Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial

Authors: Linda Kwakkenbos, Marie-Eve Carrier, Joep Welling, Brooke Levis, Alexander W. Levis, Maureen Sauve, Kimberly A. Turner, Lydia Tao, Kylene Aguila, Andrea Carboni-Jiménez, Mara Cañedo-Ayala, Sami Harb, Cornelia van den Ende, Marie Hudson, Ward van Breda, Christelle Nguyen, Isabelle Boutron, François Rannou, Brett D. Thombs, Luc Mouthon, on behalf of the SPIN Investigators

Source: Trials, Vol 23, Iss 1, Pp 1-15 (2022)

Subject Terms: Cohort multiple RCT, Occupational therapy, Physical therapy, Randomized controlled trial, Scleroderma, Systemic, Systemic sclerosis, Medicine (General), R5-920

File Description: electronic resource

Relation: https://doaj.org/toc/1745-6215

Access URL: https://doaj.org/article/bc0a0a490e994772ab9cec7d9191cb84

Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups: a two-arm parallel partially nested randomised controlled trial

Authors: Brett D. Thombs, Brooke Levis, Marie-Eve Carrier, Laura Dyas, Julia Nordlund, Lydia Tao, Kylene Aguila, Angelica Bourgeault, Violet Konrad, Maureen Sauvé, Kerri Connolly, Richard S. Henry, Nora Østbø, Alexander W. Levis, Linda Kwakkenbos, Vanessa L. Malcarne, Ghassan El-Baalbaki, Marie Hudson, Amanda Wurz, S. Nicole Culos-Reed, Robert W. Platt, Andrea Benedetti, SPIN-SSLED Support Group Leader Advisory Team

Source: Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-15 (2022)

Subject Terms: Chronic diseases, Peer support, Support groups, Systemic sclerosis, Rare diseases, Medicine

File Description: electronic resource

Relation: https://doaj.org/toc/1750-1172

Access URL: https://doaj.org/article/c710a221a3894860bfac4e9025743c1b

Mental Health Care Use and Associated Factors in Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study

Authors: Karima Becetti, Joseph T. Nguyen, Linda Kwakkenbos, Marie‐Eve Carrier, Lydia Tao, Jessica K. Gordon, Carol A. Mancuso, Joep Welling, Luc Mouthon, Susan J. Bartlett, Vanessa L. Malcarne, Brett D. Thombs, Robert F. Spiera, Scleroderma Patient‐Centered Intervention Network Investigators

Source: ACR Open Rheumatology, Vol 4, Iss 8, Pp 647-657 (2022)

Subject Terms: Diseases of the musculoskeletal system, RC925-935

File Description: electronic resource

Relation: https://doaj.org/toc/2578-5745

Access URL: https://doaj.org/article/8ae0f0a94aa44ac3adaca03eb1ac8bb5

The use of wireless sensors in the neonatal intensive care unit: a study protocol

Authors: Eva Senechal, Daniel Radeschi, Lydia Tao, Shasha Lv, Emily Jeanne, Robert Kearney, Wissam Shalish, Guilherme Sant Anna

Source: PeerJ, Vol 11, p e15578 (2023)

Subject Terms: Wireless monitoring, Wearable technology, NICU, Patient monitoring, Pediatric care, PICU, Medicine, Biology (General), QH301-705.5

File Description: electronic resource

Relation: https://peerj.com/articles/15578.pdf; https://peerj.com/articles/15578/; https://doaj.org/toc/2167-8359

Access URL: https://doaj.org/article/2334c75b14574e2cb5ab79aec725b862

Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program

Authors: Linda Kwakkenbos, Nora Østbø, Marie-Eve Carrier, Warren R. Nielson, Claire Fedoruk, Brooke Levis, Richard S. Henry, Janet Pope, Tracy Frech, Shadi Gholizadeh, Sindhu R. Johnson, Pamela Piotrowski, Lisa R. Jewett, Jessica Gordon, Lorinda Chung, Dan Bilsker, Lydia Tao, Kimberly A. Turner, Julie Cumin, Joep Welling, Catherine Fortuné, Catarina Leite, Karen Gottesman, Maureen Sauvé, Tatiana Sofia Rodriguez Reyna, Marie Hudson, Maggie Larche, Ward van Breda, Maria E. Suarez-Almazor, Susan J. Bartlett, Vanessa L. Malcarne, Maureen D. Mayes, Isabelle Boutron, Luc Mouthon, Andrea Benedetti, Brett D. Thombs, on behalf of the SPIN Investigators

