The Development and Content Validation of the Sjögren’s Related Quality of Life Instrument (SRQoL)

Authors: Jessica Marvel, Elizabeth Gargon, Chloe Howse, Aishwarya Chohan, Megan Mayhew, Gayle Kenney, Linda Stone, Benjamin A. Fisher, Monia Steenackers, Nicola Williamson, Chiara Perella, Pushpendra Goswami

Source: Rheumatology and Therapy, Vol 11, Iss 6, Pp 1591-1609 (2024)

Subject Terms: Content validity, Health-related quality of life (HRQoL), Instrument development, Patient-reported outcome (PRO), Qualitative interviews, Sjögren’s, Diseases of the musculoskeletal system, RC925-935

File Description: electronic resource

Relation: https://doaj.org/toc/2198-6576; https://doaj.org/toc/2198-6584

Access URL: https://doaj.org/article/703596206209439d965ee71a3b833df3

Qualitative interviews of patients with COPD and muscle weakness enrolled in a clinical trial evaluating a new anabolic treatment: patient perspectives of disease experience, trial participation and outcome assessments

Authors: Maggie Tabberer, Nicola Williamson, Sophi Tatlock, Adam Gater, Rebecca Grimes, Chika Akinseye, David Neil, Aoife Mahon-Smith, Linda Nelsen

Source: Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-14 (2024)

Subject Terms: Chronic obstructive pulmonary disease, Muscle weakness, Qualitative interview, Anabolic treatment, Trial participation, Patient experience, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/2509-8020

Access URL: https://doaj.org/article/c9b41cbf936b4a06a8b85fdcffd752d7

Development and validation of a quality of life and treatment satisfaction measure in canine osteoarthritis

Authors: Edwina Gildea, Emma Scales-Theobald, Jill Thompson, Alasdair Cook, Katie Forde, George Skingley, Sophie Lawrie, Nicola Williamson, Charlotte Panter

Source: Frontiers in Veterinary Science, Vol 11 (2024)

Subject Terms: canine, chronic pain, osteoarthritis, quality of life, owner, treatment satisfaction, Veterinary medicine, SF600-1100

File Description: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fvets.2024.1377019/full; https://doaj.org/toc/2297-1769

Access URL: https://doaj.org/article/10883d3b5a654052b002e5ad5f089dc3

Qualitative exploration of the visual function impairments and impacts on vision-dependent activities of daily living in Retinitis Pigmentosa and Leber Congenital Amaurosis: content validation of the ViSIO-PRO and ViSIO-ObsRO measures

Authors: Christine Kay, Isabelle Audo, Christel Naujoks, Claudio Spera, M. Dominik Fischer, Jane Green, Todd Durham, Nicola Williamson, Helena Bradley, Melissa Barclay, Joel Sims, Judit Banhazi, Francesco Patalano

Source: Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-12 (2023)

Subject Terms: Retinitis Pigmentosa, Leber Congenital Amaurosis, Visual function symptoms, Health-related quality of life, Observer-reported outcome, Patient-reported outcome, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/2509-8020

Access URL: https://doaj.org/article/0447fb61b9ba40a29704261a29e65ea4

Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO

Authors: Isabelle Audo, Francesco Patalano, Christel Naujoks, Claudio Spera, M. Dominik Fischer, Jane Green, Christine Kay, Todd Durham, Nicola Williamson, Helena Bradley, Melissa Barclay, Kieran Boparai, Judit Banhazi

Source: Ophthalmology and Therapy, Vol 12, Iss 4, Pp 2069-2085 (2023)

Subject Terms: Clinical outcome assessment, Health-related quality of life, Inherited retinal degenerations, Leber congenital amaurosis, Observer-reported outcome, Patient-reported outcome, Ophthalmology, RE1-994

File Description: electronic resource

Relation: https://doaj.org/toc/2193-8245; https://doaj.org/toc/2193-6528

Access URL: https://doaj.org/article/b7961033a6cd4deeb8df0cd4f0d46538

Psychometric Validation of the ViSIO-PRO and ViSIO-ObsRO in Retinitis Pigmentosa and Leber Congenital Amaurosis

Authors: M. Dominik Fischer, Francesco Patalano, Christel Naujoks, Judit Banhazi, Christine Bouchet, Paul O’Brien, Christine Kay, Jane Green, Todd Durham, Helena Bradley, Nicola Williamson, Melissa Barclay, Joel Sims, Isabelle Audo

Source: Ophthalmology and Therapy, Vol 12, Iss 2, Pp 1359-1386 (2023)

Subject Terms: Clinical outcome assessment, Inherited retinal disease, Leber congenital amaurosis, Observer-reported outcome, Patient-reported outcome, Psychometrics, Ophthalmology, RE1-994

File Description: electronic resource

Relation: https://doaj.org/toc/2193-8245; https://doaj.org/toc/2193-6528

Access URL: https://doaj.org/article/7c3f230672a3494a88761b7cda32cbbc

Generation of evidence supporting the content validity of SF-36, FACIT-F, and LupusQoL, and novel patient-reported symptom items for use in patients with systemic lupus erythematosus (SLE) and SLE with lupus nephritis (LN)

Authors: Vibeke Strand, Anna Roberts, Zahi Touma, Amy Ward, Pamela Berry, Rebecca Williams-Hall, Nicola Williamson, Melissa Barclay, Adam Gater, Chloe Tolley, Helena Bradley, Elizabeth Hsia, Qing Zuraw, Patricia DeLong

Source: Lupus Science and Medicine, Vol 9, Iss 1 (2022)

Subject Terms: Immunologic diseases. Allergy, RC581-607

File Description: electronic resource

Relation: https://lupus.bmj.com/content/9/1/e000712.full; https://doaj.org/toc/2053-8790

Access URL: https://doaj.org/article/33bdf04cbb65401e8d8256ef52de699a

Drivers of Bornean Orangutan Distribution across a Multiple-Use Tropical Landscape

Authors: Sol Milne, Julien G. A. Martin, Glen Reynolds, Charles S. Vairappan, Eleanor M. Slade, Jedediah F. Brodie, Serge A. Wich, Nicola Williamson, David F. R. P. Burslem

Source: Remote Sensing, Vol 13, Iss 3, p 458 (2021)

Subject Terms: aboveground carbon, aerial survey, drone, forest disturbance, ground-transect, land use, Science

File Description: electronic resource

Relation: https://www.mdpi.com/2072-4292/13/3/458; https://doaj.org/toc/2072-4292

Access URL: https://doaj.org/article/d845ae8f7f5a43c2b5fd0310f28634ab

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