Commonwealth Neuroendocrine Tumour Research Collaboration and the North American Neuroendocrine Tumor Society Guidelines for the Diagnosis and Management of Patients With Lung Neuroendocrine Tumors: An International Collaborative Endorsement and Update of the 2015 European Neuroendocrine Tumor Society Expert Consensus Guidelines

Authors: Singh, Simron, Bergsland, Emily K., Card, Cynthia M., Hope, Thomas A., Kunz, Pamela L., Laidley, David T., Lawrence, Ben, Leyden, Simone, Metz, David C., Michael, Michael, Modahl, Lucy E., Myrehaug, Sten, Padda, Sukhmani K., Pommier, Rodney F., Ramirez, Robert A., Soulen, Michael, Strosberg, Jonathan, Sung, Arthur, Thawer, Alia, Wei, Benjamin, Xu, Bin, Segelov, Eva

Source: In Journal of Thoracic Oncology October 2020 15(10):1577-1598

Global challenges in access to diagnostics and treatment for neuroendocrine tumor (NET) patients

Authors: Dureja, Sugandha, McDonnell, Mark, Van Genechten, Dirk, Bouvier, Catherine, Kolarova, Teodora, O'Toole, Dermot, Singh, Harjit, Chen, Jie, Howe, James, Singh, Simron, Rodien‐Louw, Christine, Leyden, Simone, Gellerman, Elyse, Herman, Jackie, Pavel, Marianne

Source: Journal of neuroendocrinology. 35(6)

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100186418774.0x000001&indx=1&recIds=ETOCvdc_100186418774.0x000001

Unmet needs in the international neuroendocrine tumor (NET) community: Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals

Authors: Leyden, Simone, Kolarova, Teodora, Bouvier, Catherine, Caplin, Martyn, Conroy, Siobhan, Davies, Phillipa, Dureja, Sugandha, Falconi, Massimo, Ferolla, Piero, Fisher, George, Goldstein, Grace, Hicks, Rodney J., Lawrence, Ben, Majima, Yoshiyuki, Metz, David C., O'Toole, Dermot, Ruszniewski, Philippe, Wiedenmann, Bertram, Hollander, Ronald

Source: International journal of cancer. 146(5):1316-1323

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100099718071.0x000001&indx=1&recIds=ETOCvdc_100099718071.0x000001

The Economic Impact on Australian Patients with Neuroendocrine Tumours

Authors: Gordon, Louisa G., Elliott, Thomas M., Wakelin, Kate, Leyden, Simone, Leyden, John, Michael, Michael, Pavlakis, Nick, Mumford, Jan, Segelov, Eva, Wyld, David K.

Source: The patient. 13(3):363-373

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100172382124.0x000001&indx=1&recIds=ETOCvdc_100172382124.0x000001

Pivotal phase III COMPOSE trial will compare 177Lu-edotreotide with best standard of care for well-differentiated aggressive grade 2 and grade 3 gastroenteropancreatic neuroendocrine tumors.

Authors: Halfdanarson, Thorvardur Ragnar, Reidy, Diane Lauren, Vijayvergia, Namrata, Halperin, Daniel M., Goldstein, Grace, Kong, Grace, Michael, Michael, Leyden, Simone, Grozinsky-Glasberg, Simona, Sorbye, Halfdan, Oberg, Kjell E., Sierras, Cristina, Harris, Philip

Source: Journal of clinical oncology. 40(4 suppl):TPS514-TPS514

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100152968448.0x000001&indx=1&recIds=ETOCvdc_100152968448.0x000001

Survey of challenges in access to diagnostics and treatment for neuroendocrine tumor patients (SCAN): The diagnostic process of GEP-NETs in Australia, Canada, China, France, Germany, the United Kingdom, and the United States of America.

