Impact of comorbidities on people with and without cancer early in the COVID‐19 pandemic: An observational study

Authors: Schwartz, Carolyn E., Rapkin, Bruce D.

Source: Cancer medicine. 12(14):15601-15611

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100190078473.0x000001&indx=1&recIds=ETOCvdc_100190078473.0x000001

Response‐shift effects in childhood cancer survivors: A prospective study

Authors: Huang, I‐Chan, Sim, Jin‐ah, Srivastava, DeoKumar, Krull, Kevin R., Ness, Kirsten K., Robison, Leslie L., Baker, Justin N., Hudson, Melissa M., Schwartz, Carolyn E.

Source: Psycho-oncology. 32(7):1085-1095

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100186869515.0x000001&indx=1&recIds=ETOCvdc_100186869515.0x000001

When better is the enemy of good: two cautionary tales of conceptual validity versus parsimony in clinical psychometric research.

Authors: Schwartz, Carolyn E.^1,2 (AUTHOR) carolyn.schwartz@deltaquest.org, Borowiec, Katrina^1,3 (AUTHOR), Rapkin, Bruce D.⁴ (AUTHOR)

Source: Quality of Life Research. Jun2024, Vol. 33 Issue 6, p1493-1500. 8p.

Individual differences in the long-term impact of the pandemic: moderators of COVID-related hardship, worry, and social support.

Authors: Schwartz, Carolyn E.^1,2 (AUTHOR) carolyn.schwartz@deltaquest.org, Borowiec, Katrina^1,3 (AUTHOR), Li, Yuelin⁴ (AUTHOR), Rapkin, Bruce D.⁵ (AUTHOR)

Source: Quality of Life Research. Apr2024, Vol. 33 Issue 4, p927-939. 13p.

Subject Terms: *SOCIAL support, *INDIVIDUAL differences, *ITEM response theory, *RANDOM effects model, *PANDEMICS

Company/Entity: NATIONAL Institutes of Health (U.S.)

What should progress in response-shift research look like?

Authors: Rapkin, Bruce D., Schwartz, Carolyn E.

Source: Quality of Life Research, 2021 Dec 01. 30(12), 3359-3361.

Access URL: https://www.jstor.org/stable/48694382

Feasibility and acceptability of a CF‐specific cognitive‐behavioral preventive intervention for adults integrated into team‐based care

Authors: Friedman, Deborah, Smith, Beth A., Bruce, Amanda, Schwartz, Carolyn E., Lee, Hang, Pinsky, Hanna, Gootkind, Elizabeth, Hardcastle, Margot, Shea, Nicole, Roach, Christine M., Miller, Caitlin, Polineni, Deepika, Salathe, Matthias, Quittner, Alexandra L., Georgiopoulos, Anna M.

Source: Pediatric pulmonology. 57(11):2781-2790

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100163011811.0x000001&indx=1&recIds=ETOCvdc_100163011811.0x000001

The impact of COVID-19 on people with multiple sclerosis: A comparison of Italian and United States cohorts

Authors: Schwartz, Carolyn E., Rapkin, Bruce D., Bonavita, Simona, Bossa, Michela, Buscarinu, Maria Chiara, Grasso, Maria Grazia, Luca, Maria, Nozzolillo, Agostino, Nocentini, Ugo

Source: In Multiple Sclerosis and Related Disorders July 2022 63

Uncovering the story within the story: a scoping review of response shift in qualitative research.

Authors: Schwartz, Carolyn E.^1,2 (AUTHOR) carolyn.schwartz@deltaquest.org, Huang, I-Chan³ (AUTHOR), Rohde, Gudrun^4,5 (AUTHOR), Skolasky, Richard L.⁶ (AUTHOR)

Source: Quality of Life Research. Jan2025, Vol. 34 Issue 1, p131-150. 20p.

Subject Terms: *QUALITATIVE research, *MEDICAL literature, *MEASUREMENT errors, *MEDICAL personnel, *QUANTITATIVE research

Response-shift effects in neuromyelitis optica spectrum disorder : a secondary analysis of clinical trial data

Authors: Schwartz, Carolyn E., Stark, Roland B., Stucky, Brian D.

Source: Quality of Life Research, 2021 May 01. 30(5), 1267-1282.

