Psychometric evaluation of the Dysphagia Symptom Questionnaire for adults and adolescents with eosinophilic esophagitis

Authors: McCann, Eilish, Peterson, Kathryn A., Whalley, Diane, Qin, Shanshan, Tilton, Sarette T., Kamat, Siddhesh, Sun, Xian, Dellon, Evan S.

Source: In Journal of Allergy and Clinical Immunology: Global November 2024 3(4)

Estimating Clinically Meaningful Change of Efficacy Outcomes in Inadequately Controlled Chronic Rhinosinusitis with Nasal Polyposis

Authors: Han, Joseph K., Bachert, Claus, Lee, Stella E., Hopkins, Claire, Heffler, Enrico, Hellings, Peter W., Peters, Anju T., Kamat, Siddhesh, Whalley, Diane, Qin, Shanshan, Nelson, Lauren, Siddiqui, Shahid, Khan, Asif H., Li, Yongtao, Mannent, Leda P., Guillemin, Isabelle, Chuang, Chien‐Chia

Source: Laryngoscope. 132(2):265-271

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100139488143.0x000001&indx=1&recIds=ETOCvdc_100139488143.0x000001

Development of Sinonasal Outcome Test (SNOT‐22) Domains in Chronic Rhinosinusitis With Nasal Polyps

Authors: Khan, Asif H., Reaney, Matthew, Guillemin, Isabelle, Nelson, Lauren, Qin, Shanshan, Kamat, Siddhesh, Mannent, Leda, Amin, Nikhil, Whalley, Diane, Hopkins, Claire

Source: Laryngoscope. 132(5):933-941

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100146769908.0x000001&indx=1&recIds=ETOCvdc_100146769908.0x000001

Content evaluation of pruritus, skin pain and sleep disturbance patient-reported outcome measures for adolescents and adults with moderate-to-severe atopic dermatitis: qualitative interviews.

Authors: Blauvelt, Andrew, Reckleff, Jennifer, Zhao, Yang, Clark, Marci, Kosa, Katherine, Harris, Nimanee, Esfandiari, Ehsanollah, Martin, Susan, Whalley, Diane, Guttman-Yassky, Emma

Source: British Journal of Dermatology; Feb2025, Vol. 192, p247-260, 14p

Subject Terms: SLEEP interruptions, PATIENT reported outcome measures, PATIENT experience, QUALITY of life, ATOPIC dermatitis

Increased serum miR-193a-5p during non-alcoholic fatty liver disease progression: Diagnostic and mechanistic relevance

Authors: Clark, James, Cordell, Heather J., Darlay, Rebecca, Day, Christopher P., Hardy, Tim, Liu, Yang-Lin, Oakley, Fiona, Palmer, Jeremy, Queen, Rachel, Wonders, Kristy, Bossuyt, Patrick M., Holleboom, Adriaan G., Zafarmand, Hadi, Vali, Yasaman, Lee, Jenny, Clement, Karine, Pais, Raluca, Schuppan, Detlef, Allison, Michael, Cuenca, Sergio Rodriguez, Pellegrinelli, Vanessa, Vacca, Michele, Vidal-Puig, Antonio, Hyötyläinen, Tuulia, McGlinchey, Aidan, Orešič, Matej, Sen, Partho, Mato, Jose, Millet, Óscar, Dufour, Jean-Francois, Harrison, Stephen, Neubauer, Stefan, Pavlides, Michael, Mozes, Ferenc, Akhtar, Salma, Banerjee, Rajarshi, Kelly, Matt, Shumbayawonda, Elizabeth, Dennis, Andrea, Erpicum, Charlotte, Romero-Gomez, Manuel, Gallego-Durán, Rocío, Fernández, Isabel, Karsdal, Morten, Leeming, Diana, Fisker, Mette Juul, Erhardtsen, Elisabeth, Rasmussen, Daniel, Qvist, Per, Sinisi, Antonia, Sandt, Estelle, Tonini, Maria Manuela, Parola, Maurizio, Rosso, Chiara, Marra, Fabio, Gastaldelli, Amalia, Francque, Sven, Kechagias, Stergios, Yki-Järvinen, Hannele, Porthan, Kimmo, van Mil, Saskia, Papatheodoridis, George, Cortez-Pinto, Helena, Valenti, Luca, Petta, Salvatore, Miele, Luca, Geier, Andreas, Trautwein, Christian, Hockings, Paul, Newsome, Phil, Wenn, David, Pereira Rodrigues, Cecília Maria, Hanf, Rémy, Chaumat, Pierre, Rosenquist, Christian, Trylesinski, Aldo, Ortiz, Pablo, Duffin, Kevin, Yunis, Carla, Miller, Melissa, Tuthill, Theresa, Ertle, Judith, Younes, Ramy, Alexander, Leigh, Ostroff, Rachel, Kjær, Mette Skalshøi, Mikkelsen, Lars Friis, Brass, Clifford, Jennings, Lori, Balp, Maria-Magdalena, Martic, Miljen, Hanauer, Guido, Shankar, Sudha, Torstenson, Richard, Fournier, Céline, Ehman, Richard, Kalutkiewicz, Michael, Pepin, Kay, Myers, Joel, Shevell, Diane, Ho, Gideon, Landgren, Henrik, Myers, Rob, Doward, Lynda, Whalley, Diane, Twiss, James, Johnson, Katherine, Leary, Peter J., Govaere, Olivier, Barter, Matthew J., Charlton, Sarah H., Cockell, Simon J., Tiniakos, Dina, Zatorska, Michalina, Bedossa, Pierre, Brosnan, M. Julia, Cobbold, Jeremy F., Ekstedt, Mattias, Aithal, Guruprasad P., Clément, Karine, Schattenberg, Jörn M., Boursier, Jerome, Ratziu, Vlad, Bugianesi, Elisabetta, Anstee, Quentin M., Daly, Ann K.

