Clinician Perspectives Highlight the Need for Early Dyadic Coping Skills for People Living With Amyotrophic Lateral Sclerosis

Authors: Rush, Christina L. ^{1, #}, Lyons, Chris ¹, Gittle, Jenna ¹, Seward, Morgan ¹, Scalia, Jennifer ², Ho, Doreen ², Babu, Suma ², Garret, Mark A. ², Brizzi, Kate ², Berry, James D. ², Fava, Maurizio ³, Lindenberger, Elizabeth ^{4, *}, Vranceanu, Ana-Maria ^{1, *}

Source: In Journal of Pain and Symptom Management March 2025 69(3):236-242

Development and Piloting of a Bereaved Care Partner Survey to Inform Quality Improvement in ALS Supportive Care

Authors: Bischoff, Kara E., Liera, Daniela, Tang, Janette, Madugala, Neha, Cohen, Eve, Galea, Marinella D., Lindenberger, Elizabeth, Pantilat, Steven Z., Lomen-Hoerth, Catherine

Source: In Journal of Pain and Symptom Management November 2024 68(5):467-476

Breaking the Cycle: Using Serious Illness Communication to Optimize Care Transition Planning in Serious Illness

Authors: Keeney, Tamra, Shameklis, Jaclyn, Drutchas, Alexis, Paladino, Joanna, Lindenberger, Elizabeth, Ritchie, Christine, Calton, Brook

Source: In Journal of the American Medical Directors Association July 2024 25(7)

Serious Illness Communication in Cirrhosis Care: Tools to Improve Illness Understanding, Prognostic Understanding, and Care Planning

Authors: Kaplan, Alyson, Ladin, Keren, Junna, Shilpa, Lindenberger, Elizabeth, Ufere, Nneka N.

Source: In Gastro Hep Advances 2024 3(5):634-645

Advance care planning clinic: A structured clinical experience for internal medicine residents

Authors: Coyle, Andrew, Bhatia, Sonica, Reyes Arnaldy, Amy, Wang, Katherine, Lindenberger, Elizabeth C., Fishman, Mary

Source: Journal of the American Geriatrics Society. 69(10):2931-2938

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100135930242.0x000001&indx=1&recIds=ETOCvdc_100135930242.0x000001

Geriatrics and palliative medicine leadership is needed now more than ever: What are the training gaps?

Authors: Pelleg, Ayla R., Schiller, Gabrielle, Goldhirsch, Suzanne L., Fernandez, Helen M., Lindenberger, Elizabeth C.

Source: Journal of the American Geriatrics Society. 69(4):1063-1070

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100120140528.0x000001&indx=1&recIds=ETOCvdc_100120140528.0x000001

Virtual Geritalk: Improving Serious Illness Communication of Clinicians Who Care for Older Adults

Authors: Frydman, Julia L., Gelfman, Laura P., Lindenberger, Elizabeth C., Smith, Cardinale B., Berns, Stephen, Kelley, Amy S., Dow, Lindsay A.

Source: JOURNAL OF PAIN AND SYMPTOM MANAGEMENT. 62(3):e206-e212

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100164562819.0x000001&indx=1&recIds=ETOCvdc_100164562819.0x000001

Impact of a Novel Goals-of-Care Communication Skills Coaching Intervention for Practicing Oncologists

Authors: Annadurai, Vasantham, Smith, Cardinale B., Bickell, Nina, Berns, Stephen H., Kelley, Amy S., Lindenberger, Elizabeth, Morrison, Laura J., Yuen, Jacqueline K., Egorova, Natalia, Franco, Rebeca, Back, Anthony L., Gelfman, Laura P.

Source: Journal of palliative medicine. 24(6):838-845

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100164312395.0x000001&indx=1&recIds=ETOCvdc_100164312395.0x000001

Development and Validation of the ACP-CAT for Assessing the Quality of Advance Care Planning Communication

Authors: Yuen, Jacqueline K., Kelley, Amy S., Gelfman, Laura P., Lindenberger, Elizabeth E., Smith, Cardinale B., Arnold, Robert M., Calton, Brook, Schell, Jane, Berns, Stephen H.

