Performance of the EULAR Systemic sclerosis Impact of Disease (ScleroID) questionnaire as a patient-reported outcome measure for patients with diffuse systemic sclerosis

Authors: Ulf Mueller-Ladner, Marco Matucci-Cerinic, Oliver Distler, Cosimo Bruni, Otylia Kowal-Bielecka, Kim Fligelstone, Roger Hesselstrand, László Czirják, Carina Mihai, Gunnel Sandqvist, Rucsandra Dobrota, Patricia E Carreira, Ana Maria Gherghe, Tore Kvien, Turid Heiberg, Alexandru Garaiman, Mike Oliver Becker, Annelise Roennow, Ann Tyrrell Kennedy, Chris Denton

Source: RMD Open, Vol 10, Iss 4 (2024)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://rmdopen.bmj.com/content/10/4/e004653.full; https://doaj.org/toc/2056-5933

Access URL: https://doaj.org/article/7b4b4609e7d54da5a3ff297304e83bed

Effectiveness and safety of tocilizumab in patients with systemic sclerosis: a propensity score matched controlled observational study of the EUSTAR cohort

Authors: Pavel I Novikov, Thierry Martin, Eric Hachulla, Vanessa Smith, Maurizio Cutolo, Yannick Allanore, Camillo Ribi, Oliver Distler, Britta Maurer, Paolo Airo, Cosimo Bruni, Veronica Codullo, Luc Mouthon, Marie Vanthuyne, Elisabetta Zanatta, Simona Rednic, Ulf Müller-Ladner, Nemanja Damjanov, Anna-Maria Hoffmann-Vold, Michele Iudici, Suzana Jordan, Jean Sibilia, Mengtao Li, Roger Hesselstrand, Elise Siegert, László Czirják, Armando Gabrielli, Dominique Farge Bancel, Yolanda Braun-Moscovici, Nicolas Hunzelmann, Raffaele Pellerito, Jörg Henes, Bojana Stamenkovic, Carlo Francesco Selmi, Mohammed Tikly, Merete Engelhart, Valeria Riccieri, Cord Sunderkötter, Francesca Ingegnoli, Francesco Paolo Cantatore, Susanne Ullman, Maria Rosa Pozzi, Piotr Wiland, Juan Jose Alegre-Sancho, Brigitte Krummel-Lorenz, Ellen De Langhe, Branimir Anic, Carolina de Souza Müller, Simon Stebbings, Alessandra Vacca, Lisa Stamp, Kamal Solanki, Douglas Veale, Esthela Loyo, Edoardo Rosato, Cristina-Mihaela Tanaseanu, Rosario Foti, Codrina Ancuta, Ira Litinsky, Lesley Ann Saketkoo, Eduardo Kerzberg, Tim Schmeiser, Piercarlo Sarzi Puttini, Fabio Cacciapaglia, Marie-Elise Truchetet, Muriel Elhai, Juan José Alegre Sancho, Ivan Castellví, Serena Vettori, Vivien M Hsu, Masataka Kuwana, Sule Yavuz, Radim Becvar, Patricia E Carreira, Eugene J Kucharz, Bernard Coleiro, Paul Hasler, Carlos de la Puente, Svetlana Agachi, Thierry Zenone, Francesco Del Galdo, Doron Rimar, Alessandro Giollo, Lidia P Ananieva, Ina Kötter, Mislav Radic, Dominik Majewski, Kristine Herrmann, Goda Seskute, Lorinda S Chung, Laura Belloli, Ulrike Held, FJ López-Longo, Joerg H W Distler, Maria João Salvador, Simon Kuster, Klaus Steigmiller, Ana-Maria Gheorghiu, Katarzyna Romanowska-Prochnicka, Yuichiro Shirai, Chris Denton, Ruxandra M Ionescu, Stefan Heitmann Vera Ortiz-Santamaria, Walid Ahmed Abdel Atty Mohamed, Paloma Garcíadela Peña Lefebvre, Vera Bernardino

Source: RMD Open, Vol 8, Iss 2 (2022)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://rmdopen.bmj.com/content/8/2/e002477.full; https://doaj.org/toc/2056-5933

Access URL: https://doaj.org/article/b661f25cc59f441ea391bc0cb68007ab

Does regression of skin thickening predict improvement of internal organ involvement and survival in patients with diffuse cutaneous systemic sclerosis? A EUSTAR analysis

