Improving Diverse and Equitable Involvement of Patients and Caregivers in Research in CKD: Report of a Better Evidence and Translation–Chronic Kidney Disease (BEAT-CKD) Workshop

Authors: Cazzolli, Rosanna, Sluiter, Amanda, Bateman, Samantha, Candler, Hayley, Cho, Yeoungjee, Cooper, Tess, Craig, Jonathan C., Dominello, Amanda, Duncanson, Emily, Guha, Chandana, Hawley, Carmel M., Hewawasam, Erandi, Hickey, Laura, Hill, Kathy, Howard, Kirsten, Howell, Martin, Huuskes, Brooke M., Irish, Georgina L., Jesudason, Shilpanjali, Johnson, David W., Kelly, Ayano, Leary, Diana, Manera, Karine, Mazis, Jasmin, McDonald, Stephen, McLennan, Helen, Muthuramalingam, Shyamsundar, Pummeroy, Margaret, Scholes-Robertson, Nicole, Teixeira-Pinto, Armando, Tunnicliffe, David J., van Zwieten, Anita, Viecelli, Andrea K., Wong, Germaine, Jaure, Allison

Source: In American Journal of Kidney Diseases October 2024 84(4):482-494

Patient Perspectives of Center-Specific Reporting in Kidney Failure Care: An Australian Qualitative Study

Authors: Duncanson, Emily, Davies, Christopher E., Muthuramalingam, Shyamsundar, Johns, Effie, McColm, Kate, Hempstalk, Matty, Tasevski, Zoran, Gray, Nicholas A., McDonald, Stephen P.

Source: In Kidney International Reports April 2024 9(4):843-852

Patient and Partner Perspectives of Pregnancy-Related Counseling and Information Needs in Women With Kidney Disease: An Australian National Survey

Authors: Hewawasam, Erandi, Stallard, Belinda, Orsillo, Alessandra, Boag, Jane, Green, Charmaine, Heffernan, Laura, Maistry, Carolina, Muthuramalingam, Shyamsundar, Tolic, Adela, Williamson, Amber, Jesudason, Shilpanjali

Source: In Kidney International Reports December 2023 8(12):2802-2813

Preferences in treating polyomavirus infection in kidney transplant recipients: A discrete choice experiment with patients, caregivers, and clinicians.

Authors: Chong, Chanel H., Wong, Germaine, Au, Eric H., Scholes‐Robertson, Nicole, Muthuramalingam, Shyamsundar, Roger, Simon D., Keung, Karen, Jaure, Allison, Teixeira‐Pinto, Armando, Howell, Martin

Source: Transplant Infectious Disease; Dec2024, Vol. 26 Issue 6, p1-9, 9p

Subject Terms: POLYOMAVIRUS diseases, MEDICAL personnel, KIDNEY transplantation, CAREGIVERS, TREATMENT effectiveness

Identifying strategies for disseminating research to patients with chronic kidney disease and caregivers: a workshop report

Authors: Sluite, Amanda, Hiyare, Amandi, Hughes, Anastasia, Viecelli, Andrea, van Zwieten, Anita, Cashmore, Brydee, Coghlan, Dale, Tunnicliffe, David J., Keuskamp, Dominic, Kholmurodova, Ferzua, Wong, Germaine, Mazis, Jasmin, Recabarren, Javier, Manera, Karine, Scholes-Robertson, Nicole, Amir, Noa, Velayudham, Pushparaj, Cazzolli, Rosanna, Cho, Yeoungjee, Yip, Adela, Kennard, Alice, Blackley, Allan, Jaure, Allison, Dominello, Amanda, Williamson, Amber, Luchterhand, Amy, Currey, Andrew, Rejuso, Angela, Kieu, Anh, Tien, Anh Tho, Conway, Annie, Teixeira-Pinto, Armando, Bill, Robson, Breonny, Hawley, Carmel, Guha, Chandana, Rojas-Canales, Darling, Johnson, David W., Palamuthusingam, Dharmenaan, Sabanayagam, Dharshana, Johns, Effie, Hewawasam, Erandi, Boroumand, Farzaneh, Lord, Felicity, Carlisle, Fiona, Tuthill, Fleur, Irish, Georgina, Radisic, Gorjana, Candler, Hayley, Shepherd, Heather, Pleass, Henry, Roberts, Ieyesha, Mewburn, Irene, Haklar, Isabelle, Colquhoun, Janelle, Kelly, Janet, Brown, Jill, Craig, Jonathan C., Roberts, Joy, Strudwick, Kathy, Nguyen, Kim, Torrisi, Luca, Reicher, Madeleine, Rapisardi, Madeleine, Howell, Martin, Fernandez, Melissa, Collins, Michael, Brown, Natalie, Boulter, Nicky, Li, Rachel, Le Leu, Richard, Rapana, Rick, Dale, Robert, Jahan, Sadia, Spence, Sally, Bateman, Samantha, Viswanathan, Seethalakshmi, Muthuramalingam, Shyamsundar, Kim, Siah, McDonald, Stephen, En ying chu, Verlencia, Sinka, Victoria, Diwan, Vishal, Hoy, Wendy, Wu, Rebecca ^{1, 2}, Kholmurodova, Feruza ⁷, Hawley, Carmel M. ^{4, 5, 6}, Jesudason, Shilpanjali ^{9, 10}, Silva, Javier Recabarren ^{1, 2}, Sluiter, Amanda ^{1, 2}, Viecelli, Andrea K. ^{4, 5, 6}

Source: In Kidney International January 2025

Behavioural activation for people in custody with depression: A protocol for a feasibility randomised controlled study.