Authors: McDonnell, Mark, Bouvier, Catherine, Pavel, Marianne E., Singh, Harjit, Howe, James R., Singh, Simron, Chen, Jie, Van Genechten, Dirk, Gellerman, Elyse, Dureja, Sugandha, Leyden, Simone, Rodien-Louw, Christine, Kolarova, Teodora, O'Toole, Dermot

Source: Journal of clinical oncology. 40(4 suppl):502-502

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100152967813.0x000001&indx=1&recIds=ETOCvdc_100152967813.0x000001

Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients (SCAN) – application of surgery in treatment of SI NETs

Authors: Van Genechten, Dirk, McDonnell, Mark, Kolarova, Teodora, Bouvier, Catherine, Pavel, Marianne, Singh, Harjit, Singh, Simron, O'Toole, Dermot, Chen, Jie, Gellerman, Elyse, Dureja, Sugandha, Rodien-Louw, Christine, Leyden, Simone, Howe, James

Source: European journal of surgical oncology. 48(2):e42-e42

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100156139568.0x000001&indx=1&recIds=ETOCvdc_100156139568.0x000001

Treatments and ongoing monitoring for patients with neuroendocrine tumors, monitored by medical oncologists: Scan comparative data between advanced economies (AE) and emerging and developing economies (EDE).

Authors: Rodien-Louw, Christine, McDonnell, Mark, Kolarova, Teodora, Bouvier, Catherine, Pavel, Marianne E, Hicks, Rodney J., Chen, Jie, Singh, Simron, Van Genechten, Dirk, O'Toole, Dermot, Gellerman, Elyse, Dureja, Sugandha, Leyden, Simone, Howe, James R.

Source: Journal of clinical oncology. 39(15 suppl):e16200-e16200

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100173200887.0x000001&indx=1&recIds=ETOCvdc_100173200887.0x000001

The cost of neuroendocrine tumor patient healthcare: Comparison between advanced economies and emerging and developing economies.

Authors: Gellerman, Elyse, Bouvier, Catherine, McDonnell, Mark, Rodien-Louw, Christine, Van Genechten, Dirk, Leyden, Simone, Dureja, Sugandha, Kolarova, Teodora

Source: Journal of clinical oncology. 39(28 suppl):64-64

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100152949156.0x000001&indx=1&recIds=ETOCvdc_100152949156.0x000001

The rare cancer experience in Australia

Authors: Leyden, Simone

Source: Cancer forum. 39(2):113-113

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCRN601888670&indx=1&recIds=ETOCRN601888670

Genetic profiling analysis design of well-differentiated aggressive grade 2 and 3 gastroenteropancreatic neuroendocrine tumors in the phase III randomized controlled COMPOSE trial.

Authors: Halfdanarson, Thorvardur Ragnar, Capdevila, Jaume, Halperin, Daniel M., Herrmann, Ken, Kong, Grace, Leyden, Simone, Mailman, Josh, Reidy-Lagunes, Diane, Srirajaskanthan, Rajaventhan, Erdö, Máté, Rotger, Amanda, Thevenet, Thomas

Source: Journal of Clinical Oncology; 2/1/2023 Supplement 1, Vol. 41, pTPS660-TPS660, 1p

Defining the Supportive Care Needs and Psychological Morbidity of Patients With Functioning Versus Nonfunctioning Neuroendocrine Tumors: Protocol for a Phase 1 Trial of a Nurse-Led Online and Phone-Based Intervention.

Authors: Guccione, Lisa^1,2, Gough, Karla², Drosdowsky, Allison², Fisher, Krista¹, Price, Timothy³, Pavlakis, Nick⁴, Khasraw, Mustafa⁴, Wyld, David^5,6, Ransom, David⁷, Kong, Grace⁸, Rogers, Megan⁹, Leyden, Simone¹⁰, Leyden, John¹⁰, Michael, Michael¹¹, Schofield, Penelope^1,2,12

Source: Journal of Medical Internet Research; Dec2019, Vol. 21 Issue 12, pN.PAG-N.PAG, 1p, 1 Chart

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