GDPR and Biobanking

Contributors: Slokenberga, Santa, Tzortzatou, Olga, Reichel, Jane

Subject Terms: European Law, Systems and Data Security, Human Genetics, Data and Information Security, Medical Genetics, Biobank research, GDPR, Article 89 GDPR, Data protection, Informational privacy, ELSI in genetics and genomics, Human specimens, Research Governance, Public interest, Regulatory framework, Open Access, International law, Computer security, Network security, Medical genetics

File Description: application/pdf

Relation: Law, Governance and Technology Series

Access URL: https://library.oapen.org/handle/20.500.12657/46125

A proposal for an international Code of Conduct for data sharing in genomics.

Authors: Matar, Amal, Hansson, Mats, Slokenberga, Santa, Panagiotopoulos, Adam, Chassang, Gauthier, Tzortzatou, Olga, Pormeister, Kärt, Uhlin, Elias, Cardone, Antonella, Beauvais, Michael

Source: Developing World Bioethics; Dec2023, Vol. 23 Issue 4, p344-357, 14p

Subject Terms: CODES of ethics, INFORMATION sharing, GENOMICS, RESEARCH personnel, BEST practices

Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance.

Authors: Akyüz, Kaya, Chassang, Gauthier, Goisauf, Melanie, Kozera, Łukasz, Mezinska, Signe, Tzortzatou, Olga, Mayrhofer, Michaela Th.

Source: Life Sciences, Society & Policy; 12/13/2021, Vol. 17 Issue 1, p1-28, 28p

Subject Terms: RISK assessment, SCIENTIFIC literature, SCIENTIFIC community, LEGAL instruments, SUSTAINABILITY

Data Portability in Health Research and Biobanking: Legal Benchmarks for Appropriate Implementation.

Authors: Chassang, Gauthier, Southerington, Tom, Tzortzatou, Olga, Boeckhout, Martin, Slokenberga, Santa

Source: European Data Protection Law Review (EDPL); 2018, Vol. 4 Issue 3, p296-307, 12p

Subject Terms: DATA protection laws, MEDICAL informatics, MEDICAL research, GUIDELINES

Company/Entity: EUROPEAN Union