Authors: Walsh, Sandra M., Muyambi, Kuda, Dennis, Shaun, Hutchinson, Steven, Turnbull, Tom, Tan, Kuan Liung, Dettwiller, Pascale, Bressington, Daniel, Gray, Richard, Howard, Lucy, Andrews, Joanne, Muthuramalingam, Shyamsundar, Versace, Vincent L., Jones, Martin F.

Source: PLoS ONE; 6/13/2024, Vol. 19 Issue 6, p1-16, 16p

Subject Terms: COGNITIVE therapy, MENTAL health personnel, PSYCHOTHERAPY, MEDICAL care, RANDOMIZED controlled trials, JUVENILE offenders

Geographic Terms: NEW Zealand

Company/Entity: UNIVERSITY of South Australia

Report of the Standardized Outcomes in Nephrology-transplant Consensus Workshop on Establishing a Core Outcome Measure for Infection in Kidney Transplant Recipients

Authors: Chan, Samuel, Cazzolli, Rosanna, Jaure, Allison, Johnson, David W., Hawley, Carmel M., Craig, Jonathan C., Sautenet, Benedicte, van Zwieten, Anita, Cao, Christopher, Dobrijevic, Ellen, Wilson, Greg, Scholes-Robertson, Nicole, Carter, Simon, Vastani, Tom, Cho, Yeoungjee, Blumberg, Emily, Brennan, Daniel C., Huuskes, Brooke M., Knoll, Greg, Kotton, Camille, Mamode, Nizam, Muller, Elmi, Phan Ha, Hai An, Tedesco-Silva, Helio, White, David M., Viecelli, Andrea K., Martin, Adam, Tong, Allison, Gonzalez, Andrea Matus, Viecelli, Andrea, Demaine, Andrew, Wang, Angela, Zwieten, Anita van, Demaine, Ann, Preston, Anthony, Sautenet, Benedicte, De Coninck, Brenda, Huuskes, Brooke, Kotton, Camille, Hawley, Carmel, Guha, Chandana, Wanner, Christoph, Gossett, Daniel, Johnson, David, Purdy, Deb, Tarumbwa, Dorcas, Dobrijevic, Ellen, Muller, Elmi, Diekmann, Fritz, Tyson, Gene, Wong, Germaine, Mundy, Gillian, Wilson, Greg, Tesdesco-Silva, Helio, Craig, Jonathan, Manera, Karine, Abbott, Kevin, Lentine, Krista, Marson, Lorna, Frurian, Lucrezia, Hilbrands, Luuk, Naesens, Maarten, Bellini, Maria Irene, Hempstalk, Matty, Isbel, Nicole, Scholes-Robertson, Nicole, Ferrari, Paolo, Rossignol, Patrick, Henman, Paul, Reese, Peter, Oberbauer, Rainer, Pecoits-Filho, Roberto, Cazzolli, Rosanna, Chan, Samuel, Muthuramalingam, Shyamsundar, Carter, Simon, Al-Jabary, Tamara, Harris, Tess, Vastani, Tom, Parapiboon, Watanyu, van Biesen, Wim, Cho, Yeoungjee

Source: Transplantation; March 2024, Vol. 108 Issue: 3 p588-592, 5p

Identifying strategies for disseminating research to patients with chronic kidney disease and caregivers: a workshop report

