Factors associated with satisfaction with social roles and activities among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network (SPIN) cohort cross-sectional study

Authors: Arsène Mekinian, Thierry Martin, Eric Hachulla, Carter Thorne, Danielle Rice, Andrea Benedetti, Brooke Levis, Virginia Steen, Paul R Fortin, Vincent Poindron, Aurélien Guffroy, David Launay, Luc Mouthon, Mandana Nikpour, John Varga, Benjamin Chaigne, Sindhu R Johnson, Sébastien Rivière, Michael Hughes, Daphna Harel, Marie-Eve Carrier, Karen Nielsen, Susan J Bartlett, Karen Gottesman, Ghassan El-Baalbaki, Kim Fligelstone, Catherine Fortune, Tracy Frech, Marie Hudson, Maggie Larche, Catarina Leite, Janet Pope, Anne A Schouffoer, Maria E Suarez-Almazor, Christian Agard, Marc André, Sabine Berthier, Lyne Bissonnette, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Christopher Denton, Robyn Domsic, James V Dunne, Bertrand Dunogue, Regina Fare, Dominique Farge-bancel, Jessica Gordon, Brigitte Granel-Rey, Genevieve Gyger, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Marc Lambert, Hélène Maillard, Joanne Manning, Ariel Masetto, François Maurier, Susanna Proudman, Alexis Régent, David Robinson, Sophie Roux, Perrine Smets, Vincent Sobanski, Robert Spiera, Evelyn Sutton, Pearce Wilcox, Laurent Alric, Grégory Pugnet, François Rannou, Amy Gietzen, Christelle Nguyen, Michelle Richard, Nancy Maltez, Isabelle Marie, Mara Cañedo Ayala, Geneviève Guillot, Elana J Bernstein, Brett Thombs, Paul Legendre, Thylbert Deltombe, Sabrina Hoa, Laura K Hummers, Sophie Blaise, Yvonne C Lee, Louis Olagne, Marie-Claude Geoffroy, Richard S Henry, Robyn Wojeck, Maureen Mayes, Tiffany Dal Santo, Kimberly Lakin, Gabrielle Virgili-Gervais, Vanessa Malcarne, Claire E Adams, Rodriguez-Reyna Tatiana Sofia, Floryan Beaslay, Eva Bories, Carlotta Cacciatore, Benjamin Crichi, Tannvir Desroche, Loraine Gauzère, Anne Gerber, Maria Martin Lopez, Sheila Melchor Díaz, Morgane Mourguet, Loïc Raffray, Frederic Renou, Esther Rodríguez Almazar, Damien Vagner, Vanessa Cook, Sophie Hu, Elsa-Lynn Nassar, Marieke Alexandra Neyer, Sabrina Provencher

Source: RMD Open, Vol 10, Iss 1 (2024)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://rmdopen.bmj.com/content/10/1/e003876.full; https://doaj.org/toc/2056-5933

Access URL: https://doaj.org/article/013d8f853a3b4acc8eb9cc91a6f17411

Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional studyResearch in context

Authors: Robyn K. Wojeck, Mitchell R. Knisely, Donald E. Bailey, Tamara J. Somers, Linda Kwakkenbos, Marie-Eve Carrier, Warren R. Nielson, Susan J. Bartlett, Vanessa L. Malcarne, Marie Hudson, Brooke Levis, Andrea Benedetti, Luc Mouthon, Brett D. Thombs, Susan G. Silva, Claire E. Adams, Richard S. Henry, Catherine Fortuné, Karen Gottesman, Geneviève Guillot, Laura K. Hummers, Amanda Lawrie-Jones, Maureen D. Mayes, Michelle Richard, Maureen Sauvé, Shervin Assassi, Ghassan El-Baalbaki, Kim Fligelstone, Tracy Frech, Amy Gietzen, Daphna Harel, Monique Hinchcliff, Sindhu R. Johnson, Maggie Larche, Catarina Leite, Christelle Nguyen, Karen Nielsen, Janet Pope, François Rannou, Tatiana Sofia Rodriguez-Reyna, Anne A. Schouffoer, Maria E. Suarez-Almazor, Christian Agard, Nassim Ait Abdallah, Marc André, Elana J. Bernstein, Sabine Berthier, Lyne Bissonnette, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Benjamin Chaigne, Lorinda Chung, Benjamin Crichi, Christopher Denton, Robyn Domsic, James V. Dunne, Bertrand Dunogue, Regina Fare, Dominique Farge-Bancel, Paul R. Fortin, Jessica Gordon, Brigitte Granel-Rey, Aurélien Guffroy, Genevieve Gyger, Eric Hachulla, Sabrina Hoa, Alena Ikic, Suzanne Kafaja, Nader Khalidi, Kimberly Lakin, Marc Lambert, David Launay, Yvonne C. Lee, Hélène Maillard, Nancy Maltez, Joanne Manning, Isabelle Marie, Maria Martin Lopez, Thierry Martin, Ariel Masetto, François Maurier, Arsene Mekinian, Sheila Melchor Díaz, Mandana Nikpour, Louis Olagne, Vincent Poindron, Susanna Proudman, Alexis Régent, Sébastien Rivière, David Robinson, Esther Rodríguez Almazar, Sophie Roux, Perrine Smets, Vincent Sobanski, Robert Spiera, Virginia Steen, Evelyn Sutton, Carter Thorne, John Varga, Pearce Wilcox, Mara Cañedo Ayala, Vanessa Cook, Sophie Hu, Bianca Matthews, Elsa-Lynn Nassar, Marieke Alexandra Neyer, Julia Nordlund, Sabrina Provencher