Source: Pilot and Feasibility Studies, Vol 8, Iss 1, Pp 1-15 (2022)

Subject Terms: Feasibility trial, Scleroderma, Systemic sclerosis, Self-management, Internet intervention, Cohort multiple RCT, Medicine (General), R5-920

File Description: electronic resource

Relation: https://doaj.org/toc/2055-5784

Access URL: https://doaj.org/article/b34149341f2740519aca1039e7c0187a

The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial

Authors: Julia Nordlund, Richard S. Henry, Linda Kwakkenbos, Marie-Eve Carrier, Brooke Levis, Warren R. Nielson, Susan J. Bartlett, Laura Dyas, Lydia Tao, Claire Fedoruk, Karen Nielsen, Marie Hudson, Janet Pope, Tracy Frech, Shadi Gholizadeh, Sindhu R. Johnson, Pamela Piotrowski, Lisa R. Jewett, Jessica Gordon, Lorinda Chung, Dan Bilsker, Alexander W. Levis, Kimberly A. Turner, Julie Cumin, Joep Welling, Catherine Fortuné, Catarina Leite, Karen Gottesman, Maureen Sauve, Tatiana Sofía Rodríguez-Reyna, Maggie Larche, Ward van Breda, Maria E. Suarez-Almazor, Amanda Wurz, Nicole Culos-Reed, Vanessa L. Malcarne, Maureen D. Mayes, Isabelle Boutron, Luc Mouthon, Andrea Benedetti, Brett D. Thombs, on behalf of the SPIN Investigators

Source: Trials, Vol 22, Iss 1, Pp 1-22 (2021)

Subject Terms: Scleroderma, Systemic sclerosis, Self-management, Self-efficacy, Patient activation, Randomized controlled trial, Medicine (General), R5-920

File Description: electronic resource

Relation: https://doaj.org/toc/1745-6215

Access URL: https://doaj.org/article/1357d21853f5484f8f43ccef5c8ce654

Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma Patient-centred Intervention Network (SPIN) Cohort Study

Authors: Arsène Mekinian, Thierry Martin, Eric Hachulla, Carter Thorne, Andrea Benedetti, Brett D Thombs, Daniel E Furst, Virginia Steen, Paul R Fortin, Vincent Poindron, David Launay, Luc Mouthon, Mandana Nikpour, John Varga, Benjamin Chaigne, Sindhu R Johnson, Sébastien Rivière, Isabelle Boutron, Daphna Harel, Linda Kwakkenbos, Marie-Eve Carrier, Karen Nielsen, Alexandra Portales, Susan J Bartlett, Vanessa L Malcarne, Murray Baron, Karen Gottesman, Maureen D Mayes, Warren R Nielson, Robert Riggs, Maureen Sauve, Fredrick Wigley, Shervin Assassi, Angela Costa Maia, Ghassan El-Baalbaki, Carolyn Ells, Kim Fligelstone, Catherine Fortune, Tracy Frech, Dominique Godard, Marie Hudson, Ann Impens, Yeona Jang, Ann Tyrell Kennedy, Annett Körner, Maggie Larche, Catarina Leite, Carlo Marra, Janet Pope, Russell J Steele, Maria E Suarez-Almazor, Joep Welling, Durhane Wong-Rieger, Christian Agard, Alexandra Albert, Marc André, Guylaine Arsenault, Ilham Benzidia, Sabine Berthier, Lyne Bissonnette, Gilles Boire, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Pascal Cohen, Pierre Dagenais, Christopher Denton, Robyn Domsic, Sandrine Dubois, James V Dunne, Bertrand Dunogue, Alexia Esquinca, Regina Fare, Dominique Farge-bancel, Anna Gill, Jessica Gordon, Brigitte Granel-Rey, Claire Grange, Genevieve Gyger, Pierre-Yves Hatron, Ariane L Herrick, Adrian Hij, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Marc Lambert, Patrick Liang, Hélène Maillard, Joanne Manning, Maria Martin, Ariel Masetto, François Maurier, Sheila Melchor, Susanna Proudman, Alexis Régent, David Robinson, Esther Rodriguez, Sophie Roux, Perrine Smets, Doug Smith, Vincent Sobanski, Robert Spiera, Wendy Stevens, Evelyn Sutton, Benjamin Terrier, Pearce Wilcox, Shadi Gholizadeh, François Rannou, Lindsay Cronin, Stephen Elrod, Cornelia van den Ende, Amy Gietzen, Christelle Nguyen, Michelle Richard, Ken Rozee, Anne A. Schouffoer, Nancy Stephens, Chase Correia, Artur Jose de B. Fernandes, Nancy Maltez, Isabelle Marie, Lydia Tao, Sami Harb, Elana J Bernstein, Sophia J Sommer, Shirley Haslam Geneviève Guillot, Tatiana Sofia Rodriguez Reyna, Sabrina Hoa, Angelica Bourgeault, Andrea Carboni Jiménez