Authors: Hughes, Anastasia, Scholes-Robertson, Nicole, Coghlan, Dale, Wu, Rebecca, Amir, Noa, Candler, Hayley, Cashmore, Brydee, Cho, Yeoungjee, Craig, Jonathan C., Cazzolli, Rosanna, Kholmurodova, Feruza, Guha, Chandana, Hawley, Carmel M., Hiyare, Amandi, Howell, Martin, Jesudason, Shilpanjali, Johnson, David W., Keuskamp, Dominic, Manera, Karine, Mazis, Jasmin, McDonald, Stephen, Muthuramalingam, Shyamsundar, Silva, Javier Recabarren, Sluiter, Amanda, Teixeira-Pinto, Armando, Tunnicliffe, David J., van Zwieten, Anita, Velayudham, Pushparaj, Viecelli, Andrea K., Wong, Germaine, Jaure, Allison, Sluite, Amanda, Hiyare, Amandi, Hughes, Anastasia, Viecelli, Andrea, van Zwieten, Anita, Cashmore, Brydee, Coghlan, Dale, Tunnicliffe, David J., Keuskamp, Dominic, Kholmurodova, Ferzua, Wong, Germaine, Mazis, Jasmin, Recabarren, Javier, Manera, Karine, Scholes-Robertson, Nicole, Amir, Noa, Velayudham, Pushparaj, Cazzolli, Rosanna, Cho, Yeoungjee, Yip, Adela, Kennard, Alice, Blackley, Allan, Jaure, Allison, Dominello, Amanda, Williamson, Amber, Luchterhand, Amy, Currey, Andrew, Rejuso, Angela, Kieu, Anh, Tien, Anh Tho, Conway, Annie, Teixeira-Pinto, Armando, Bill, Robson, Breonny, Hawley, Carmel, Guha, Chandana, Coghlan, Dale, Rojas-Canales, Darling, Johnson, David W., Palamuthusingam, Dharmenaan, Sabanayagam, Dharshana, Johns, Effie, Hewawasam, Erandi, Boroumand, Farzaneh, Lord, Felicity, Carlisle, Fiona, Tuthill, Fleur, Irish, Georgina, Radisic, Gorjana, Candler, Hayley, Shepherd, Heather, Pleass, Henry, Roberts, Ieyesha, Mewburn, Irene, Haklar, Isabelle, Colquhoun, Janelle, Kelly, Janet, Brown, Jill, Craig, Jonathan C., Roberts, Joy, Strudwick, Kathy, Nguyen, Kim, Torrisi, Luca, Reicher, Madeleine, Rapisardi, Madeleine, Howell, Martin, Fernandez, Melissa, Collins, Michael, Brown, Natalie, Boulter, Nicky, Li, Rachel, Le Leu, Richard, Rapana, Rick, Dale, Robert, Jahan, Sadia, Spence, Sally, Bateman, Samantha, Viswanathan, Seethalakshmi, Muthuramalingam, Shyamsundar, Kim, Siah, McDonald, Stephen, En ying chu, Verlencia, Sinka, Victoria, Diwan, Vishal, Hoy, Wendy

Source: Kidney International; 20250101, Issue: Preprints

Moving beyond tokenism: Past, present and the future of consumer engagement in kidney disease research.

Authors: Muthuramalingam, Shyamsundar

Source: Renal Society of Australasia Journal; Nov2022, Vol. 18 Issue 3, p73-75, 3p

Subject Terms: FAMILIES & psychology, OCCUPATIONAL roles, CAREGIVER attitudes, PATIENT participation, NURSING, RESEARCH evaluation, HUMAN research subjects, SERIAL publications, PRIORITY (Philosophy), PATIENT selection, KIDNEY diseases, EXPERIENCE, NEPHROLOGY, PATIENTS' attitudes, FAMILY attitudes, NURSES, PSYCHOLOGY of caregivers, RESEARCH personnel, MEDICAL research

Geographic Terms: AUSTRALIA

Principles and strategies for involving patients in research in chronic kidney disease: report from national workshops.

Authors: Gutman, Talia, Tong, Allison, Howell, Martin, Dansie, Kathryn, Hawley, Carmel M, Craig, Jonathan C, Jesudason, Shilpanjali, Chapman, Jeremy R, Johnson, David W, Murphy, Lisa, Reidlinger, Donna, Crowe, Sally, Duncanson, Emily, Muthuramalingam, Shyamsundar, Scholes-Robertson, Nicole, Williamson, Amber, McDonald, Stephen

Source: Nephrology Dialysis Transplantation; Sep2020, Vol. 35 Issue 9, p1585-1594, 10p

Subject Terms: CHRONIC kidney failure, REPORTING of diseases, CONSUMER expertise

Empowering consumers as equal partners at scientific conferences in nephrology.

Authors: Muthuramalingam, Shyamsundar^1,2 (AUTHOR), Scholes‐Robertson, Nicole^2,3,4 (AUTHOR), Carswell, Phil⁵ (AUTHOR), Maistry, Carolina² (AUTHOR), Paulo, Kylie² (AUTHOR), Duncanson, Emily¹ (AUTHOR) emily@anzdata.org.au

Source: Nephrology. Dec2020, Vol. 25 Issue 12, p879-880. 2p.

Subject Terms: *NEPHROLOGISTS, *PATIENTS' families, *INTERNISTS, *CONFERENCES & conventions

Recruitment and retention in clinical trials in chronic kidney disease: report from national workshops with patients, caregivers and health professionals.

Authors: Natale, Patrizia, Gutman, Talia, Howell, Martin, Dansie, Kathryn, Hawley, Carmel M, Cho, Yeoungjee, Viecelli, Andrea K, Craig, Jonathan C, Jesudason, Shilpanjali, Chapman, Jeremy R, Johnson, David W, Murphy, Lisa, Reidlinger, Donna, Crowe, Sally, Duncanson, Emily, Muthuramalingam, Shyamsundar, Scholes-Robertson, Nicole, Williamson, Amber, McDonald, Stephen, Wong, Germaine

Source: Nephrology Dialysis Transplantation; May2020, Vol. 35 Issue 5, p755-764, 10p, 1 Diagram, 2 Charts

Subject Terms: MEDICAL personnel, CHRONIC kidney failure, CLINICAL trials, REPORTING of diseases, PATIENT selection