Integration of Palliative Care into Heart Failure Care: Consensus-Based Recommendations from the Heart Failure Society of America

Authors: CHUZI, SARAH ¹, SAYLOR, MARTHA ABSHIRE ², ALLEN, LARRY A. ³, DESAI, AKSHAY S. ⁴, FEDER, SHELLI ⁵, GOLDSTEIN, NATHAN E. ⁶, GRONINGER, HUNTER ⁷, KIRKPATRICK, JAMES N. ⁸, TULSKY, JAMES A. ^{9, 10}, STEINER, JILL M. ^{8, 11}, LEVER, NATASHA ¹⁰, LEWIS, ELDRIN ¹², ROGERS, JOSEPH G. ¹³, WARRAICH, HAIDER J. ^{14, ⁎}

Source: In Journal of Cardiac Failure March 2025 31(3):559-573

Palliative Care Education in Cardiovascular Disease Fellowships: A National Survey of Program Directors

Authors: GODFREY, SARAH, STEINER, JILL M., DAMLUJI, ABDULLA A., SAMPATH, RAMYA, CHUZI, SARAH, WARRAICH, HAIDER, KRISHNASWAMI, ASHOK, BERNACKI, GWEN, GOODLIN, SARAH, JOSEPHSON, RICHARD, MULROW, JOHN, DOHERTY, CAROLINE

Source: In Journal of Cardiac Failure December 2024 30(12):1583-1591

Rationale and design of a randomized controlled clinical trial of a resilience-building intervention in adults with congenital heart disease

Authors: Steiner, Jill M., Marshall, Arisa Rei, Kovacs, Adrienne H., Engelberg, Ruth A., Brumback, Lyndia, Stout, Karen K., Longenecker, Chris T., Yi-Frazier, Joyce P., Rosenberg, Abby R.

Source: In Contemporary Clinical Trials October 2024 145

Design, Creation, and 13-Month Performance of a Novel, Web-Based Activity for Education in Primary Cardiology Palliative Care

Authors: Steiner, Jill M., Doherty, Caroline L., Patton, Jill A., Gruen, Jadry, Godfrey, Sarah, Mulrow, John, Josephson, Richard A., Goodlin, Sarah J.

Source: In Journal of Pain and Symptom Management September 2024 68(3):255-260

Key Psychosocial Health Outcomes and Association With Resilience Among Patients With Adult Congenital Heart Disease

Authors: Steiner, Jill M., Nassans, Katherine, Brumback, Lyndia, Stout, Karen K., Longenecker, Chris T., Yi-Frazier, Joyce P., Curtis, J. Randall, Rosenberg, Abby R.

Source: In JACC: Advances May 2024 3(5)

A World of Maximalist Medicine: Physician Perspectives on Palliative Care and End-of-life for Patients With Pulmonary Arterial Hypertension

Authors: Brown, Crystal E., Steiner, Jill M., Leary, Peter J., Curtis, J. Randall, Engelberg, Ruth A.

Source: JOURNAL OF PAIN AND SYMPTOM MANAGEMENT. 65(4):e329-e335

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100186606617.0x000001&indx=1&recIds=ETOCvdc_100186606617.0x000001

Sudden cardiac death as a consequence of Cor triatriatum sinistrum in an adult

Authors: Tran, Tomio, Ch'en, Peter, Wu, Bicong, Steiner, Jill M., Huang, Gary S.

Source: Journal of cardiology cases. 27(1):4-7

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100178439318.0x000001&indx=1&recIds=ETOCvdc_100178439318.0x000001

Definitions of resilience and resilience resource use as described by adults with congenital heart disease

Authors: Steiner, Jill M., Abu-Rish Blakeney, Erin, Corage Baden, Andrea, Freeman, Vea, Yi-Frazier, Joyce, Curtis, J. Randall, Engelberg, Ruth A., Rosenberg, Abby R.

Source: In International Journal of Cardiology Congenital Heart Disease June 2023 12

Peri‐procedural code status for transcatheter aortic valve replacement: Absence of program policies and standard practices

Authors: Bernacki, Gwen M., Starks, Helene, Krishnaswami, Ashok, Steiner, Jill M., Allen, Matthew B., Batchelor, Wayne B., Yang, Eugene, Wyman, Janet, Kirkpatrick, James N.

