Person-centred health outcomes in the routine care for people with progressive pulmonary fibrosis: the COCOS-IPF project’s European survey on healthcare professionals’ views and practices

Authors: Vivien Somogyi, Anouk Delameillieure, Silja Schenk, Liesbet Van Bulck, Sofie Breuls, Nazli Üçkuyu, Zehra Nur Töreyin, Nikola Stenzel, Nesrin Moğulkoç, Wim Wuyts, Steve Jones, Liam Galvin, Jeanette Boyd, Thomy Tonia, Fabienne Dobbels, Michael Kreuter

Source: Respiratory Research, Vol 26, Iss 1, Pp 1-11 (2025)

Subject Terms: Idiopathic pulmonary fibrosis, Progressive Pulmonary Fibrosis, Core Outcome Set, Person-centred outcomes, Diseases of the respiratory system, RC705-779

File Description: electronic resource

Relation: https://doaj.org/toc/1465-993X

Access URL: https://doaj.org/article/21fbfd087e4841ef9ba510888c2d7fc2

Identifying outcome domains to establish a core outcome set for progressive pulmonary fibrosis: a scoping review

Authors: Anouk Delameillieure, Vivien Somogyi, Silja Schenk, Nur Toreyin, Nikola Stenzel, Liesbet Van Bulck, Sofie Breuls, Michael Kreuter, Wim A. Wuyts, Nesrin Mogulkoc, Jeanette Boyd, Steve Jones, Liam Galvin, Fabienne Dobbels

Source: European Respiratory Review, Vol 34, Iss 175 (2025)

Subject Terms: Diseases of the respiratory system, RC705-779

File Description: electronic resource

Relation: http://err.ersjournals.com/content/34/175/240133.full; https://doaj.org/toc/0905-9180; https://doaj.org/toc/1600-0617

Access URL: https://doaj.org/article/3fc4031f82d9441a8f9f00cae5459376

A roadmap to precision treatments for familial pulmonary fibrosis

Authors: Killian Hurley, Mari Ozaki, Quentin Philippot, Liam Galvin, David Crosby, Mary Kirwan, Deborah R. Gill, Konstantinos-Dionysios Alysandratos, Gisli Jenkins, Matthias Griese, Nadia Nathan, Raphael Borie, Deborah Snijders, Nicolaus Schwerk, Nico Lachmann, Daniel O'Toole

Source: EBioMedicine, Vol 104, Iss , Pp 105135- (2024)

Subject Terms: Familial pulmonary fibrosis, Interstitial lung disease of genetic cause, precision medicine, Pulmonary fibrosis, Preclinical models, Telomere related gene, Surfactant related gene, Medicine, Medicine (General), R5-920

File Description: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2352396424001701; https://doaj.org/toc/2352-3964

Access URL: https://doaj.org/article/d1a53dcebee04116a10cbbac5081b2fb

Mycophenolate and azathioprine efficacy in interstitial lung disease: a systematic review and meta-analysis

