draw on the power and complexities of arts-based approaches for the co-production of knowledge to transform societal representation of neurological conditions and to foster human flourishing. |
| Document Type: |
article |
| File Description: |
electronic resource |
| Language: |
English |
| ISSN: |
2056-7529 |
| Relation: |
https://doaj.org/toc/2056-7529 |
| DOI: |
10.1186/s40900-025-00696-1 |
| Access URL: |
https://doaj.org/article/57ea9f5a4acb477484b9cd934f9419b4 |
| Accession Number: |
edsdoj.57ea9f5a4acb477484b9cd934f9419b4 |
| Database: |
Directory of Open Access Journals |
