Intervention delivery for embedded pragmatic clinical trials: Development of a tool to measure complexity

Authors: Staman, Karen L., Check, Devon K., Zatzick, Doug, Mor, Vincent, Fritz, Julie M., Sluka, Kathleen, DeBar, Lynn L., Jarvik, Jeffrey G., Volandes, Angelo, Coronado, Gloria D., Chambers, David A., Weinfurt, Kevin P., George, Steven Z.

Source: In Contemporary Clinical Trials March 2023 126

Extension and Evaluation of the PROMIS Sexual Function and Satisfaction Measures for Use in Adults Living With Multiple Sclerosis

Authors: Amtmann, Dagmar, Bamer, Alyssa M., Salem, Rana, McMullen, Kara, Beier, Meghan, Flynn, Kathryn E., Foley, Frederick W., Weinfurt, Kevin P., Wilkie, Dana, Alschuler, Kevin N.

Source: Journal of sexual medicine. 19(5):719-728

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100172999011.0x000001&indx=1&recIds=ETOCvdc_100172999011.0x000001

Comparing clinical bladder diaries and recalled patient reports for measuring lower urinary tract symptoms in the symptoms of Lower Urinary Tract Dysfunction Research Network (LURN)

Authors: Flynn, Kathryn E., Wiseman, Jonathan B., Helmuth, Margaret E., Smith, Abigail R., Bradley, Catherine S., Cameron, Anne P., Henry Lai, H., Kirkali, Ziya, Kreder, Karl J., Geynisman‐Tan, Julia, Merion, Robert M., Weinfurt, Kevin P.

Source: Neurourology and urodynamics. 41(8):1711-1721

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100163495277.0x000001&indx=1&recIds=ETOCvdc_100163495277.0x000001

Patient-Reported Functional Outcomes in Patients With Chronic Myeloid Leukemia After Stopping Tyrosine Kinase Inhibitors

Authors: Schoenbeck, Kelly L, Atallah, Ehab, Lin, Li, Weinfurt, Kevin P, Cortes, Jorge, Deininger, Michael W N, Kota, Vamsi, Larson, Richard A, Mauro, Michael J, Oehler, Vivian G, Pinilla-Ibarz, Javier, Radich, Jerald P, Schiffer, Charles A, Shah, Neil P, Silver, Richard T, Thompson, James E, Flynn, Kathryn E

Source: Journal of the National Cancer Institute. 114(1):160-164

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100138873710.0x000001&indx=1&recIds=ETOCvdc_100138873710.0x000001

Recalling what we thought we knew about recall periods: a qualitative descriptive study of how adults diagnosed with cancer use recall periods for patient-reported outcome items about physical function.

Authors: Coles, Theresa, Plyler, Kate, Hernandez, Alexy, Fillipo, Rebecca, Henke, Debra M., Arizmendi, Cara, Goodwin, C. Rory, LeBlanc, Thomas W., Lagoo-Deenadayalan, Sandhya, Reeve, Bryce B., Weinfurt, Kevin P.

Source: Quality of Life Research; Mar2025, Vol. 34 Issue 3, p857-866, 10p

Subject Terms: PHYSICAL mobility, PATIENT reported outcome measures, TREATMENT effectiveness, ACQUISITION of data, QUALITATIVE research, TUMORS

Decisional Satisfaction, Regret, and Conflict Among Parents of Infants with Neurologic Conditions

Authors: Barlet, Margaret H., Ubel, Peter A., Weinfurt, Kevin P., Glass, Hannah C., Pollak, Kathryn I., Brandon, Debra H., Lemmon, Monica E.

Source: In The Journal of Pediatrics June 2022 245:81-88

Constructing arguments for the interpretation and use of patient-reported outcome measures in research : an application of modern validity theory

Authors: Weinfurt, Kevin P.

Source: Quality of Life Research, 2021 Jun 01. 30(6), 1715-1722.

Access URL: https://www.jstor.org/stable/48751521

Responding to signals of mental and behavioral health risk in pragmatic clinical trials: Ethical obligations in a healthcare ecosystem

Authors: Ali, Joseph, Morain, Stephanie R., O'Rourke, P. Pearl, Wilfond, Benjamin, O'Brien, Emily C., Zigler, Christina K., Staman, Karen L., Weinfurt, Kevin P., Sugarman, Jeremy

Source: In Contemporary Clinical Trials February 2022 113

Correspondence Between Clinician Ratings of Vulvovaginal Health and Patient-Reported Sexual Function After Cancer

Authors: Flynn, Kathryn E., Lin, Li, Carter, Jeanne, Baser, Raymond E., Goldfarb, Shari, Saban, Sally, Weinfurt, Kevin P.

Source: In The Journal of Sexual Medicine October 2021 18(10):1768-1774

Views of Normal Bladder Function Among Women Experiencing Lower Urinary Tract Symptoms

Authors: Burgio, Kathryn L., James, Aimee S., LaCoursiere, D. Yvette, Mueller, Elizabeth R., Newman, Diane K., Low, Lisa Kane, Weinfurt, Kevin P., Wyman, Jean F., Cunningham, Shayna D., Vargo, Keith, Connett, John, Williams, Beverly Rosa

Source: In Urology April 2021 150:103-109

Applying patient-reported outcome methodology to capture patient-reported health data: Report from an NIH Collaboratory roundtable

Authors: Bennett, Antonia V., Jonsson, Mattias, Chen, Ronald C., Al ‐Khatib, Sana M., Weinfurt, Kevin P., Curtis, Lesley H.

