A longitudinal cohort study of mediators of health‐related quality of life after pediatric epilepsy surgery or medical treatment

Authors: Smith, Mary Lou, Puka, Klajdi, Speechley, Kathy N., Ferro, Mark A., Connolly, Mary B., Major, Philippe, Gallagher, Anne, Almubarak, Salah, Hasal, Simona, Ramachandrannair, Rajesh, Andrade, Andrea, Xu, Qi, Leung, Edward, Snead, O. Carter, Widjaja, Elysa

Source: Epilepsia. 64(8):2162-2171

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100189955193.0x000001&indx=1&recIds=ETOCvdc_100189955193.0x000001

Pre-Operative Predictors of Health-Related Quality of Life Two Years After Pediatric Epilepsy Surgery: A Prospective Cohort Study

Authors: Rojulpote, Krishna Vamsi, Smith, Mary Lou, Puka, Klajdi, Speechley, Kathy N, Ferro, Mark A., Connolly, Mary B., Major, Philippe, Gallagher, Anne, Almubarak, Salah, Hasal, Simona, Ramachandrannair, Rajesh, Andrade, Andrea, Xu, Qi, Leung, Edward, Snead, O. Carter, III, Widjaja, Elysa

Source: In Seizure: European Journal of Epilepsy October 2023 111:196-202

Impact of number of anti-seizure medications on long-term health-related quality of life in children with epilepsy: A prospective cohort study

Authors: Nabavi Nouri, Maryam, Puka, Klajdi, Palmer, Katie, Speechley, Kathy N.

Source: Seizure. 99:120-126

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100195227689.0x000001&indx=1&recIds=ETOCvdc_100195227689.0x000001

The prevalence and impact of adolescent hospitalization to adult psychiatric units

Authors: McRae, Samantha, Edwards, Jordan, Speechley, Kathy N., Sukhera, Javeed, Zou, Guangyong, Anderson, Kelly K.

Source: Early intervention in psychiatry. 16(7):752-759

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100157145363.0x000001&indx=1&recIds=ETOCvdc_100157145363.0x000001

Psychometric properties of an Arabic translation of the quality of life in childhood epilepsy questionnaire (QOLCE-55)

Authors: Khalil, Mona, Almestkawy, Samar, Omar, Tarek E.I., Ferro, Mark A., Speechley, Kathy N.

Source: In Epilepsy & Behavior April 2022 129

Towards the assessment of quality of life in patients with disorders of consciousness

Authors: Tung, Jasmine, Speechley, Kathy N., Gofton, Teneille, Gonzalez-Lara, Laura E., Graham, Mackenzie, Naci, Lorina, Peterson, Andrew H., Owen, Adrian M., Weijer, Charles

Source: Quality of Life Research, 2020 May 01. 29(5), 1217-1227.

Access URL: https://www.jstor.org/stable/48733935

Convulsive status epilepticus in children recently diagnosed with epilepsy and long-term health-related quality of life

Authors: Puka, Klajdi ^*, Speechley, Kathy N., Ferro, Mark A.

Source: In Seizure: European Journal of Epilepsy August 2020 80:49-52

Validation of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55 and QOLCE-16) for use by parents of young adults with childhood-onset epilepsy

Authors: Puka, Klajdi, Goodwin, Shane W., Ferro, Mark A., Smith, Mary Lou, Widjaja, Elysa, Anderson, Kelly K., Speechley, Kathy N.

Source: In Epilepsy & Behavior March 2020 104 Part A

Estimating patient‐reported outcomes for glaucoma management: A cross‐sectional study

Authors: Uruthiramoorthy, Lavanya, Hutnik, Cindy M.L., Speechley, Kathy N., Malvankar‐Mehta, Monali S., Lizotte, Daniel J

Source: Journal of evidence-based medicine. 13(1):8-16

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100103109142.0x000001&indx=1&recIds=ETOCvdc_100103109142.0x000001

Fatigue in young people with Duchenne muscular dystrophy

Authors: El‐Aloul, Basmah, Speechley, Kathy N, Wei, Yi, Wilk, Piotr, Campbell, Craig

Source: Developmental medicine & child neurology. 62(2):245-251

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100099758626.0x000001&indx=1&recIds=ETOCvdc_100099758626.0x000001

Trajectories of quality of life 10 years following a diagnosis of epilepsy in childhood

Authors: Puka, Klajdi, Ferro, Mark A., Camfield, Carol S., Levin, Simon D., Smith, Mary Lou, Wiebe, Samuel, Zou, Guangyong, Anderson, Kelly K., Speechley, Kathy N.