Source: EClinicalMedicine, Vol 62, Iss , Pp 102104- (2023)

Subject Terms: Systemic sclerosis, Patient-reported symptoms, Symptom cluster, Medicine (General), R5-920

File Description: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S258953702300281X; https://doaj.org/toc/2589-5370

Access URL: https://doaj.org/article/3c82e788a0114b59adfd3e08502ac600

Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma Patient-centred Intervention Network (SPIN) Cohort Study

Authors: Arsène Mekinian, Thierry Martin, Eric Hachulla, Carter Thorne, Andrea Benedetti, Brett D Thombs, Daniel E Furst, Virginia Steen, Paul R Fortin, Vincent Poindron, David Launay, Luc Mouthon, Mandana Nikpour, John Varga, Benjamin Chaigne, Sindhu R Johnson, Sébastien Rivière, Isabelle Boutron, Daphna Harel, Linda Kwakkenbos, Marie-Eve Carrier, Karen Nielsen, Alexandra Portales, Susan J Bartlett, Vanessa L Malcarne, Murray Baron, Karen Gottesman, Maureen D Mayes, Warren R Nielson, Robert Riggs, Maureen Sauve, Fredrick Wigley, Shervin Assassi, Angela Costa Maia, Ghassan El-Baalbaki, Carolyn Ells, Kim Fligelstone, Catherine Fortune, Tracy Frech, Dominique Godard, Marie Hudson, Ann Impens, Yeona Jang, Ann Tyrell Kennedy, Annett Körner, Maggie Larche, Catarina Leite, Carlo Marra, Janet Pope, Russell J Steele, Maria E Suarez-Almazor, Joep Welling, Durhane Wong-Rieger, Christian Agard, Alexandra Albert, Marc André, Guylaine Arsenault, Ilham Benzidia, Sabine Berthier, Lyne Bissonnette, Gilles Boire, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Pascal Cohen, Pierre Dagenais, Christopher Denton, Robyn Domsic, Sandrine Dubois, James V Dunne, Bertrand Dunogue, Alexia Esquinca, Regina Fare, Dominique Farge-bancel, Anna Gill, Jessica Gordon, Brigitte Granel-Rey, Claire Grange, Genevieve Gyger, Pierre-Yves Hatron, Ariane L Herrick, Adrian Hij, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Marc Lambert, Patrick Liang, Hélène Maillard, Joanne Manning, Maria Martin, Ariel Masetto, François Maurier, Sheila Melchor, Susanna Proudman, Alexis Régent, David Robinson, Esther Rodriguez, Sophie Roux, Perrine Smets, Doug Smith, Vincent Sobanski, Robert Spiera, Wendy Stevens, Evelyn Sutton, Benjamin Terrier, Pearce Wilcox, Shadi Gholizadeh, François Rannou, Lindsay Cronin, Stephen Elrod, Cornelia van den Ende, Amy Gietzen, Christelle Nguyen, Michelle Richard, Ken Rozee, Anne A. Schouffoer, Nancy Stephens, Chase Correia, Artur Jose de B. Fernandes, Nancy Maltez, Isabelle Marie, Lydia Tao, Sami Harb, Elana J Bernstein, Sophia J Sommer, Shirley Haslam Geneviève Guillot, Tatiana Sofia Rodriguez Reyna, Sabrina Hoa, Angelica Bourgeault, Andrea Carboni Jiménez

