Qualitative interviews of patients with COPD and muscle weakness enrolled in a clinical trial evaluating a new anabolic treatment: patient perspectives of disease experience, trial participation and outcome assessments

Authors: Maggie Tabberer, Nicola Williamson, Sophi Tatlock, Adam Gater, Rebecca Grimes, Chika Akinseye, David Neil, Aoife Mahon-Smith, Linda Nelsen

Source: Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-14 (2024)

Subject Terms: Chronic obstructive pulmonary disease, Muscle weakness, Qualitative interview, Anabolic treatment, Trial participation, Patient experience, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/2509-8020

Access URL: https://doaj.org/article/c9b41cbf936b4a06a8b85fdcffd752d7

Patient‐Reported Outcome Measures for Severe Recurrent Bilateral Nasal Polyps: Psychometric Evaluation and Content Validity

Authors: Adam Gater, Chloe Tolley, Rebecca Williams‐Hall, Claire Trennery, Helena Bradley, Mirko V. Sikirica, Linda Nelsen, Ana R. Sousa, Daniel J. Bratton, Robert Chan, Robyn vonMaltzahn

Source: OTO Open, Vol 7, Iss 4, Pp n/a-n/a (2023)

Subject Terms: chronic rhinosinusitis, disease severity, quality of life, visual analogue scale, Otorhinolaryngology, RF1-547, Surgery, RD1-811

File Description: electronic resource

Relation: https://doaj.org/toc/2473-974X

Access URL: https://doaj.org/article/a07764f2f4a24a06871016cfabfa7a30

P964: PATIENT (PT)-REPORTED OUTCOMES IN PTS WITH RELAPSED/REFRACTORY MULTIPLE MYELOMA (RRMM) TREATED WITH BELANTAMAB MAFODOTIN (BELAMAF) VS POMALIDOMIDE/LOW DOSE DEXAMETHASONE (PD) IN THE DREAMM-3 STUDY

Authors: Vania Hungria, Katja Weisel, Brooke Currie, Sue Perera, Neal Sule, Wei He, Astrid Mckeown, Sandhya Sapra, Linda Nelsen, Mary LI, Sophie Barale, Julia Boyle, Kaytlyn Mcpoyle, Meletios A. Dimopoulos

Source: HemaSphere, Vol 7, p e35249ae (2023)

Subject Terms: Diseases of the blood and blood-forming organs, RC633-647.5

File Description: electronic resource

Relation: http://journals.lww.com/10.1097/01.HS9.0000970760.35249.ae; https://doaj.org/toc/2572-9241

Access URL: https://doaj.org/article/4cba3ad49be4419c83617e042c04cc2f

Patient-reported outcomes in vaccines research: relevance for decision-making

Authors: Desmond Curran, Eliazar Sabater Cabrera, Linda Nelsen

Source: Human Vaccines & Immunotherapeutics, Vol 18, Iss 1, Pp 1-8 (2022)

Subject Terms: patient-reported outcomes, comparative effectiveness, electronic pro, health technology assessment, clinical outcomes assessments, health-related quality of life, qualitative research, pro instruments, public health benefit, vaccines, Immunologic diseases. Allergy, RC581-607, Therapeutics. Pharmacology, RM1-950

File Description: electronic resource

Relation: https://doaj.org/toc/2164-5515; https://doaj.org/toc/2164-554X

Access URL: https://doaj.org/article/3eba2ac469ed4dbd8327c6ed5cb30984

Mepolizumab therapy improves the most bothersome symptoms in patients with hypereosinophilic syndrome

Authors: Florence Roufosse, Joseph Butterfield, Jonathan Steinfeld, Jane H. Bentley, Robyn von Maltzahn, Namhee Kwon, Linda Nelsen

Source: Frontiers in Medicine, Vol 10 (2023)

Subject Terms: hypereosinophilic syndrome (HES), daily symptoms, HES-DS, most bothersome, patient-reported, mepolizumab, Medicine (General), R5-920

File Description: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fmed.2023.1035250/full; https://doaj.org/toc/2296-858X

Access URL: https://doaj.org/article/1dda389d813a46c19ca457cf9435c21c

Development and equivalence of new faces for inclusion in the Childhood Asthma Control Test (C-ACT) response scale