Source: Epilepsia. 61(7):1453-1463

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100107498668.0x000001&indx=1&recIds=ETOCvdc_100107498668.0x000001

Self‐reported quality of life and degree of youth‐parent agreement: A long‐term follow‐up of childhood‐onset epilepsy

Authors: Puka, Klajdi, Ferro, Mark A., Camfield, Carol S., Levin, Simon D., Smith, Mary Lou, Wiebe, Samuel, Zou, Guangyong, Speechley, Kathy N.

Source: Epilepsia. 61(10):2254-2264

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100110016979.0x000001&indx=1&recIds=ETOCvdc_100110016979.0x000001

Social outcomes for adults with a history of childhood-onset epilepsy: A systematic review and meta-analysis

Authors: Puka, Klajdi, Tavares, Tamara P., Speechley, Kathy N.

Source: In Epilepsy & Behavior March 2019 92:297-305

Association of outdoor air and noise pollution with unprovoked seizures and new onset epilepsy: A systematic review and meta‐analysis.

Authors: Antaya, Tresah C., Espino‐Alvarado, Poul H., Oiamo, Tor, Wilk, Piotr, Speechley, Kathy N., Burneo, Jorge G.

Source: Epilepsia (Series 4); Jul2024, Vol. 65 Issue 7, p1847-1867, 21p

Subject Terms: EPILEPSY, NOISE pollution, AIR pollution, SEIZURES (Medicine), SCIENTIFIC literature, FIXED effects model

Measurement equivalence of the short-form Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-16)

Authors: Goodwin, Shane W., Ferro, Mark A., Speechley, Kathy N.

Source: In Epilepsy & Behavior January 2019 90:142-147

Health-related quality of life in mothers of children with epilepsy: 10 years after diagnosis

Authors: Puka, Klajdi, Ferro, Mark A., Anderson, Kelly K., Speechley, Kathy N.

Source: Quality of Life Research, 2018 Apr 01. 27(4), 969-977.

Access URL: https://www.jstor.org/stable/44856422

A systematic review of quality of life in parents of children with epilepsy

Authors: Puka, Klajdi, Tavares, Tamara P., Anderson, Kelly K., Ferro, Mark A., Speechley, Kathy N.

Source: In Epilepsy & Behavior May 2018 82:38-45

Web-Based Tools for Educating Caregivers About Childhood Fever

Authors: Hart, Lara, Nedadur, Rashmi, Reardon, Jaime, Sirizzotti, Natalie, Poonai, Caroline, Speechley, Kathy N., Loftus, Jay, Miller, Michael, Salvadori, Marina, Spadafora, Amanda, Poonai, Naveen

Source: Pediatric emergency care. 35(5):353-358

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100080984473.0x000001&indx=1&recIds=ETOCvdc_100080984473.0x000001

Response shift in parents' assessment of health-related quality of life of children with new-onset epilepsy

Authors: Sajobi, Tolulope T., Speechley, Kathy N., Liang, Zhiying, Goodwin, Shane W., Ferro, Mark A., Wiebe, Samuel

Source: In Epilepsy & Behavior October 2017 75:97-101

Multivariate trajectories across multiple domains of health-related quality of life in children with new-onset epilepsy

Authors: Sajobi, Tolulope T., Wang, Meng, Ferro, Mark A., Brobbey, Anita, Goodwin, Shane, Speechley, Kathy N., Wiebe, Samuel

Source: In Epilepsy & Behavior October 2017 75:72-78