Patients as research partners in preference studies: learnings from IMI-PREFER

Authors: Meredith Y. Smith, Rosanne Janssens, A. Cecilia Jimenez-Moreno, Irina Cleemput, Mireille Muller, Serena Oliveri, Gwenda Simons, Valentina Strammiello, Isabelle Huys, Marie Falahee

Source: Research Involvement and Engagement, Vol 9, Iss 1, Pp 1-14 (2023)

Subject Terms: Patient preferences, Patient research partners, Patient preference study, Patient involvement, Patient and public involvement/engagement (PPI), Patient impact, Medicine, Medicine (General), R5-920

File Description: electronic resource

Relation: https://doaj.org/toc/2056-7529

Access URL: https://doaj.org/article/883f8e55b13c485a9cac4b1bdb4fbca1

How can patient preferences be used and communicated in the regulatory evaluation of medicinal products? Findings and recommendations from IMI PREFER and call to action

Authors: Rosanne Janssens, Liese Barbier, Mireille Muller, Irina Cleemput, Isabelle Stoeckert, Chiara Whichello, Bennett Levitan, Tarek A. Hammad, Charis Girvalaki, Juan-Jose Ventura, Karin Schölin Bywall, Cathy Anne Pinto, Elise Schoefs, Eva G. Katz, Ulrik Kihlbom, Isabelle Huys

Source: Frontiers in Pharmacology, Vol 14 (2023)

Subject Terms: patient preferences, patient experience data, regulatory evaluation, scientific advice, benefit-risk assessment, clinical trial endpoint selection, Therapeutics. Pharmacology, RM1-950

File Description: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fphar.2023.1192770/full; https://doaj.org/toc/1663-9812

Access URL: https://doaj.org/article/805a297780d245ba87369a0bda9aa40c