Authors: Anja Wyss, Suzana Jordan, Nicole Graf, Patricia E. Carreira, Jörg Distler, Marco Matucci Cerinic, Elise Siegert, Jörg Henes, Elisabetta Zanatta, Valeria Riccieri, Marie-Elise Truchetet, Fahrettin Oksel, Mengtao Li, Eugene J. Kucharz, Kilian Eyerich, Francesco Del Galdo, Madelon C. Vonk, Anna-Maria Hoffman Vold, Armando Gabrielli, Oliver Distler, EUSTAR collaborators

Source: Arthritis Research & Therapy, Vol 26, Iss 1, Pp 1-10 (2024)

Subject Terms: Scleroderma and related disorders, Skin, Observation studies, Rare diseases, Respiratory, Diseases of the musculoskeletal system, RC925-935

File Description: electronic resource

Relation: https://doaj.org/toc/1478-6362

Access URL: https://doaj.org/article/6ecdc151f90c4492a981c9fd58d1e522

Incidences and Risk Factors of Organ Manifestations in the Early Course of Systemic Sclerosis: A Longitudinal EUSTAR Study.

Authors: Veronika K Jaeger, Elina G Wirz, Yannick Allanore, Philipp Rossbach, Gabriela Riemekasten, Eric Hachulla, Oliver Distler, Paolo Airò, Patricia E Carreira, Alexandra Balbir Gurman, Mohammed Tikly, Serena Vettori, Nemanja Damjanov, Ulf Müller-Ladner, Jörg H W Distler, Mangtao Li, Ulrich A Walker, EUSTAR co-authors

Source: PLoS ONE, Vol 11, Iss 10, p e0163894 (2016)

Subject Terms: Medicine, Science

File Description: electronic resource

Relation: http://europepmc.org/articles/PMC5051961?pdf=render; https://doaj.org/toc/1932-6203

Access URL: https://doaj.org/article/5850f54b0e15418b8f8691f2e0320def

The systemic lupus erythematosus IRF5 risk haplotype is associated with systemic sclerosis.

Authors: F David Carmona, Jose-Ezequiel Martin, Lorenzo Beretta, Carmen P Simeón, Patricia E Carreira, José Luis Callejas, Mónica Fernández-Castro, Luis Sáez-Comet, Emma Beltrán, María Teresa Camps, María Victoria Egurbide, Spanish Scleroderma Group, Paolo Airó, Raffaella Scorza, Claudio Lunardi, Nicolas Hunzelmann, Gabriela Riemekasten, Torsten Witte, Alexander Kreuter, Jörg H W Distler, Rajan Madhok, Paul Shiels, Jacob M van Laar, Carmen Fonseca, Christopher Denton, Ariane Herrick, Jane Worthington, Annemie J Schuerwegh, Madelon C Vonk, Alexandre E Voskuyl, Timothy R D J Radstake, Javier Martín

Source: PLoS ONE, Vol 8, Iss 1, p e54419 (2013)

Subject Terms: Medicine, Science

File Description: electronic resource

Relation: http://europepmc.org/articles/PMC3553151?pdf=render; https://doaj.org/toc/1932-6203

Access URL: https://doaj.org/article/afa8ae7b7ebd4fc38220c9d307612f84

The burden of systemic sclerosis in Switzerland – the Swiss systemic sclerosis EUSTAR cohort

Authors: Jasmin Hernández, Suzana Jordan, Rucsandra Dobrota, Michele Iudici, Paul Hasler, Camillo Ribi, Peter Villiger, Panayiotis Vlachoyiannopoulos, Alessandra Vacca, Ludmila Garzanova, Alessandro Giollo, Edoardo Rosato, Ina Kötter, Patricia E. Carreira, Andrea Doria, Jörg Henes, Ulf Müller-Ladner, Vanessa Smith, Jörg Distler, Armando Gabrielli, Anna-Maria Hoffman-Vold, Ulrich Walker, Oliver Distler, the EUSTAR collaborators

Source: Swiss Medical Weekly, Vol 151, Iss 2728 (2021)

Subject Terms: systemic sclerosis, Switzerland, Europe, Medicine

File Description: electronic resource

Relation: https://www.smw.ch/index.php/smw/article/view/3031; https://doaj.org/toc/1424-3997