Authors: Sally Singh, Mark Jones, Michael Kreuter, Maria Molina-Molina, Imre Noth, Andrew Wilson, Martin Brutsche, Naftali Kaminski, Gary M Hunninghake, Michael Keane, Nazia Chaudhuri, Ian Forrest, Bruno Crestani, Fernando J Martinez, Mohsen Sadatsafavi, Luca Richeldi, Antje Prasse, Fasihul Khan, Iain Stewart, Steve Jones, Gisli Jenkins, Gauri Saini, David Turner, Killian Hurley, Lucilla Piccari, Andrew Palmer, Joseph A Lasky, Simon Hart, Joyce Lee, Anthony Gordon, John Blaikley, Kirsty Hett, Helmut Prosch, Elisabeth Bendstrup, Christopher Huntley, Helen Parfrey, Huzaifa Adamali, Paul Beirne, Stephen Bianchi, George Chalmers, Sophie Fletcher, Peter George, Michael Gibbons, Mark Spears, Laura Fabbri, Felix Chua, Michael Henry, Cormac McCarthy, Sabrina Paganoni, Joseph Jacob, Mark Toshner, Bibek Gooptu, Andrew Briggs, Philip L Molyneaux, Athol Wells, Charlotte Summers, Leticia Kawano-Dourado, Ian Glaspole, Melanie Quintana, Christopher J Ryerson, Paolo Spagnolo, Francesco Bonella, Carisi Anne Polanczyk, Anjali Crawshaw, Laurence Pearmain, Avinash Anil Nair, Raphaël Borie, Alexandre Biasi Cavalcanti, Emanuela Falaschetti, Jonathan Chung, James Eaden, Kate Johnson, Shaney Barratt, Chris Ryerson, Juergen Behr, Andreas Guenther, Nik Hirani, Karin Storrer, Deepak Talwar, Claudia Ravaglia, Katerina Antoniou, Sara Freitas, Carlo Vancheri, Laura Price, Amanda Goodwin, Daniel Chambers, Gunnar Gudmundsson, Roger Lewis, Ingrid Cox, Anne Holland, Erica Farrand, Argyrios Tzouvelekis, Rui Rolo, Duncan Richards, Larissa Schwarzkopf, Sabina Guler, Devesh Dhasmana, Claudia Valenzuela, John S Kim, Louise Crowley, Lisa Watson, Amanda Bravery, Elisabetta Balestro, Wendy Adams, Francesco Lombardi, Ali Mojibian, Ana Etges, Ana Sousa Marcelino Boshoff, Anne Bergeron Anna-MariaHoffmann-Vold, Athina Trachalaki, Barbara Wendelberger, Bhavika Kaul Ben Hope-Gill, Bruno Baldi, Carlos Robalo, Chris Grainge, Christophe von Garnier, Conal Hayton, Dapeng Wang, Daphne Bablis, David Thicket, Deji Adegunsoye, Devaraj Anand, Dhruv Parek, Diane Griffiths, Eliana Santucci, Eliza Tsitoura, Emma Karlsen, Ena Gupta, Harold Collard, Hernan Fainberg, Iazsmin Bauer-Ventura, Irina Strambu, Jacobo Sellares, Janet Johnston, Jeff Swigris, Karina Negrelli, Katarzyna Lewandowska, Katrin Hostettler, Kerri Johannson, Liam Galvin, Lisa G. Spencer, Manuela Funke Chambour, Marlies Wijsenbeek-Lourens, Martina Vasakova, Milena Man Iuliu Hatieganu, Nick Weatherley, Ovidiu Fira Mladinescu Victor Babes, Peter Bryce, Pilar Rivera Ortega, Radu Crisan-Dabija, Rahul Maida, Sara Piciucchi, Shama Malik, Simone Dal Corso, Stefan Stanel

Source: BMJ Open Respiratory Research, Vol 11, Iss 1 (2024)

Subject Terms: Medicine, Diseases of the respiratory system, RC705-779

File Description: electronic resource

Relation: https://bmjopenrespres.bmj.com/content/11/1/e002163.full; https://doaj.org/toc/2052-4439

Access URL: https://doaj.org/article/2ac47dada7d648a4a2a2a9b8b2f6ab10

Developing a conceptual model of symptoms and impacts in progressive fibrosing interstitial lung disease to evaluate patient-reported outcome measures

Authors: Marlies Wijsenbeek, Maria Molina-Molina, Olivier Chassany, John Fox, Liam Galvin, Klaus Geissler, Katherine M. Hammitt, Michael Kreuter, Teng Moua, Emily C. O'Brien, Ashley F. Slagle, Anna Krasnow, Matthew Reaney, Michael Baldwin, Natalia Male, Klaus B. Rohr, Jeff Swigris, Katerina Antoniou

Source: ERJ Open Research, Vol 8, Iss 2 (2022)

Subject Terms: Medicine

File Description: electronic resource

Relation: http://openres.ersjournals.com/content/8/2/00681-2021.full; https://doaj.org/toc/2312-0541

Access URL: https://doaj.org/article/2b4d0656e26e4705841c755f6e5ab14a

Gaps in care of patients living with pulmonary fibrosis: a joint patient and expert statement on the results of a Europe-wide survey

Authors: Catharina C. Moor, Marlies S. Wijsenbeek, Elisabetta Balestro, Davide Biondini, Benjamin Bondue, Vincent Cottin, Ron Flewett, Liam Galvin, Steve Jones, Maria Molina-Molina, Lurdes Planas-Cerezales, Antje Prasse, Helmut Prosch, Anne-Marie Russell, Michel Viegas, Guenther Wanke, Wim Wuyts, Michael Kreuter, Francesco Bonella

Source: ERJ Open Research, Vol 5, Iss 4 (2019)

Subject Terms: Medicine

File Description: electronic resource

Relation: http://openres.ersjournals.com/content/5/4/00124-2019.full; https://doaj.org/toc/2312-0541

Access URL: https://doaj.org/article/347a71d25e204acd82d5592e34be5a4c

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