Scoping literature review to identify candidate domains for the OMERACT Systemic Lupus Erythematosus core outcome set

Authors: Nielsen, Wils ^{a, b, c}, Kharouf, Fadi ^{b, c}, Grajales, Carolina Munoz ^{b, c}, Thayaparan, Aarabi ^b, Anderson, Melanie ^d, Strand, Vibeke ^e, Simon, Lee ^f, Bonilla, Dennisse ^{b, c}, Morand, Eric ^g, Thumboo, Julian ^h, Aringer, Martin ⁱ, Mosca, Marta ^j, Bruce, Ian ^{k, l}, Papadopoulos, Elektra J. ^m, Torralba, Karina D. ^{n, o, p}, Whitall-Garcia, Laura Patricia ^{b, c}, Rosen, Cheryl F. ^{q, r}, Parodis, Ioannis ^{s, t, u}, Kim, Alfred ^v, Desai, Maya ^w, Enman, Yvonne ^{s, x}, Shea, Beverley ^{y, z}, Wallace, Daniel J. ^{aa, bb}, Chaichian, Yashaar ^e, Navarra, Sandra ^cc, Aranow, Cynthia ^dd, Mackay, Meggan ^ee, Trotter, Kimberly ^ee, Tayer-Shifman, Oshrat E. ^{ff, gg}, Duarte-García, Alí ^hh, Shan Tam, Lai ⁱⁱ, Ugarte-Gil, Manuel F. ^{jj, kk}, Pons-Estel, Guillermo J. ^ll, Reynolds, John A. ^mm, Nikpour, Mandana ⁿⁿ, Hoi, Alberta ^oo, Romero-Diaz, Juanita ^pp, Aggarwal, Amita ^qq, Papachristos, Danaë ^c, Mok, Chi Chiu ^rr, Fujio, Keishi ^ss, Ramsey-Goldman, Rosalind ^tt, Legge, Alexandra ^{uu, vv}, Arnaud, Laurent ^ww, Bultink, Irene E.M. ^xx, Finzel, Stephanie ^yy, Voll, Reinhard E. ^yy, Ruiz-Irastorza, Guillermo ^zz, Inês, Luís Sousa ^{aaa, bbb}, Appenzeller, Simone ^ccc, Dobrowolski, Chrisanna ^ddd, Clarke, Ann Elaine ^eee, Kamen, Diane L. ^fff, Barraclough, Michelle ^{b, k, l}, Tani, Chiara ^ggg, Gómez-Puerta, Jose A. ^hhh, Werth, Victoria P. ⁱⁱⁱ, Katz, Patti ^jjj, Askanase, Anca D. ^kkk, Bingham, Kathleen ^{lll, mmm, nnn}, Gladman, Dafna D. ^b, Johnson, Sindhu ^{b, ooo}, Drucker, Aaron ^ppp, Nowrouzi-Kia, Behdin ^qqq, Touma, Zahi ^{a, b, c, ⁎}

Source: In Seminars in Arthritis and Rheumatism June 2025 72

Framework for implementing treat-to-target in systemic lupus erythematosus routine clinical care: consensus statements from an international task force

Authors: Piga, Matteo ^a, Parodis, Ioannis ^{b, c}, Touma, Zahi ^d, Legge, Alexandra ^e, Ugarte-Gil, Manuel F. ^{f, g}, Hmamouchi, Ihsane ^h, Gómez Puerta, José A. ⁱ, Devilliers, Hervé ^j, Zen, Margherita ^k, Cho, Jiacai ^{l, m}, Ziade, Nelly ⁿ, Mucke, Johanna ^{o, p}, Toro-Gutierrez, Carlos Enrique ^q, Izuka, Shinji ^r, Korsten, Peter ^s, Kane, Baïdy S.Y. ^t, Golder, Vera ^u, Chong, Benjamin F. ^v, Pons-Estel, Guillermo ^w, Chasset, François ^x, Arnaud, Laurent ^{y, ⁎}

Source: In Autoimmunity Reviews 30 April 2025 24(5)

