A Paradigm Shift on Deinstitutionalization and Dementia Care: A Narrative Review.

Bibliographic Details
Title: A Paradigm Shift on Deinstitutionalization and Dementia Care: A Narrative Review.
Authors: Carcavilla-González, Nuria, Escalada San Adrián, Gema, Minobes-Molina, Eduard, Pàmies-Tejedor, Sandra, Roncal-Belzunce, Victoria, Atarés-Rodríguez, Laura, García-Navarro, José Augusto
Source: Journal of Alzheimer's Disease; 2024, Vol. 99 Issue 3, p829-841, 13p
Subject Terms: DEINSTITUTIONALIZATION, DEMENTIA, ALZHEIMER'S disease, BURDEN of care, QUALITY of life, WELL-being
Abstract: This narrative explores the impact of deinstitutionalization policies on the quality of life and care outcomes for individuals with Alzheimer's disease and related dementias. We offer a historical perspective on these policies, their implications on dementia care, and the barriers to deinstitutionalization. The potential benefits of deinstitutionalization, such as improved quality of life and access to community-based support and services, are highlighted. Challenges and controversies surrounding safety, caregiver burden, and resource allocation are also examined. Ethical considerations related to the autonomy and decision-making capacity of people living with dementia are discussed. We present best practices and innovative models in dementia care that balance deinstitutionalization with appropriate care. We further put forth recommendations for future research and policy development in dementia care and deinstitutionalization, emphasizing the need for a balanced approach that respects the autonomy and preferences of people living with dementia while ensuring their safety and well-being. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Alzheimer's Disease is the property of IOS Press and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: A Paradigm Shift on Deinstitutionalization and Dementia Care: A Narrative Review.
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  Data: <searchLink fieldCode="AR" term="%22Carcavilla-González%2C+Nuria%22">Carcavilla-González, Nuria</searchLink><br /><searchLink fieldCode="AR" term="%22Escalada+San+Adrián%2C+Gema%22">Escalada San Adrián, Gema</searchLink><br /><searchLink fieldCode="AR" term="%22Minobes-Molina%2C+Eduard%22">Minobes-Molina, Eduard</searchLink><br /><searchLink fieldCode="AR" term="%22Pàmies-Tejedor%2C+Sandra%22">Pàmies-Tejedor, Sandra</searchLink><br /><searchLink fieldCode="AR" term="%22Roncal-Belzunce%2C+Victoria%22">Roncal-Belzunce, Victoria</searchLink><br /><searchLink fieldCode="AR" term="%22Atarés-Rodríguez%2C+Laura%22">Atarés-Rodríguez, Laura</searchLink><br /><searchLink fieldCode="AR" term="%22García-Navarro%2C+José+Augusto%22">García-Navarro, José Augusto</searchLink>
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  Data: Journal of Alzheimer's Disease; 2024, Vol. 99 Issue 3, p829-841, 13p
– Name: Subject
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  Data: <searchLink fieldCode="DE" term="%22DEINSTITUTIONALIZATION%22">DEINSTITUTIONALIZATION</searchLink><br /><searchLink fieldCode="DE" term="%22DEMENTIA%22">DEMENTIA</searchLink><br /><searchLink fieldCode="DE" term="%22ALZHEIMER'S+disease%22">ALZHEIMER'S disease</searchLink><br /><searchLink fieldCode="DE" term="%22BURDEN+of+care%22">BURDEN of care</searchLink><br /><searchLink fieldCode="DE" term="%22QUALITY+of+life%22">QUALITY of life</searchLink><br /><searchLink fieldCode="DE" term="%22WELL-being%22">WELL-being</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: This narrative explores the impact of deinstitutionalization policies on the quality of life and care outcomes for individuals with Alzheimer's disease and related dementias. We offer a historical perspective on these policies, their implications on dementia care, and the barriers to deinstitutionalization. The potential benefits of deinstitutionalization, such as improved quality of life and access to community-based support and services, are highlighted. Challenges and controversies surrounding safety, caregiver burden, and resource allocation are also examined. Ethical considerations related to the autonomy and decision-making capacity of people living with dementia are discussed. We present best practices and innovative models in dementia care that balance deinstitutionalization with appropriate care. We further put forth recommendations for future research and policy development in dementia care and deinstitutionalization, emphasizing the need for a balanced approach that respects the autonomy and preferences of people living with dementia while ensuring their safety and well-being. [ABSTRACT FROM AUTHOR]
– Name: Abstract
  Label:
  Group: Ab
  Data: <i>Copyright of Journal of Alzheimer's Disease is the property of IOS Press and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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      – Type: doi
        Value: 10.3233/JAD-231180
    Languages:
      – Code: eng
        Text: English
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        PageCount: 13
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      – SubjectFull: DEINSTITUTIONALIZATION
        Type: general
      – SubjectFull: DEMENTIA
        Type: general
      – SubjectFull: ALZHEIMER'S disease
        Type: general
      – SubjectFull: BURDEN of care
        Type: general
      – SubjectFull: QUALITY of life
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        Type: general
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            NameFull: Carcavilla-González, Nuria
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            NameFull: Escalada San Adrián, Gema
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            NameFull: Minobes-Molina, Eduard
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            NameFull: Pàmies-Tejedor, Sandra
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            NameFull: Roncal-Belzunce, Victoria
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            NameFull: Atarés-Rodríguez, Laura
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            NameFull: García-Navarro, José Augusto
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            – D: 01
              M: 06
              Text: 2024
              Type: published
              Y: 2024
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            – TitleFull: Journal of Alzheimer's Disease
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