Return of individual research results from genomic research: A systematic review of stakeholder perspectives.

Authors: Danya F Vears, Joel T Minion, Stephanie J Roberts, James Cummings, Mavis Machirori, Mwenza Blell, Isabelle Budin-Ljøsne, Lorraine Cowley, Stephanie O M Dyke, Clara Gaff, Robert Green, Alison Hall, Amber L Johns, Bartha M Knoppers, Stephanie Mulrine, Christine Patch, Eva Winkler, Madeleine J Murtagh

Source: PLoS ONE, Vol 16, Iss 11, p e0258646 (2021)

Subject Terms: Medicine, Science

File Description: electronic resource

Relation: https://doaj.org/toc/1932-6203

Access URL: https://doaj.org/article/75d9941db23c471dbf8fa1cbf87a380c

BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2.

Authors: Melissa S Cline, Rachel G Liao, Michael T Parsons, Benedict Paten, Faisal Alquaddoomi, Antonis Antoniou, Samantha Baxter, Larry Brody, Robert Cook-Deegan, Amy Coffin, Fergus J Couch, Brian Craft, Robert Currie, Chloe C Dlott, Lena Dolman, Johan T den Dunnen, Stephanie O M Dyke, Susan M Domchek, Douglas Easton, Zachary Fischmann, William D Foulkes, Judy Garber, David Goldgar, Mary J Goldman, Peter Goodhand, Steven Harrison, David Haussler, Kazuto Kato, Bartha Knoppers, Charles Markello, Robert Nussbaum, Kenneth Offit, Sharon E Plon, Jem Rashbass, Heidi L Rehm, Mark Robson, Wendy S Rubinstein, Dominique Stoppa-Lyonnet, Sean Tavtigian, Adrian Thorogood, Can Zhang, Marc Zimmermann, BRCA Challenge Authors, John Burn, Stephen Chanock, Gunnar Rätsch, Amanda B Spurdle

Source: PLoS Genetics, Vol 14, Iss 12, p e1007752 (2018)

Subject Terms: Genetics, QH426-470

File Description: electronic resource

Relation: https://doaj.org/toc/1553-7390; https://doaj.org/toc/1553-7404

Access URL: https://doaj.org/article/3d040669de2049168c109d5c746eac9a

Consent Codes: Upholding Standard Data Use Conditions.

Authors: Stephanie O M Dyke, Anthony A Philippakis, Jordi Rambla De Argila, Dina N Paltoo, Erin S Luetkemeier, Bartha M Knoppers, Anthony J Brookes, J Dylan Spalding, Mark Thompson, Marco Roos, Kym M Boycott, Michael Brudno, Matthew Hurles, Heidi L Rehm, Andreas Matern, Marc Fiume, Stephen T Sherry

Source: PLoS Genetics, Vol 12, Iss 1, p e1005772 (2016)

Subject Terms: Genetics, QH426-470

File Description: electronic resource

Relation: https://journals.plos.org/plosgenetics/article/file?id=10.1371/journal.pgen.1005772&type=printable; https://doaj.org/toc/1553-7390; https://doaj.org/toc/1553-7404

Access URL: https://doaj.org/article/dba8b7865e8c40ae9da832cc978bc9f9

Controlled Access under Review: Improving the Governance of Genomic Data Access.

Authors: Mahsa Shabani, Stephanie O M Dyke, Yann Joly, Pascal Borry

Source: PLoS Biology, Vol 13, Iss 12, p e1002339 (2015)

Subject Terms: Biology (General), QH301-705.5

File Description: electronic resource

Relation: http://europepmc.org/articles/PMC4697814?pdf=render; https://doaj.org/toc/1544-9173; https://doaj.org/toc/1545-7885

Access URL: https://doaj.org/article/eea8b5c2f6754f60aea06f2300185238

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Points-to-consider on the return of results in epigenetic research

Authors: Stephanie O. M. Dyke, Katie M. Saulnier, Charles Dupras, Amy P. Webster, Karen Maschke, Mark Rothstein, Reiner Siebert, Jörn Walter, Stephan Beck, Tomi Pastinen, Yann Joly

Source: Genome Medicine, Vol 11, Iss 1, Pp 1-9 (2019)

Subject Terms: Return of results, Incidental findings, Epigenetics, ELSI, Medicine, Genetics, QH426-470

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s13073-019-0646-6; https://doaj.org/toc/1756-994X

Access URL: https://doaj.org/article/3fcc58747b254ada85d411965fa7bf4e