Source: BMJ Open, Vol 10, Iss 10 (2020)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/10/10/e037639.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/7f6591062be448108df988ea9f1fce30

Scleroderma Patient-centered Intervention Network—Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trial

Authors: Brett D Thombs, Marie-Eve Carrier, Karen Nielsen, Vanessa L Malcarne, Karen Gottesman, Maureen Sauve, Ghassan El-Baalbaki, Catherine Fortune, Marie Hudson, Robert W Platt, Stephen Elrod, Amy Gietzen, Michelle Richard, Ken Rozee, Nancy Stephens, Lydia Tao, Laura Dyas, Mia Pépin, Kylene Aguila, Sami Harb, Sandra Peláez, Kerri Connolly, Geneviève Guillot

Source: BMJ Open, Vol 9, Iss 11 (2019)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/9/11/e029935.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/324ad8e2476d4135accf88e53eca7d5c

Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study

Authors: Thierry Martin, Carter Thorne, Brett D Thombs, Vincent Poindron, John Varga, Isabelle Boutron, Linda Kwakkenbos, Marie-Eve Carrier, Karen Nielsen, Alexandra Portales, Susan J Bartlett, Vanessa L Malcarne, Karen Gottesman, Warren R Nielson, Robert Riggs, Maureen Sauve, Fredrick Wigley, Shervin Assassi, Angela Costa Maia, Ghassan El-Baalbaki, Carolyn Ells, Catherine Fortune, Dominique Godard, Ann Impens, Yeona Jang, Ann Tyrell Kennedy, Annett Körner, Maggie Larche, Catarina Leite, Carlo Marra, Janet Pope, Tatiana Sofia Rodriguez Reyna, Joep Welling, Durhane Wong-Rieger, Alexandra Albert, Marc André, Guylaine Arsenault, Ilham Benzidia, Lyne Bissonnette, Gilles Boire, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Pascal Cohen, Pierre Dagenais, Christopher Denton, Robyn Domsic, Sandrine Dubois, Bertrand Dunogue, Alexia Esquinca, Regina Fare, Dominique Farge-bancel, Anna Gill, Jessica Gordon, Brigitte Granel-Rey, Genevieve Gyger, Pierre-Yves Hatron, Ariane L Herrick, Adrian Hij, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Patrick Liang, Joanne Manning, Maria Martin, Ariel Masetto, Sheila Melchor, David Robinson, Esther Rodriguez, Sophie Roux, Perrine Smets, Doug Smith, Robert Spiera, Evelyn Sutton, Benjamin Terrier, Pearce Wilcox, Michelle Wilson, Julie Cumin, François Rannou, Daniel E. Furst, Maureen D. Mayes, Lindsay Cronin, Stephen Elrod, Cornelia van den Ende, Amy Gietzen, Daphna Harel Geneviève Guillot, Shirley Haslam, Sindhu R. Johnson, Christelle Nguyen, Michelle Richard, Ken Rozee, Anne A. Schouffoer, Russell J. Steele, Nancy Stephens, Maria E. Suarez-Almazor, Chase Correia, James V. Dunne, Paul R. Fortin, Artur Jose de B. Fernandes, Nancy Maltez, Isabelle Marie, Kylene Anne Aguila, Mara Cañedo Ayala, Andrea Carboni-Jiménez, Claire Fedoruk, Lydia Tao, Kimberly Turner, Sami Harb, Mekinian Arsene, Nikpour Mandana, Gholizadeh Shadi

Source: BMJ Open, Vol 9, Iss 10 (2019)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/9/10/e029542.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/cbae4e695cfa46f89f3d6e4456d53273

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