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'We are fragile, but we are strong': A qualitative study of perspectives, experiences and priority outcomes for people living with HIV and frailty.

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Title: 'We are fragile, but we are strong': A qualitative study of perspectives, experiences and priority outcomes for people living with HIV and frailty.
Authors: Clair‐Sullivan, Natalie St, Vera, Jaime H., Maddocks, Matthew, Harding, Richard, Levett, Thomas, Roberts, Jonathan, Adler, Zoe, Bremner, Stephen, Pargeter, Gary, Bristowe, Katherine
Source: HIV Medicine; Mar2025, Vol. 26 Issue 3, p339-349, 11p
Subject Terms: HIV infection complications, QUALITATIVE research, RESEARCH funding, FRAIL elderly, INTERVIEWING, HIV infections, PSYCHOLOGY of HIV-positive persons, THEMATIC analysis, QUALITY of life, AGING, RESEARCH methodology, PATIENTS' attitudes, WELL-being
Geographic Terms: UNITED Kingdom
Abstract: Objectives: Advances in antiretroviral therapy have meant that the focus of HIV care has shifted to chronic disease management. The HIV population is ageing, and the prevalence of frailty is increasing. This study aimed to explore the perspectives and experiences of the impact of living with HIV and frailty and priority outcomes in relation to wellbeing and ageing. Methods: In‐depth qualitative interviews were undertaken with older people living with HIV who screened positive for frailty using the FRAIL scale. Participants were recruited from a UK outpatient HIV clinic. Interviews were analysed using reflexive thematic analysis. Results: In total, 24 people living with HIV were interviewed. Frailty was described as not being able to do the things you could and living with limitations that impacted physical, psychological and social wellbeing. Being identified as frail was not always surprising, but acceptance of this diagnosis required an understanding of what frailty means and what they can do to address it. For people living with HIV, the word 'frail' was largely acceptable when its clinical meaning was explained. However, participants questioned whether a different term is needed if this is a new 'HIV‐associated frailty'. Priority outcomes were slowing the progression of frailty, retaining independence and being treated holistically. Conclusion: When talking about frailty with people living with HIV, professionals need to balance honesty and sensitivity and provide clear information about the meaning and impact for the person. Holistic management plans must recognize the physical and psycho‐social impact of frailty and prioritize slowing its progression and reducing its impact on independence. [ABSTRACT FROM AUTHOR]
Copyright of HIV Medicine is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: 'We are fragile, but we are strong': A qualitative study of perspectives, experiences and priority outcomes for people living with HIV and frailty.
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  Data: HIV Medicine; Mar2025, Vol. 26 Issue 3, p339-349, 11p
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  Data: <searchLink fieldCode="DE" term="%22HIV+infection+complications%22">HIV infection complications</searchLink><br /><searchLink fieldCode="DE" term="%22QUALITATIVE+research%22">QUALITATIVE research</searchLink><br /><searchLink fieldCode="DE" term="%22RESEARCH+funding%22">RESEARCH funding</searchLink><br /><searchLink fieldCode="DE" term="%22FRAIL+elderly%22">FRAIL elderly</searchLink><br /><searchLink fieldCode="DE" term="%22INTERVIEWING%22">INTERVIEWING</searchLink><br /><searchLink fieldCode="DE" term="%22HIV+infections%22">HIV infections</searchLink><br /><searchLink fieldCode="DE" term="%22PSYCHOLOGY+of+HIV-positive+persons%22">PSYCHOLOGY of HIV-positive persons</searchLink><br /><searchLink fieldCode="DE" term="%22THEMATIC+analysis%22">THEMATIC analysis</searchLink><br /><searchLink fieldCode="DE" term="%22QUALITY+of+life%22">QUALITY of life</searchLink><br /><searchLink fieldCode="DE" term="%22AGING%22">AGING</searchLink><br /><searchLink fieldCode="DE" term="%22RESEARCH+methodology%22">RESEARCH methodology</searchLink><br /><searchLink fieldCode="DE" term="%22PATIENTS'+attitudes%22">PATIENTS' attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22WELL-being%22">WELL-being</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22UNITED+Kingdom%22">UNITED Kingdom</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Objectives: Advances in antiretroviral therapy have meant that the focus of HIV care has shifted to chronic disease management. The HIV population is ageing, and the prevalence of frailty is increasing. This study aimed to explore the perspectives and experiences of the impact of living with HIV and frailty and priority outcomes in relation to wellbeing and ageing. Methods: In‐depth qualitative interviews were undertaken with older people living with HIV who screened positive for frailty using the FRAIL scale. Participants were recruited from a UK outpatient HIV clinic. Interviews were analysed using reflexive thematic analysis. Results: In total, 24 people living with HIV were interviewed. Frailty was described as not being able to do the things you could and living with limitations that impacted physical, psychological and social wellbeing. Being identified as frail was not always surprising, but acceptance of this diagnosis required an understanding of what frailty means and what they can do to address it. For people living with HIV, the word 'frail' was largely acceptable when its clinical meaning was explained. However, participants questioned whether a different term is needed if this is a new 'HIV‐associated frailty'. Priority outcomes were slowing the progression of frailty, retaining independence and being treated holistically. Conclusion: When talking about frailty with people living with HIV, professionals need to balance honesty and sensitivity and provide clear information about the meaning and impact for the person. Holistic management plans must recognize the physical and psycho‐social impact of frailty and prioritize slowing its progression and reducing its impact on independence. [ABSTRACT FROM AUTHOR]
– Name: Abstract
  Label:
  Group: Ab
  Data: <i>Copyright of HIV Medicine is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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      – Type: doi
        Value: 10.1111/hiv.13722
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      – Code: eng
        Text: English
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        PageCount: 11
        StartPage: 339
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      – SubjectFull: UNITED Kingdom
        Type: general
      – SubjectFull: HIV infection complications
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      – SubjectFull: QUALITATIVE research
        Type: general
      – SubjectFull: RESEARCH funding
        Type: general
      – SubjectFull: FRAIL elderly
        Type: general
      – SubjectFull: INTERVIEWING
        Type: general
      – SubjectFull: HIV infections
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      – SubjectFull: PSYCHOLOGY of HIV-positive persons
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      – SubjectFull: QUALITY of life
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      – SubjectFull: PATIENTS' attitudes
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      – SubjectFull: WELL-being
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      – TitleFull: 'We are fragile, but we are strong': A qualitative study of perspectives, experiences and priority outcomes for people living with HIV and frailty.
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              M: 03
              Text: Mar2025
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              Y: 2025
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