Bibliographic Details
| Title: |
Follow-up care experience of patients with invasive meningococcal disease and their family caregivers: a qualitative study |
| Authors: |
Alexiane Baloche, Pierrick Bedouch, Florence Carrouel, Laurent Argaud, Karine Kolev, Guillaume Mortamet, Carole Schwebel, Gérard Mick, Claude Dussart |
| Source: |
BMC Infectious Diseases, Vol 24, Iss 1, Pp 1-9 (2024) |
| Publisher Information: |
BMC, 2024. |
| Publication Year: |
2024 |
| Collection: |
LCC:Infectious and parasitic diseases |
| Subject Terms: |
Meningococcal infections, Follow-up care, Patient experience, Family caregiver, Qualitative study, Infectious and parasitic diseases, RC109-216 |
| More Details: |
Abstract Background Clinical guidelines recommend systematic follow-up of patients surviving invasive meningococcal disease (IMD) to assess sequelae. However, little is known about survivors and family caregivers’ experiences of the follow-up care. Study sought to explore IMD survivors’ and their family caregivers’ experiences after hospitalization for IMD and to identify unmet needs. Methods Semi-structured interviews were conducted with patients and family caregivers, identified through hospitals database. Interviews were audiotaped, transcribed and subject to a thematic analysis. NVivo software was used for data management and analysis. Results Eight IMD survivors and 14 family caregivers were interviewed. Three themes were identified from the data: (1) perception of patient and family caregiver on follow-up after IMD and role of healthcare professionals; (2) access to care and support; (3) relationship with healthcare professionals. Although most were satisfied with follow-up care after IMD, suggestions for improving the healthcare pathway were made relating information on potential sequelae and follow-up care, coordination, and access to psychological support. Conclusions This study confirms the need for more structured follow-up care for patients suffering from IMD and their families which is currently limited and focused on physical recovery. Optimal follow-up should aim to provide sufficient information, emotional support and logistical support for patient and family caregivers. Trial registration Ethics Committee of University of Lyon, France (ref: 2022-06-23-002). |
| Document Type: |
article |
| File Description: |
electronic resource |
| Language: |
English |
| ISSN: |
1471-2334 |
| Relation: |
https://doaj.org/toc/1471-2334 |
| DOI: |
10.1186/s12879-024-09860-6 |
| Access URL: |
https://doaj.org/article/38b237be283f4cc78a1375410db87aab |
| Accession Number: |
edsdoj.38b237be283f4cc78a1375410db87aab |
| Database: |
Directory of Open Access Journals |
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