Source: BMJ Open, Vol 10, Iss 10 (2020)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/10/10/e037639.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/7f6591062be448108df988ea9f1fce30

Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study

Authors: Thierry Martin, Carter Thorne, Brett D Thombs, Vincent Poindron, John Varga, Isabelle Boutron, Linda Kwakkenbos, Marie-Eve Carrier, Karen Nielsen, Alexandra Portales, Susan J Bartlett, Vanessa L Malcarne, Karen Gottesman, Warren R Nielson, Robert Riggs, Maureen Sauve, Fredrick Wigley, Shervin Assassi, Angela Costa Maia, Ghassan El-Baalbaki, Carolyn Ells, Catherine Fortune, Dominique Godard, Ann Impens, Yeona Jang, Ann Tyrell Kennedy, Annett Körner, Maggie Larche, Catarina Leite, Carlo Marra, Janet Pope, Tatiana Sofia Rodriguez Reyna, Joep Welling, Durhane Wong-Rieger, Alexandra Albert, Marc André, Guylaine Arsenault, Ilham Benzidia, Lyne Bissonnette, Gilles Boire, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Pascal Cohen, Pierre Dagenais, Christopher Denton, Robyn Domsic, Sandrine Dubois, Bertrand Dunogue, Alexia Esquinca, Regina Fare, Dominique Farge-bancel, Anna Gill, Jessica Gordon, Brigitte Granel-Rey, Genevieve Gyger, Pierre-Yves Hatron, Ariane L Herrick, Adrian Hij, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Patrick Liang, Joanne Manning, Maria Martin, Ariel Masetto, Sheila Melchor, David Robinson, Esther Rodriguez, Sophie Roux, Perrine Smets, Doug Smith, Robert Spiera, Evelyn Sutton, Benjamin Terrier, Pearce Wilcox, Michelle Wilson, Julie Cumin, François Rannou, Daniel E. Furst, Maureen D. Mayes, Lindsay Cronin, Stephen Elrod, Cornelia van den Ende, Amy Gietzen, Daphna Harel Geneviève Guillot, Shirley Haslam, Sindhu R. Johnson, Christelle Nguyen, Michelle Richard, Ken Rozee, Anne A. Schouffoer, Russell J. Steele, Nancy Stephens, Maria E. Suarez-Almazor, Chase Correia, James V. Dunne, Paul R. Fortin, Artur Jose de B. Fernandes, Nancy Maltez, Isabelle Marie, Kylene Anne Aguila, Mara Cañedo Ayala, Andrea Carboni-Jiménez, Claire Fedoruk, Lydia Tao, Kimberly Turner, Sami Harb, Mekinian Arsene, Nikpour Mandana, Gholizadeh Shadi

Source: BMJ Open, Vol 9, Iss 10 (2019)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/9/10/e029542.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/cbae4e695cfa46f89f3d6e4456d53273

Gene-level association analysis of systemic sclerosis: A comparison of African-Americans and White populations.

Authors: Olga Y Gorlova, Yafang Li, Ivan Gorlov, Jun Ying, Wei V Chen, Shervin Assassi, John D Reveille, Frank C Arnett, Xiaodong Zhou, Lara Bossini-Castillo, Elena Lopez-Isac, Marialbert Acosta-Herrera, Peter K Gregersen, Annette T Lee, Virginia D Steen, Barri J Fessler, Dinesh Khanna, Elena Schiopu, Richard M Silver, Jerry A Molitor, Daniel E Furst, Suzanne Kafaja, Robert W Simms, Robert A Lafyatis, Patricia Carreira, Carmen Pilar Simeon, Ivan Castellvi, Emma Beltran, Norberto Ortego, Christopher I Amos, Javier Martin, Maureen D Mayes

Source: PLoS ONE, Vol 13, Iss 1, p e0189498 (2018)

Subject Terms: Medicine, Science

File Description: electronic resource

Relation: http://europepmc.org/articles/PMC5749683?pdf=render; https://doaj.org/toc/1932-6203

Access URL: https://doaj.org/article/a17842ace80e4c68ac10b6c33629c421