Source: In JHEP Reports February 2022 4(2)

International Development of the Parents' Index of Quality of Life in Atopic Dermatitis (PIQoL-AD)

Authors: Whalley, Diane

Source: Quality of Life Research, 2005 Feb 01. 14(1), 231-241.

Access URL: https://www.jstor.org/stable/4038201

Responder Threshold for Patient-Oriented Eczema Measure (POEM) and Children's Dermatology Life Quality Index (CDLQI) in Adolescents with Atopic Dermatitis

Authors: Simpson, Eric L., de Bruin-Weller, Marjolein, Eckert, Laurent, Whalley, Diane, Guillemin, Isabelle, Reaney, Matthew, Chen, Zhen, Nelson, Lauren, Qin, Shanshan, Bansal, Ashish, Gadkari, Abhijit

Source: Dermatology and therapy. 9(4):799-805

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100129367249.0x000001&indx=1&recIds=ETOCvdc_100129367249.0x000001

Health-related quality of life in alcohol dependence: Similar cross-cultural impact beyond specific drinking habits

Authors: Luquiens, Amandine, Owens, Lynn, Whalley, Diane, Rahhali, Nora, Laramée, Philippe, Crawford, Rebecca, Llorca, Pierre-Michel, Falissard, Bruno, Aubin, Henri-Jean

Source: Journal of ethnicity in substance abuse. 18(2):279-295

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100098803489.0x000001&indx=1&recIds=ETOCvdc_100098803489.0x000001

A descriptive follow-up interview study assessing patient-centred outcomes: Salford Lung Study in Asthma (SLS Asthma)

Authors: Doward, Lynda, Svedsater, Henrik, Whalley, Diane, Crawford, Rebecca, Leather, David, Lay-Flurrie, James, Bosanquet, Nick

Source: NPJ primary care respiratory medicine. 29:1-9

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100190240255.0x000001&indx=1&recIds=ETOCvdc_100190240255.0x000001

Insights into the natural history of metachromatic leukodystrophy from interviews with caregivers

Authors: Harrington, Magdalena, Whalley, Diane, Twiss, James, Rushton, Rebecca, Martin, Susan, Huynh, Lynn, Yang, Hongbo

Source: Orphanet journal of rare diseases. 14(1):1-10

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100187139012.0x000001&indx=1&recIds=ETOCvdc_100187139012.0x000001

The Development of a Quality of Life Instrument for Use with Post-Menopausal Women with Urogenital Atrophy in the UK and Sweden

Authors: Whalley, Diane

Source: Quality of Life Research, 1999 Aug 01. 8(5), 393-398.