2022 American College of Rheumatology Guideline for Vaccinations in Patients With Rheumatic and Musculoskeletal Diseases

Authors: Bass, Anne R., Chakravarty, Eliza, Akl, Elie A., Bingham, Clifton O., Calabrese, Leonard, Cappelli, Laura C., Johnson, Sindhu R., Imundo, Lisa F., Winthrop, Kevin L., Arasaratnam, Reuben J., Baden, Lindsey R., Berard, Roberta, Bridges, S. Louis, Cheah, Jonathan T. L., Curtis, Jeffrey R., Ferguson, Polly J., Hakkarinen, Ida, Onel, Karen B., Schultz, Grayson, Sivaraman, Vidya, Smith, Benjamin J., Sparks, Jeffrey A., Vogel, Tiphanie P., Williams, Eleanor Anderson, Calabrese, Cassandra, Cunha, Joanne S., Fontanarosa, Joann, Gillispie‐Taylor, Miriah C., Gkrouzman, Elena, Iyer, Priyanka, Lakin, Kimberly S., Legge, Alexandra, Lo, Mindy S., Lockwood, Megan M., Sadun, Rebecca E., Singh, Namrata, Sullivan, Nancy, Tam, Herman, Turgunbaev, Marat, Turner, Amy S., Reston, James

Source: Arthritis & rheumatology. 75(3):333-348

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100185306058.0x000001&indx=1&recIds=ETOCvdc_100185306058.0x000001

Association of the Systemic Lupus International Collaborating Clinics Frailty Index and Damage Accrual in Longstanding Systemic Lupus Erythematosus

Authors: Lima, Kaitlin, Legge, Alexandra, Hanly, John G., Lee, Jungwha, Song, Jing, Chung, Anh, Ramsey‐Goldman, Rosalind

Source: Arthritis care & research. 75(3):578-584

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100182609326.0x000001&indx=1&recIds=ETOCvdc_100182609326.0x000001

Evaluating the Construct of Damage in Systemic Lupus Erythematosus

Authors: Johnson, Sindhu R., Gladman, Dafna D., Brunner, Hermine I., Isenberg, David, Clarke, Ann E., Barber, Megan R. W., Arnaud, Laurent, Fortin, Paul R., Mosca, Marta, Voskuyl, Alexandre E., Manzi, Susan, Aranow, Cynthia, Askanase, Anca, Alarcón, Graciela S., Bae, Sang‐Cheol, Costedoat‐Chalumeau, Nathalie, English, Jessica A., Pons‐Estel, Guillermo J., Pons‐Estel, Bernardo A., Gilman, Rebecca, Ginzler, Ellen M., Hanly, John G., Jacobsen, Soren, Kalunian, Kenneth, Kamen, Diane L., Lambalgen, Chynace, Legge, Alexandra, Lim, S. Sam, Mak, Anselm, Morand, Eric F., Peschken, Christine A., Petri, Michelle, Rahman, Anisur, Ramsey‐Goldman, Rosalind, Reynolds, John A., Romero‐Diaz, Juanita, Ruiz‐Irastorza, Guillermo, Sanchez‐Guerrero, Jorge, Svenungsson, Elisabet, Touma, Zahi, Urowitz, Murray, Vinet, Evelyne, Vollenhoven, Ronald F., Waldhauser, Heather, Wallace, Daniel J., Zoma, Asad, Bruce, Ian N.

Source: Arthritis care & research. 75(5):998-1006

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100181407921.0x000001&indx=1&recIds=ETOCvdc_100181407921.0x000001

External validation of the Systemic Lupus International Collaborating Clinics Frailty Index as a predictor of adverse health outcomes in systemic lupus erythematosus

Authors: Legge, Alexandra, Malone, Alicia, Hanly, John G

Source: Rheumatology. 61(5):1919-1927

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100155638393.0x000001&indx=1&recIds=ETOCvdc_100155638393.0x000001

Prediction of Hospitalizations in Systemic Lupus Erythematosus Using the Systemic Lupus International Collaborating Clinics Frailty Index

Authors: Legge, Alexandra, Kirkland, Susan, Rockwood, Kenneth, Andreou, Pantelis, Bae, Sang‐Cheol, Gordon, Caroline, Romero‐Diaz, Juanita, Sanchez‐Guerrero, Jorge, Wallace, Daniel J., Bernatsky, Sasha, Clarke, Ann E., Merrill, Joan T., Ginzler, Ellen M., Fortin, Paul R., Gladman, Dafna D., Urowitz, Murray B., Bruce, Ian N., Isenberg, David A., Rahman, Anisur, Alarcón, Graciela S., Petri, Michelle, Khamashta, Munther A., Dooley, M. A., Ramsey‐Goldman, Rosalind, Manzi, Susan, Zoma, Asad A., Aranow, Cynthia, Mackay, Meggan, Ruiz‐Irastorza, Guillermo, Lim, S. Sam, Inanc, Murat, Vollenhoven, Ronald F., Jonsen, Andreas, Nived, Ola, Ramos‐Casals, Manuel, Kamen, Diane L., Kalunian, Kenneth C., Jacobsen, Søren, Peschken, Christine A., Askanase, Anca, Hanly, John G.