Source: In Journal of Pain and Symptom Management January 2020 59(1):1-8

A Part-Time, Competency-Based Fellowship for Mid-Career Physicians: Challenges, Opportunities, Lessons Learned, and Next Steps (TH116A)

Authors: Dingfield, Laura, Biewald, Mollie A., Dans, Maria, Lindenberger, Elizabeth C., Blackstone, Karen

Source: JOURNAL OF PAIN AND SYMPTOM MANAGEMENT. 65(3):e259-e260

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100182070367.0x000001&indx=1&recIds=ETOCvdc_100182070367.0x000001

4 - Troubleshooting difficult conversation

Authors: Dow, Lindsay Alexandra, Lindenberger, Elizabeth

Source: In Palliative Radiation Oncology 2024:33-38

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Adaptive Care Planning: A paradigm shift.

Authors: Moody, Sandra Y., Bell, Christina L., Lindenberger, Elizabeth C., Reid, M. Carrington

Source: Journal of the American Geriatrics Society; Feb2024, Vol. 72 Issue 2, p337-345, 9p

Subject Terms: PHYSICIAN-patient relations, MEDICAL personnel, ADVANCE directives (Medical care), PARADIGMS (Social sciences), HUMAN services programs, FAMILY attitudes, PATIENTS' attitudes, PATIENTS' families, DECISION making, COMMUNICATION, INTERPROFESSIONAL relations, HEALTH care teams

Sojourn's Scholars Present: In the Expert's Studio (FR211)

Authors: Campbell, Toby, Reinke, Lynn, Lindenberger, Elizabeth, Brody, Abraham, Hurd, Caroline, Kamal, Arif

Source: JOURNAL OF PAIN AND SYMPTOM MANAGEMENT. 63(5):805-806

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100160400472.0x000001&indx=1&recIds=ETOCvdc_100160400472.0x000001

Listening to Alison

Authors: Lindenberger, Elizabeth

Source: Journal of palliative medicine. 25(5):834-835

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100148462326.0x000001&indx=1&recIds=ETOCvdc_100148462326.0x000001

Excessive emotional reactivity in a case of behavioral variant frontotemporal dementia with amyotrophic lateral sclerosis

Authors: Barker, Megan S. ^{a, b, ⁎}, Shneider, Neil A. ^{c, d}, Manoochehri, Masood ^{a, b}, Huey, Edward D. ^{a, b, d}, Lindenberger, Elizabeth C. ^e

Source: In Psychiatry Research Case Reports June 2025 4(1)

46 - What Special Considerations Are Needed for Individuals with Amyotrophic Lateral Sclerosis, Parkinson’s Disease, and Multiple Sclerosis?

Authors: Pedowitz, Elizabeth, Lindenberger, Elizabeth

Source: In Evidence-Based Practice of Palliative Medicine Edition: Second Edition. 2023:387-404

Resilient together-ALS: leveraging the NDD transdiagnostic framework to develop an early dyadic intervention for people with amyotrophic lateral sclerosis and their informal care-partners.

Authors: Rush, Christina L., Lester, Ethan G., Manglani, Heena, Woodworth, Emily, Vitolo, Ottavio, Fava, Maurizio, Berry, James D., Brizzi, Kate, Babu, Suma, Lindenberger, Elizabeth C., Curtis, J. Randall, Vranceanu, Ana-Maria

Source: Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration; Nov2023, Vol. 24 Issue 7/8, p719-726, 8p

Subject Terms: AMYOTROPHIC lateral sclerosis, TRANSGENDER people, LONG-term health care, NEURODEGENERATION, PSYCHOLOGICAL resilience, SOCIAL support

A roadmap for early psychosocial support in palliative care for people impacted by ALS—reducing suffering, building resiliency, and setting the stage for delivering timely transdiagnostic psychosocial care.

Authors: Rush, Christina L, Lester, Ethan G, Berry, James D, Brizzi, Kate T, Lindenberger, Elizabeth C, Curtis, Jared Randall, Vranceanu, Ana-Maria

Source: Translational Behavioral Medicine; Sep2023, Vol. 13 Issue 9, p722-726, 5p

Better in Virtually Every Way

Authors: Zapata, Carly, Doyle, Kathleen, deLima Thomas, Jane, Biewald, Mollie, Lindenberger, Elizabeth

Source: Journal of palliative medicine. 24(6):811-812

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100164312492.0x000001&indx=1&recIds=ETOCvdc_100164312492.0x000001