Access URL: https://doaj.org/article/83c8ebadc31a40699d8154f6adff4d83

ÍNDICE DE AUTORES

Authors: ZAMORANO, M. ÁNGELES AGUIRRE, ALARCÓN, GRACIELA S., SANCHO, JUAN JOSÉ ALEGRE, LÓPEZ, MERCEDES ALPERI, SÁNCHEZ, JOSÉ LUIS ANDREU, GOROSPE, JUAN I. ARÓSTEGUI, LUCÍA, VICENTE BARRIO, BELLANDO-RANDONE, SILVIA, MARSOL, MARÍA ISABEL BIELSA, ALONSO, RICARDO BLANCO, CÁLIZ, RAFAEL CÁLIZ, ALÉN, JAIME CALVO, ABELLÓ, JORDI CARBONELL, DELGADO, PATRICIA E. CARREIRA, PÉREZ, LUIS CARREÑO, SEGURA, RICARD CERVERA, IBÁÑEZ, TATIANA COBO, DOMÍNGUEZ, MARÍA DEL PILAR CRUZ, LOZANO, MARÍA JOSÉ CUADRADO, DELGADO-FRÍAS, ESMERALDA, DÍAZ-GONZÁLEZ, FEDERICO, CASTRO, MÓNICA FERNÁNDEZ, FERNÁNDEZ-NEBRO, ANTONIO, GONZÁLEZ, MARÍA MERCEDES FREIRE, IZQUIERDO, MARÍA GALINDO, GÁMIR, MARÍA LUZ GÁMIR, DE VICUÑA, ROSARIO GARCÍA, LLORENTE, JOSÉ FRANCISCO GARCÍA, PUERTA, JOSÉ ALFREDO GÓMEZ, VELA, M. CARMEN GONZÁLEZ, MANTECÓN, MIGUEL ÁNGEL GONZÁLEZ-GAY, GIL, JENARO GRAÑA, GUIDUCCI, SERENA, VIDAL, ANTONIO GUILABERT, GUTIÉRREZ, GERARDO GUTIÉRREZ, CRUZ, BLANCA ESTELA HERNÁNDEZ, SENDRA, ISABEL ILLA, QUEZADA, LUIS JAVIER JARA, JIMÉNEZ-ALONSO, JUAN, JOVER, JUAN ÁNGEL JOVER, JULIÀ, ANTONIO, JULIÁ-SERDÁ, GABRIEL, LONGO, FRANCISCO JAVIER LÓPEZ, DE LA FUENTE, JOSÉ LUIS MARENCO, FERNÁNDEZ-CID, CARLOS MARRAS, BARRIL, SARA MARSAL, MOLA, EMILIO MARTÍN, MARTÍNEZ-TABOADA, VÍCTOR M., MATUCCI-CERINIC, MARCO, DE MIGUEL MENDIETA, EUGENIO, CABALLERO, CONSUELO MODESTO, SÁEZ, INDALECIO MONTEAGUDO, MENDOZA, JUAN MULERO, FERNÁNDEZ, SANTIAGO MUÑOZ, GARCÍA, FRANCISCO JAVIER NARVÁEZ, BRUNO, SOLEDAD OJEDA, MARQUÉS, ALEJANDRO OLIVÉ, ORTIZ-SANTAMARÍA, VERA, SÁNCHEZ, TERESA OTÓN, COUR, ESPERANZA PATO, REIGOSA, JOSÉ MARÍA PEGO, VENEGAS, JOSÉ JAVIER PÉREZ, MURCIA, TRINITARIO PINA, PONS-ESTEL, BERNARDO A., PONS-ESTEL, GUILLERMO J., PÉREZ, JOSÉ MANUEL PORCEL, ALONSO, ELENA RIERA, LOZANO, BEATRIZ RODRÍGUEZ, IVORRA, JOSÉ A. ROMÁN, ROSADO, ZULEMA ROSALES, DE SALAZAR, JOSÉ CARLOS ROSAS GÓMEZ, DE LARRINOA, IÑIGO RÚA-FIGUEROA FERNÁNDEZ, GOTOR, JAVIER RUEDA, IRASTORZA, GUILLERMO RUIZ, SILVESTRE, ANTONIO SALAR, ATRIO, ANA I. SÁNCHEZ, SANZ, IÑAKI, FERNÁNDEZ, LUCÍA SILVA, AZNAR, CARMEN PILAR SIMEÓN, ANGULO, EDUARDO ÚCAR, UGARTE-GIL, MANUEL F., VALOR, LARA, CASASEMPERE, PALOMA VELA, BLANCO, JUAN IGNACIO VILLA

Source: In Manual SER de Diagnóstico y Tratamiento de las Enfermedades Reumáticas Autoinmunes Sistémicas 2015:V-VIII

Polymorphism of the interleukin‐1 receptor antagonist gene: A factor in susceptibility to rheumatoid arthritis in a Spanish population.