Source: Arthritis care & research. 74(4):638-647

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100145471818.0x000001&indx=1&recIds=ETOCvdc_100145471818.0x000001

Dry and dusty outback: infant botulism.

Authors: Grant, Patricia, Legge, Alexandra A., Gonzalez, Aranzazu, Carmo, Kathryn Browning

Source: BMJ Case Reports; Feb2025, Vol. 18 Issue 2, p1-4, 4p

Physician Global Assessment International Standardisation COnsensus in Systemic Lupus Erythematosus: the PISCOS study

Authors: Appenzeller, Simone, Aranow, Cynthia, Askanase, Anca, Avcin, Tadej, Bae, Sang-Cheol, Bertsias, George, Bonfa, Eloisa, Cairoli, Ernesto, Cardiel, Mario H, Cervera, Ricard, Chasset, François, Chizzolini, Carlo, Clarke, Ann E, Conti, Fabrizio, Costedoat-Chalumeau, Nathalie, Czirják, László, Doria, Andrea, Dörner, Thomas, Espinosa, Gerard, Fischer-Betz, Rebecca, Garcìa, Mercedes, Gladman, Dafna D, González, Luis A, Gunnarsson, Iva, Hamijoyo, Laniyati, Hanly, John G, Hasni, Sarfaraz A, Houssiau, Frédéric A, Inanç, Murat, Inês, Luís S, Isenberg, David, Jacobsen, Soren, Jan Wu, Yeong-Jian, Kaneko, Yuko, Katsumata, Yasuhiro, Lau, Chak S, Legge, Alexandra C, Lerang, Karoline, Limper, Maarten, Louthrenoo, Worawit, Luo, Shue-Fen, Marinho, António, Massardo, Loreto, Mathian, Alexis, Mosca, Marta, Nikpour, Mandana, Pego-Reigosa, José M, Peschken, Christine A, Pons-Estel, Bernardo A, Pons-Estel, Guillermo J, Rahman, Anisur, Rednic, Simona, Ribi, Camillo, Ruiz-Irastorza, Guillermo, Sato, Emilia I, Saxena, Amit, Schneider, Matthias, Sebastiani, Gian Domenico, Strand, Vibeke, Svenungsson, Elisabet, Tanaka, Yoshiya, Tazi Mezalek, Zoubida, Tee, Michael L, Tincani, Angela, Touma, Zahi, Troldborg, Anne, Vasconcelos, Carlos, Vinet, Évelyne, Vital, Edward M, Voskuyl, Alexandre E, Voss, Anne, Wallace, Daniel, Ward, Michael, Zamora, Leonid D, Piga, Matteo, Chessa, Elisabetta, Morand, Eric F, Ugarte-Gil, Manuel F, Tektonidou, Maria, van Vollenhoven, Ronald, Petri, Michelle, Arnaud, Laurent ^*

Source: In The Lancet Rheumatology June 2022 4(6):e441-e449

Relationship between p63 and p53 expression in Merkel cell carcinoma and corresponding abnormalities in TP63 and TP53: a study and a proposal

Authors: DeCoste, Ryan C., Carter, Michael D., Pasternak, Sylvia, Fleming, Kirsten E., Gaston, Daniel, Legge, Alexandra, Ly, Thai Yen, Walsh, Noreen M.

Source: In Human Pathology November 2021 117:31-41

Recent advances in the diagnosis and management of neuropsychiatric lupus.

Authors: Legge, Alexandra C.^1,2 (AUTHOR), Hanly, John G.¹ (AUTHOR) john.hanly@nshealth.ca

Source: Nature Reviews Rheumatology. Nov2024, Vol. 20 Issue 11, p712-728. 17p.