Authors: Kate Sully, Nicola Bonner, Helena Bradley, Robyn von Maltzahn, Rob Arbuckle, Louise Walker-Nthenda, Aoife Mahon, Brandon Becker, Louise O’Hara, Katherine B. Bevans, Mark Kosinski, Robert S. Zeiger, Ross Mackenzie, Linda Nelsen

Source: Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-16 (2021)

Subject Terms: Pediatric asthma, Qualitative equivalence, CHILDHOOD ASTHMA CONTROL TEST, Patient-reported outcome, Asthma control, Clinical outcome assessment, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/2509-8020

Access URL: https://doaj.org/article/3f4bb5e336a1400198490fc01d8e4b22

An Innovative Online Qualitative Study to Explore the Symptom Experience of Patients with Primary Sjögren’s Syndrome

Authors: Kerry Gairy, Keith Ruark, Susan M. Sinclair, Helen Brandwood, Linda Nelsen

Source: Rheumatology and Therapy, Vol 7, Iss 3, Pp 601-615 (2020)

Subject Terms: Fatigue, Patient experience, Primary Sjögren’s syndrome, Diseases of the musculoskeletal system, RC925-935

File Description: electronic resource

Relation: https://doaj.org/toc/2198-6576; https://doaj.org/toc/2198-6584

Access URL: https://doaj.org/article/20f0da3309324e33805b02a4699a7c64

Relationship between the Asthma Control Test (ACT) and other outcomes: a targeted literature review

Authors: Bas C. P. van Dijk, Henrik Svedsater, Andreas Heddini, Linda Nelsen, Janita S. Balradj, Cathelijne Alleman

Source: BMC Pulmonary Medicine, Vol 20, Iss 1, Pp 1-9 (2020)

Subject Terms: Asthma Control Test, ACT, Lung function, Quality of life, Rescue medication, Exacerbations, Diseases of the respiratory system, RC705-779

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s12890-020-1090-5; https://doaj.org/toc/1471-2466

Access URL: https://doaj.org/article/a9da09d6b1e24f5192ec6fb80e1f2ae4

Observational vignette study to examine patient and healthcare provider perceived impact of asthma-related exacerbations in the US

Authors: Phaedra T. Johnson, Christopher F. Bell, John White, Breanna Essoi, Linda Nelsen, Carlyne M. Averell

Source: Multidisciplinary Respiratory Medicine, Vol 14, Iss 1, Pp 1-10 (2019)

Subject Terms: Asthma, Exacerbations, Burden, Vignette, Patient, Healthcare provider, Diseases of the respiratory system, RC705-779

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s40248-019-0196-1; https://doaj.org/toc/2049-6958

Access URL: https://doaj.org/article/15a9d89da0f2474da60a11e935cc69f2

An overview of using qualitative techniques to explore and define estimates of clinically important change on clinical outcome assessments

Authors: Hannah Staunton, Tom Willgoss, Linda Nelsen, Claire Burbridge, Kate Sully, Diana Rofail, Rob Arbuckle

Source: Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-10 (2019)

Subject Terms: Important change, Meaningful change thresholds, Responder definition, Concept elicitation, Cognitive debriefing, Exit interviews, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s41687-019-0100-y; https://doaj.org/toc/2509-8020

Access URL: https://doaj.org/article/8aad0ce62d3e4100aacf90ca532c3662

Understanding and measuring symptoms and health status in asthma COPD overlap: content validity of the EXACT and SGRQ

Authors: Linda Nelsen, Adam Gater, Charlotte Panter, Chloe Tolley, Laurie Lee, Steven Pascoe

Source: Journal of Patient-Reported Outcomes, Vol 2, Iss 1, Pp 1-13 (2018)

Subject Terms: Asthma-COPD overlap, Chronic obstructive pulmonary disease, Impacts, Patient-reported outcome, Symptoms, Health-related quality of life, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s41687-018-0038-5; https://doaj.org/toc/2509-8020

Access URL: https://doaj.org/article/e1d79c16765841f181d2f9aab485197e

Measuring cough severity: development and pilot testing of a new seven-item cough severity patient-reported outcome measure

Authors: Margaret Vernon, Nancy Kline Leidy, Alise Nacson, Linda Nelsen

Source: Therapeutic Advances in Respiratory Disease, Vol 4 (2010)

Subject Terms: Diseases of the respiratory system, RC705-779

File Description: electronic resource

Relation: https://doaj.org/toc/1753-4658

Access URL: https://doaj.org/article/af367c16529e4ebcbb7edb4553267bb1

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