Implementing a streamlined data access governance process for the release of routinely collected electronic health record data for research

Authors: Emily Parker, Naude Kim, Tanya Ravipati, Richard Beare, Lee-Anne Clavarino, Velandai Srikanth, Nadine Andrew

Source: International Journal of Population Data Science, Vol 9, Iss 5 (2024)

Subject Terms: Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/2809; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/602ec36fad094e7cb3d294228d25f488

Using a multi-stakeholder co-design process to develop a health service organisation-wide patient reported outcome measure collection system.

Authors: Naude, Kim^1,2 (AUTHOR) kim.naude@monash.edu, Andrew, Nadine E.^1,2,3 (AUTHOR), Srikanth, Velandai^1,2,3 (AUTHOR), Parker, Emily^1,2 (AUTHOR), Marsh, Lucy^1,2 (AUTHOR), Beare, Richard^1,2,3,4 (AUTHOR), McNaney, Roisin⁵ (AUTHOR), Snowdon, David A.^1,2,3 (AUTHOR)

Source: Quality of Life Research. Mar2024, Vol. 33 Issue 3, p619-636. 18p.

Subject Terms: *PATIENT reported outcome measures, *MEDICAL care, *PARTICIPATORY design, *CONSUMER preferences

Healthcare consumer acceptability of routine use of the EQ-5D-5L in clinical care: a cross-sectional survey.

Authors: Snowdon, David A., Collyer, Taya A., Marsh, Lucy, Srikanth, Velandai, Beare, Richard, Baber, Stephanie, Naude, Kim, Andrew, Nadine E.

Source: Quality of Life Research; May2024, Vol. 33 Issue 5, p1307-1321, 15p

Subject Terms: PATIENT reported outcome measures, CLINICAL medicine, MEDICAL quality control, COMMUNITY health services, QUALITY of life

A landscape assessment of the use of patient reported outcome measures in research, quality improvement and clinical care across a healthcare organisation.

Authors: Snowdon, David A., Srikanth, Velandai, Beare, Richard, Marsh, Lucy, Parker, Emily, Naude, Kim, Andrew, Nadine E.

Source: BMC Health Services Research; 1/27/2023, Vol. 23 Issue 1, p1-14, 14p, 3 Diagrams, 3 Charts, 4 Graphs

Subject Terms: PATIENT reported outcome measures, LANDSCAPE assessment, CLINICAL medicine, MEDICAL personnel

Company/Entity: WORLD Health Organization