Authors: Patricia E. Carreira¹, Maria R. Gonzalez‐Crespo¹, Elena Ciruelo¹, Jose L. Pablos¹, Begoña Santiago¹, Agustin Gomez‐Camara¹, Juan J. Gomez‐Reino²

Source: Arthritis & Rheumatism. Oct2005, Vol. 52 Issue 10, p3015-3019. 0p.

Subject Terms: *INTERLEUKIN-1, *GENETIC polymorphisms, *DISEASE susceptibility, *ETIOLOGY of diseases, *RHEUMATOID arthritis, *AUTOIMMUNE diseases, *POLYMERASE chain reaction, *CONFIDENCE intervals, *PATIENTS

Retrotransposon instability dominates the acquired mutation landscape of mouse induced pluripotent stem cells

Authors: Patricia Gerdes, Sue Mei Lim, Adam D. Ewing, Michael R. Larcombe, Dorothy Chan, Francisco J. Sanchez-Luque, Lucinda Walker, Alexander L. Carleton, Cini James, Anja S. Knaupp, Patricia E. Carreira, Christian M. Nefzger, Ryan Lister, Sandra R. Richardson, Jose M. Polo, Geoffrey J. Faulkner

Source: Nature Communications, Vol 13, Iss 1, Pp 1-18 (2022)

Subject Terms: Science

File Description: electronic resource

Relation: https://doaj.org/toc/2041-1723

Access URL: https://doaj.org/article/b8c17138d7be4d378e40d7894f019bb7

TBP and SNAP50 transcription factors bind specifically to the Pr77 promoter sequence from trypanosomatid non-LTR retrotransposons

Authors: Francisco Macías, Raquel Afonso-Lehmann, Patricia E. Carreira, M. Carmen Thomas

Source: Parasites & Vectors, Vol 14, Iss 1, Pp 1-20 (2021)

Subject Terms: Trypanosomatid, Non-LTR retrotransposon, L1Tc, NARTc, Transcription, Promoter, Infectious and parasitic diseases, RC109-216

File Description: electronic resource

Relation: https://doaj.org/toc/1756-3305

Access URL: https://doaj.org/article/85d9163b2d08409a9650180b35cee236

Health Assessment Questionnaire-Disability Index (HAQ-DI) use in modelling disease progression in diffuse cutaneous systemic sclerosis: an analysis from the EUSTAR database

Authors: Yannick Allanore, Sylvie Bozzi, Augustin Terlinden, Doerte Huscher, Caroline Amand, Christina Soubrane, Elise Siegert, László Czirják, Patricia E. Carreira, Eric Hachulla, Elisabetta Zanatta, Mengtao Li, Paolo Airò, Fabian A. Mendoza, Edoardo Rosato, Oliver Distler, on behalf of the EUSTAR Collaborators

Source: Arthritis Research & Therapy, Vol 22, Iss 1, Pp 1-11 (2020)

Subject Terms: EUSTAR registry, Diffuse cutaneous systemic sclerosis, Health Assessment Questionnaire-Disability Index, HAQ-DI score, Diseases of the musculoskeletal system, RC925-935

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s13075-020-02329-2; https://doaj.org/toc/1478-6362

Access URL: https://doaj.org/article/b0740c2493be40d498a6dc3efcc2210a

L1 Retrotransposon Heterogeneity in Ovarian Tumor Cell Evolution

Authors: Thu H.M. Nguyen, Patricia E. Carreira, Francisco J. Sanchez-Luque, Stephanie N. Schauer, Allister C. Fagg, Sandra R. Richardson, Claire M. Davies, J. Samuel Jesuadian, Marie-Jeanne H.C. Kempen, Robin-Lee Troskie, Cini James, Elizabeth A. Beaven, Tristan P. Wallis, Jermaine I.G. Coward, Naven P. Chetty, Alexander J. Crandon, Deon J. Venter, Jane E. Armes, Lewis C. Perrin, John D. Hooper, Adam D. Ewing, Kyle R. Upton, Geoffrey J. Faulkner

Source: Cell Reports, Vol 23, Iss 13, Pp 3730-3740 (2018)

Subject Terms: Biology (General), QH301-705.5

File Description: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2211124718308714; https://doaj.org/toc/2211-1247

Access URL: https://doaj.org/article/02b2c6ba831b4bec8988f6149861dbe1