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'Death Doulas' are not yet an Issue in German Palliative Care—A National Survey of Palliative Care Providers.

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Title: 'Death Doulas' are not yet an Issue in German Palliative Care—A National Survey of Palliative Care Providers.
Authors: Volberg, Christian, Makdsi, Aboud, Eersink, Jannis, Kushner, Juliana, Morin, Astrid, Gschnell, Martin, Lin, Bowen
Source: European Journal of Cancer Care; 2/22/2025, Vol. 2025, p1-5, 5p
Subject Terms: DEATH & psychology, CROSS-sectional method, PSYCHOLOGY of the terminally ill, PALLIATIVE treatment, RESEARCH funding, QUESTIONNAIRES, DESCRIPTIVE statistics, SURVEYS, TERMINAL care, PATIENT satisfaction, DATA analysis software, HOSPICE care
Geographic Terms: GERMANY
Abstract: Background: The support of 'Death Doulas' (DD) in the last phase of life is becoming more and more present in the individual care of the dying. This trend is slowly being brought to Germany from other countries. However, the extent to which this possibility of end‐of‐life care is offered in Germany or requested by patients is still unclear. Aim: With this nationwide survey, we want to show to what extent DD support palliative care in Germany and whether a need for this activity is seen. Design: Germany‐wide cross‐sectional study among palliative care institutions. Setting/Respondents: All German hospices, palliative care units and specialized outpatient palliative care services were contacted by post and asked to participate in this anonymous survey. Results: In total, we received 338 (36.4%) responses. A total of 27% of the respondents state that they are familiar with the term DD but only 18 institutions (5.3%) use the support. Patients' satisfaction is recognized as overall satisfied. A total of 95% of the institutions who work with DD would recommend other palliative care institutions to work with DD as well. More information about this topic is wished by 61%. Conclusion: DD is not yet an issue in German palliative care. There seems to be little need as the support of the dying is carried out by other professional groups and volunteers. Since DD have another approach in their work, it would be interesting to see if a broader knowledge about their work and offer could improve quality in the dying process. [ABSTRACT FROM AUTHOR]
Copyright of European Journal of Cancer Care is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: 'Death Doulas' are not yet an Issue in German Palliative Care—A National Survey of Palliative Care Providers.
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  Data: European Journal of Cancer Care; 2/22/2025, Vol. 2025, p1-5, 5p
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  Data: Background: The support of 'Death Doulas' (DD) in the last phase of life is becoming more and more present in the individual care of the dying. This trend is slowly being brought to Germany from other countries. However, the extent to which this possibility of end‐of‐life care is offered in Germany or requested by patients is still unclear. Aim: With this nationwide survey, we want to show to what extent DD support palliative care in Germany and whether a need for this activity is seen. Design: Germany‐wide cross‐sectional study among palliative care institutions. Setting/Respondents: All German hospices, palliative care units and specialized outpatient palliative care services were contacted by post and asked to participate in this anonymous survey. Results: In total, we received 338 (36.4%) responses. A total of 27% of the respondents state that they are familiar with the term DD but only 18 institutions (5.3%) use the support. Patients' satisfaction is recognized as overall satisfied. A total of 95% of the institutions who work with DD would recommend other palliative care institutions to work with DD as well. More information about this topic is wished by 61%. Conclusion: DD is not yet an issue in German palliative care. There seems to be little need as the support of the dying is carried out by other professional groups and volunteers. Since DD have another approach in their work, it would be interesting to see if a broader knowledge about their work and offer could improve quality in the dying process. [ABSTRACT FROM AUTHOR]
– Name: Abstract
  Label:
  Group: Ab
  Data: <i>Copyright of European Journal of Cancer Care is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1155/ecc/6654399
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      – Code: eng
        Text: English
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        PageCount: 5
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      – SubjectFull: GERMANY
        Type: general
      – SubjectFull: DEATH & psychology
        Type: general
      – SubjectFull: CROSS-sectional method
        Type: general
      – SubjectFull: PSYCHOLOGY of the terminally ill
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      – SubjectFull: PALLIATIVE treatment
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      – SubjectFull: RESEARCH funding
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      – SubjectFull: QUESTIONNAIRES
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      – SubjectFull: DESCRIPTIVE statistics
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      – SubjectFull: SURVEYS
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              Text: 2/22/2025
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