Source: In Healthcare September 2020 8(3)

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Viewing assessments of patient-reported heath status as conversations : Implications for developing and evaluating patient-reported outcome measures

Authors: Weinfurt, Kevin P.

Source: Quality of Life Research, 2019 Dec 01. 28(12), 3395-3401.

Access URL: https://www.jstor.org/stable/48705265

Relationship of symptom severity and bother in individuals seeking care for lower urinary tract symptoms

Authors: Agochukwu‐Mmonu, Nnenaya, Wiseman, Jonathan B., Smith, Abigail R., Helmuth, Margaret E., Sarma, Aruna V., Cameron, Anne P., Amundsen, Cindy L., Flynn, Kathryn E., Cella, David, Weinfurt, Kevin P., Kirkali, Ziya, Clemens, J. Quentin

Source: Neurourology and urodynamics. 39(8):2161-2170

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100120165946.0x000001&indx=1&recIds=ETOCvdc_100120165946.0x000001

Patient demographic and psychosocial characteristics associated with 30‐day recall of self‐reported lower urinary tract symptoms

Authors: Flynn, Kathryn E., Mansfield, Sarah A., Smith, Abigail R., Gillespie, Brenda W., Bradley, Catherine S., Cella, David, Helmuth, Margaret E., Lai, H. Henry, Kirkali, Ziya, Talaty, Pooja, Griffith, James W., Weinfurt, Kevin P.

Source: Neurourology and urodynamics. 39(7):1939-1948

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100108117982.0x000001&indx=1&recIds=ETOCvdc_100108117982.0x000001

Expectations of preventative benefits and risk behaviors in a randomized trial evaluating oral HIV preexposure prophylaxis candidates.

Authors: Sugarman, Jeremy, Weir, Brian W., Dun, Chen, Gulick, Roy M., Wilkin, Timothy J., Mayer, Kenneth H., McCauley, Marybeth, Weinfurt, Kevin P.

Source: AIDS Care; Aug2024, Vol. 36 Issue 8, p1172-1178, 7p

Subject Terms: HIV prevention, PREVENTIVE medicine, PATIENT selection, SAFETY, SEXUALLY transmitted diseases, PATIENT compliance, HEALTH attitudes, RISK-taking behavior, ANTIRETROVIRAL agents, DATA analysis, SECONDARY analysis, CLINICAL trials, HUMAN research subjects, LOGISTIC regression analysis, QUESTIONNAIRES, CHI-squared test, PRE-exposure prophylaxis, MEN who have sex with men, ODDS ratio, CISGENDER people, STATISTICS, CONFIDENCE intervals, DRUGS

What facets of physical function are most important to adults diagnosed with cancer?

Authors: Coles, Theresa, Plyler, Kate, Hernandez, Alexy, Fillipo, Rebecca, Henke, Debra M., Arizmendi, Cara, Lagoo-Deenadayalan, Sandhya, Goodwin, C. Rory, LeBlanc, Thomas W., Horodniceanu, Erica G., Bhatnagar, Vishal, Reeve, Bryce B., Weinfurt, Kevin P.

Source: Quality of Life Research; Jul2024, Vol. 33 Issue 7, p1829-1839, 11p

Subject Terms: PHYSICAL mobility, CANCER patients, CANCER diagnosis, PATIENT experience, COGNITIVE interviewing, CHILD patients, TUMOR markers

Symptom Based Clustering of Women in the LURN Observational Cohort Study

Authors: Andreev, Victor P., Liu, Gang, Yang, Claire C., Smith, Abigail R., Helmuth, Margaret E., Wiseman, Jonathan B., Merion, Robert M., Weinfurt, Kevin P., Cameron, Anne P., Lai, H. Henry, Cella, David, Gillespie, Brenda W., Helfand, Brian T., Griffith, James W., DeLancey, John O.L., Fraser, Matthew O., Clemens, J. Quentin, Kirkali, Ziya

Source: In The Journal of Urology December 2018 200(6):1323-1331

Prevalence and Characteristics of Urinary Incontinence in a Treatment Seeking Male Prospective Cohort: Results from the LURN Study

Authors: Helfand, Brian T., Smith, Abigail R., Lai, H. Henry, Yang, Claire C., Gore, John L., Erickson, Brad A., Kreder, Karl J., Cameron, Anne P., Weinfurt, Kevin P., Griffith, James W., Lentz, Aaron, Talaty, Pooja, Andreev, Victor P., Kirkali, Ziya

Source: In The Journal of Urology August 2018 200(2):397-404

Decisional Conflict Among Patients Who Accept or Decline Participation in Phase I Oncology Studies

Authors: Flynn, Kathryn E., Weinfurt, Kevin P., Seils, Damon M., Lin, Li, Burnett, Caroline B., Schulman, Kevin A., Meropol, Neal J.

Source: Journal of Empirical Research on Human Research Ethics: An International Journal, 2008 Sep . 3(3), 69-77.

Access URL: https://www.jstor.org/stable/10.1525/jer.2008.3.3.69