Access URL: https://www.jstor.org/stable/48750914

Response-shift effects in neuromyelitis optica spectrum disorder : estimating response-shift-adjusted scores using equating

Authors: Schwartz, Carolyn E., Stark, Roland B., Stucky, Brian D., Li, Yuelin, Rapkin, Bruce D.

Source: Quality of Life Research, 2021 May 01. 30(5), 1283-1292.

Access URL: https://www.jstor.org/stable/48750915

Distilling the essence of appraisal: a mixed methods study of people with multiple sclerosis

Authors: Rapkin, Bruce D., Schwartz, Carolyn E.

Source: Quality of Life Research, 2016 Apr 01. 25(4), 793-810.

Access URL: https://www.jstor.org/stable/44852855

“Looking Under the Hood” of Anchor-Based Assessment of Clinically Important Change: A Machine Learning Approach

Authors: Schwartz, Carolyn E., Stark, Roland B., Michael, Wesley, Rapkin, Bruce D., Finkelstein, Joel A.

Source: In Value in Health July 2021 24(7):1009-1015

Expanding the purview of wellness indicators: validating a new measure that includes attitudes, behaviors, and perspectives

Authors: Schwartz, Carolyn E., Stucky, Brian D., Stark, Roland B.

Source: Health psychology and behavioral medicine. 9(1):1031-1052

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100139059585.0x000001&indx=1&recIds=ETOCvdc_100139059585.0x000001

Patient factors that matter in predicting spine surgery outcomes: a machine learning approach

Authors: Finkelstein, Joel A., Stark, Roland B., Lee, James, Schwartz, Carolyn E.

Source: Journal of neurosurgery.Spine. 35(1):127-136

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCRN626860277&indx=1&recIds=ETOCRN626860277

The faces of Long-COVID: interplay of symptom burden with socioeconomic, behavioral and healthcare factors.

Authors: Schwartz, Carolyn E.^1,2 (AUTHOR) carolyn.schwartz@deltaquest.org, Borowiec, Katrina^1,3 (AUTHOR), Rapkin, Bruce D.⁴ (AUTHOR)

Source: Quality of Life Research. Oct2024, Vol. 33 Issue 10, p2855-2867. 13p.

Subject Terms: *SYMPTOM burden, *POST-acute COVID-19 syndrome, *SOCIAL determinants of health, *SOCIAL support, *QUALITY of life

Advancing quality-of-life research by deepening our understanding of response shift : a unifying theory of appraisal

Authors: Rapkin, Bruce D., Schwartz, Carolyn E.

Source: Quality of Life Research, 2019 Oct 01. 28(10), 2623-2630.

Access URL: https://www.jstor.org/stable/48705269

Longitudinal validity of the hemophilia caregiver impact measure

Authors: Schwartz, Carolyn E., Zhang, Jie, Su, Jun

Source: Quality of Life Research, 2019 Jul 01. 28(7), 1979-1987.

Access URL: https://www.jstor.org/stable/48705086

Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study.

Authors: Schwartz, Carolyn E.^1,2 (AUTHOR) carolyn.schwartz@deltaquest.org, Jackson, Skyler³ (AUTHOR), Valentine, James⁴ (AUTHOR), Miller, Natalie⁵ (AUTHOR), Lowes, Linda⁵ (AUTHOR), Edwards, Danielle⁶ (AUTHOR), McSherry, Christine⁶ (AUTHOR), Savva, Dimitrios⁷ (AUTHOR), Lowe, Alex⁶ (AUTHOR), McSherry, Jordan⁶ (AUTHOR), Engel, Patti³ (AUTHOR)

Source: Orphanet Journal of Rare Diseases. 4/20/2023, Vol. 18 Issue 1, p1-12. 12p.

Subject Terms: *DUCHENNE muscular dystrophy, *CAREGIVER attitudes, *FACIOSCAPULOHUMERAL muscular dystrophy, *PATIENTS' attitudes

Reconsidering the minimally important difference: evidence of instability over time and across groups

Authors: Schwartz, Carolyn E., Zhang, Jie, Rapkin, Bruce D., Finkelstein, Joel A.

Source: In The Spine Journal April 2019 19(4):726-734

Positive emotions despite substantial burden: The alchemy of haemophilia caregiving

Authors: Schwartz, Carolyn E., Stark, Roland B., Stucky, Brian D., Michael, Wesley, Rapkin, Bruce D.

Source: Haemophilia. 26(1):86-96

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100117553678.0x000001&indx=1&recIds=ETOCvdc_100117553678.0x000001