Source: Journal of the American Geriatrics Society. 70(12):3378-3389

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100168759607.0x000001&indx=1&recIds=ETOCvdc_100168759607.0x000001

What Does it Mean to be an Excellent Mentor? J. Randall “Randy” Curtis’ Living Legacy

Authors: McDermott, Cara L., Coats, Heather, Bernacki, Gwen M., Blakeney, Erin Abu-Rish, Brown, Crystal E., Lau, Nancy, Lee, Robert Y., Modes, Matthew E., Steineck, Angela, Steiner, Jill M., Taylor, Mallory R., Kross, Erin K.

Source: In Journal of Pain and Symptom Management June 2022 63(6):e657-e659

Patient perspectives on clinician-patient partnerships to achieve comprehensive pregnancy care in adult congenital heart disease

Authors: Steiner, Jill M., West, Kathleen M., Bayley, Elizabeth, Pechan, Jaimie, Engelberg, Ruth A., Albright, Catherine, Buber, Jonathan

Source: In International Journal of Cardiology Congenital Heart Disease March 2022 7

Cardiac and Pregnancy Outcomes of Pregnant Patients With Congenital Heart Disease According to Risk Classification System

Authors: Steiner, Jill M., Lokken, Erica, Bayley, Elizabeth, Pechan, Jaimie, Curtin, Anna, Buber, Jonathan, Albright, Catherine

Source: In The American Journal of Cardiology 15 December 2021 161:95-101

Advance care planning in adult congenital heart disease: Unique approaches for a unique population

Authors: Small, Adam J., Karlin, Daniel, Jain, Chandra, Steiner, Jill M., Reardon, Leigh C.

Source: In International Journal of Cardiology Congenital Heart Disease October 2021 5

It's part of who I am: The impact of congenital heart disease on adult identity and life experience

Authors: Steiner, Jill M., Dhami, Alysha, Brown, Crystal E., Stout, Karen K., Curtis, J. Randall, Engelberg, Ruth A., Kirkpatrick, James N.

Source: In International Journal of Cardiology Congenital Heart Disease August 2021 4

Experience With Advance Care Planning Discussions Among Pregnant Women With Congenital Heart Disease

Authors: Steiner, Jill M., West, Kathleen M., Bayley, Elizabeth, Pechan, Jaimie, Albright, Catherine, Buber, Jonathan, Engelberg, Ruth A.

Source: JOURNAL OF PAIN AND SYMPTOM MANAGEMENT. 62(3):587-592

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Barriers and Facilitators of Palliative Care and Advance Care Planning in Adults With Congenital Heart Disease

Authors: Steiner, Jill M., Dhami, Alysha, Brown, Crystal E., Stout, Karen K., Curtis, J. Randall, Engelberg, Ruth A., Kirkpatrick, James N.

Source: In The American Journal of Cardiology 15 November 2020 135:128-134

A view from the end: what the last year of life can teach us about palliative care on the adult congenital heart disease journey

Authors: Steiner, Jill M, Kirkpatrick, James N

Source: European heart journal. 43(42):4493-4495

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100164406891.0x000001&indx=1&recIds=ETOCvdc_100164406891.0x000001

Palliative Care Opportunities Among Adults With Congenital Heart Disease—A Systematic Review

Authors: Aslakson, Rebecca, Ast, Katherine, Carroll, Thomas, Dzeng, Elizabeth, Harrison, Krista L., Kaye, Erica C., LeBlanc, Thomas W., Lo, Shelly S., McKenna, Kelly, Nageswaran, Savithri, Powers, James, Rotella, Joseph, Ullrich, Christina, Vickey, Theresa, Ludmir, Jonathan, Steiner, Jill M., Wong, Hong-nei, Kloosterboer, Amy, Leong, Jason, Aslakson, Rebecca A.

Source: In Journal of Pain and Symptom Management November 2019 58(5):891-898

Sensitivity and Specificity of a Machine Learning Algorithm to Identify Goals-of-care Documentation for Adults With Congenital Heart Disease at the End of Life

Authors: Steiner, Jill M., Morse, Christina, Lee, Robert Y., Curtis, J. Randall, Engelberg, Ruth A.

Source: JOURNAL OF PAIN AND SYMPTOM MANAGEMENT. 60(3):e33-e36

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100117979027.0x000001&indx=1&recIds=ETOCvdc_100117979027.0x000001

Adults with congenital heart disease – Facing morbidities and uncertain early mortality

Authors: Steiner, Jill M., Kovacs, Adrienne H.

Source: In Progress in Pediatric Cardiology March 2018 48:75-81