Access URL: https://www.jstor.org/stable/4036903

Is the EQ-5D fit for purpose in asthma? Acceptability and content validity from the patient perspective

Authors: Whalley, Diane, Globe, Gary, Crawford, Rebecca, Doward, Lynda, Tafesse, Eskinder, Brazier, John, Price, David

Source: Health and quality of life outcomes. 16(1):1-14

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100174836350.0x000001&indx=1&recIds=ETOCvdc_100174836350.0x000001

Clinically meaningful change threshold in health-related quality of life among patients aged 6 months to 5 years with atopic dermatitis and their caregiver(s)/family.

Authors: Paller, Amy S., Marron, Servando E., Whalley, Diane, Nelson, Lauren, Shanshan Qin, Jingdong Chao, Bansal, Ashish, Chien-Chia Chuang, Zhixiao Wang

Source: JEADV Clinical Practice; Mar2024, Vol. 3 Issue 1, p253-257, 5p

Early patient experiences with montelukast orally disintegrating tablets in Japan: a cross-sectional survey of treatment satisfaction in patients with asthma and/or allergic rhinitis

Authors: Whalley, Diane, Petigara, Tanaz, Rasouliyan, Lawrence, Tobe, Keisuke, Tunceli, Kaan

Source: Current medical research and opinion. 33(2):215-223

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100103130684.0x000001&indx=1&recIds=ETOCvdc_100103130684.0x000001

Quantifying the relative importance to patients of avoiding symptoms and outcomes of heart failure

Authors: Hauber, A. Brett, Obi, Engels N., Price, Mark A., Whalley, Diane, Chang, Chun-Lan

Source: Current medical research and opinion. 33(11):2027-2038

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100103131533.0x000001&indx=1&recIds=ETOCvdc_100103131533.0x000001

Salford Lung Study in chronic obstructive pulmonary disease (SLS COPD): follow-up interviews on patient-centred outcomes

Authors: Doward, Lynda, Svedsater, Henrik, Whalley, Diane, Crawford, Rebecca, Leather, David, Lay-Flurrie, James, Bosanquet, Nick

Source: NPJ primary care respiratory medicine. 27:1-9

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100108021850.0x000001&indx=1&recIds=ETOCvdc_100108021850.0x000001

Development of the impact of weight on daily activities questionnaire: A patient‐reported outcome measure

Authors: Ervin, Claire M., Whalley, Diane, von Huth Smith, Lisa, Crawford, Rebecca, Dine, Jennifer, Fehnel, Sheri E

Source: Clinical obesity. 10(6)

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100109302913.0x000001&indx=1&recIds=ETOCvdc_100109302913.0x000001

Validation of NASH-CHECK: a novel patient-reported outcome measure for nonalcoholic steatohepatitis.

Authors: Twiss, James, Whalley, Diane, Doward, Lynda, Balp, Maria-Magdalena, Brass, Clifford A., Cryer, Donna, Sanyal, Arun, Anstee, Quentin M.

Source: Journal of Patient-Reported Outcomes; 7/14/2023, Vol. 7 Issue 1, p1-14, 14p

Subject Terms: RELIABILITY (Personality trait), STATISTICAL reliability, RESEARCH methodology evaluation, HEALTH outcome assessment, NON-alcoholic fatty liver disease, HEALTH status indicators, QUANTITATIVE research, PSYCHOMETRICS, PATIENTS' attitudes, MULTITRAIT multimethod techniques, QUALITY of life, DESCRIPTIVE statistics, FACTOR analysis, RESEARCH funding, EVALUATION, SYMPTOMS

Instruments for Exploring Organizational Culture: A Review of the Literature

Authors: Jung, Tobias, Scott, Tim, Davies, Huw T. O., Bower, Peter, Whalley, Diane, McNally, Rosalind, Mannion, Russell

Source: Public Administration Review, 2009 Nov 01. 69(6), 1087-1096.

Access URL: https://www.jstor.org/stable/40469029

Follow-up interviews from The Salford Lung Study (COPD) and analyses per treatment and exacerbations

Authors: Whalley, Diane, Svedsater, Henrik, Doward, Lynda, Crawford, Rebecca, Leather, David, Lay-Flurrie, James, Bosanquet, Nick

Source: NPJ primary care respiratory medicine. 29(1)

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100131024253.0x000001&indx=1&recIds=ETOCvdc_100131024253.0x000001