Subject Terms: *SYSTEMIC lupus erythematosus, *SYMPTOMS, *CLINICAL trials, *QUALITY of life, *MEDICAL personnel

35 - Lupus and the nervous system: Clinical Presentation, Diagnosis, and Treatment

Authors: Legge, Alexandra, Hanly, John G.

Source: In Dubois' Lupus Erythematosus and Related Syndromes Edition: Tenth Edition. 2025:476-504

Prediction of Damage Accrual in Systemic Lupus Erythematosus Using the Systemic Lupus International Collaborating Clinics Frailty Index

Authors: Legge, Alexandra, Kirkland, Susan, Rockwood, Kenneth, Andreou, Pantelis, Bae, Sang‐Cheol, Gordon, Caroline, Romero‐Diaz, Juanita, Sanchez‐Guerrero, Jorge, Wallace, Daniel J., Bernatsky, Sasha, Clarke, Ann E., Merrill, Joan T., Ginzler, Ellen M., Fortin, Paul R., Gladman, Dafna D., Urowitz, Murray B., Bruce, Ian N., Isenberg, David A., Rahman, Anisur, Alarcón, Graciela S., Petri, Michelle, Khamashta, Munther A., Dooley, M. A., Ramsey‐Goldman, Rosalind, Manzi, Susan, Zoma, Asad A., Aranow, Cynthia, Mackay, Meggan, Ruiz‐Irastorza, Guillermo, Lim, S. Sam, Inanc, Murat, Vollenhoven, Ronald F., Jonsen, Andreas, Nived, Ola, Ramos‐Casals, Manuel, Kamen, Diane L., Kalunian, Kenneth C., Jacobsen, Soren, Peschken, Christine A., Askanase, Anca, Hanly, John G.

Source: Arthritis & rheumatology. 72(4):658-666

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100106661814.0x000001&indx=1&recIds=ETOCvdc_100106661814.0x000001

Using the Concept of Frailty to Understand Variability in Health Outcomes Among Individuals with Systemic Lupus Erythematosus

Authors: Legge, Alexandra, Hanly, John G.

Source: Current treatment options in rheumatology. 6(3):268-281

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100172434397.0x000001&indx=1&recIds=ETOCvdc_100172434397.0x000001

Treating antineutrophil cytoplasmic antibody-associated vasculitis in frail older adults

Authors: Legge, Alexandra

Source: In The Lancet Rheumatology November 2024 6(11):e737-e739

Evaluating the Properties of a Frailty Index and Its Association With Mortality Risk Among Patients With Systemic Lupus Erythematosus

Authors: Legge, Alexandra, Kirkland, Susan, Rockwood, Kenneth, Andreou, Pantelis, Bae, Sang‐Cheol, Gordon, Caroline, Romero‐Diaz, Juanita, Sanchez‐Guerrero, Jorge, Wallace, Daniel J., Bernatsky, Sasha, Clarke, Ann E., Merrill, Joan T., Ginzler, Ellen M., Fortin, Paul, Gladman, Dafna D., Urowitz, Murray B., Bruce, Ian N., Isenberg, David A., Rahman, Anisur, Alarcón, Graciela S., Petri, Michelle, Khamashta, Munther A., Dooley, M. A., Ramsey‐Goldman, Rosalind, Manzi, Susan, Steinsson, Kristjan, Zoma, Asad A., Aranow, Cynthia, Mackay, Meggan, Ruiz‐Irastorza, Guillermo, Lim, S. Sam, Inanc, Murat, Vollenhoven, Ronald F., Jonsen, Andreas, Nived, Ola, Ramos‐Casals, Manuel, Kamen, Diane L., Kalunian, Kenneth C., Jacobsen, Soren, Peschken, Christine A., Askanase, Anca, Hanly, John G.

Source: Arthritis & rheumatology. 71(8):1297-1307

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100094975719.0x000001&indx=1&recIds=ETOCvdc_100094975719.0x000001

Comparison of two frailty definitions in women with systemic lupus erythematosus.

Authors: Lieber, Sarah B, Nahid, Musarrat, Legge, Alexandra, Rajan, Mangala, Lipschultz, Robyn A, Lin, Myriam, Reid, M Carrington, Mandl, Lisa A

Source: Rheumatology; May2024, Vol. 63 Issue 5, p1384-1390, 7p

Subject Terms: CROSS-sectional method, SELF-evaluation, RESEARCH funding, DISEASE duration, FRAIL elderly, SYSTEMIC lupus erythematosus, SEVERITY of illness index, DISEASE prevalence, DESCRIPTIVE statistics, ODDS ratio, STATISTICS, WOMEN'S health, HEALTH outcome assessment, COMPARATIVE studies, CONFIDENCE intervals, PHENOTYPES, EVALUATION, DISEASE complications

Geographic Terms: UNITED States

Recommendations for physical activity and exercise in persons living with Systemic Lupus Erythematosus (SLE): consensus by an international task force.

Authors: Blaess, Julien, Geneton, Sophie, Goepfert, Thibaut, Appenzeller, Simone, Bordier, Gabriel, Davergne, Thomas, Fuentes, Yurilis, Haglo, Håvard, Hambly, Karen, Kinnett-Hopkins, Dominique, Kuei-Ying Su, Legge, Alexandra, Li, Linda, Mak, Anselm, Padjen, Ivan, Sciascia, Savino, Sheikh, Saira Z., Soriano-Maldonado, Alberto, Ugarte-Gil, Manuel F., Md Yusof, Md Yuzaiful

Source: RMD Open; Apr2024, Vol. 10 Issue 2, p1-9, 9p

Contributors

Authors: Abida, Rym, Aftab, Iqra, Ahearn, Joseph M., Alarcón, Graciela S., Amarnani, Abhimanyu, Askanase, Anca, Atisha-Fregoso, Yemil, Aviña-Zubieta, J. Antonio, Bacalao, Maria, Baer, Alan N., Ben-Zvi, Ayal, Bernatsky, Sasha, Bichile, Tanmayee, Blanco, Irene, Bowman, Simon, Bruce, Ian N., Brunner, Hermine I., Bukiri, Heather, Buyon, Jill P., Cabling, Marven G., Chaichian, Yashaar, Chakravarty, Eliza F., Choi, May Y., Chong, Benjamin F., Cohan, Pejman, Cohen, Hannah, Costenbader, Karen H., Crispín, José C., Crow, Mary K., Daftarian, Narsis, Dall’Era, Maria, Davidson, Anne, Diamond, Betty, Drenkard, Cristina, Dumusc, Alexandre, Dvorkina, Olga, Elkon, Keith B., Esdaile, John M., Farina, Nicola, Jimenez, Dominique Feterman, Fisher, Benjamin A., Forbess, Lindsy J., Fox, Carla M., Fox, Robert I., Frame, Elizabeth W., Friedman, Deborah, Furie, Richard, Ghetie, Daniela, Giles, Ian I., Ginzler, Ellen M., Guthridge, Joel M., Hagiwara, Audrey M., Hahn, Bevra Hannahs, Hanly, John G., Hiepe, Falk, Hile, Grace A., Hou, Guojun, Humrich, Jens Y., Imundo, Lisa, Ioannou, Yiannis, Isenberg, David A., Ishimori, Mariko L., Izmirly, Peter M., James, Judith A., Jefferies, Caroline A., Jolly, Meenakshi, Kahlenberg, J. Michelle, Kalunian, Kenneth, Kamen, Diane L., Karim, Samiha T., Karp, David R., Karpouzas, George A., Kehl, Amy, Kilian, Adam, Kim, Alfred H.J., Kirou, Kyriakos A., Kolasinski, Sharon L., Kono, Dwight H., Kono, Michihito, Cava, Antonio La, Lee, Christine H., Legge, Alexandra, Lim, Lyndell L., Lim, S. Sam, Liu, Chau-Ching, Lood, Christian, Mak, Anselm, Manocha, Sonia, Manzi, Susan, Mariette, Xavier, McMahon, Maureen A., Means, Terry K., Mejia-Vilet, Juan M., Mendel, Arielle, Moore, Erica, Moore, Richard E., Morand, Eric, Murphy, Grainne, Nataraja, Champa, Nayar, Saba, Niewold, Timothy B., Nocturne, Gaetane, Nowling, Tamara K., Oates, Jim C., Oberst, Andrew, Ogbu, Ekemini A., Olsen, Nancy J., Parker, Ben, Pasadhika, Sirichai, Perl, Andras, Petri, Michelle, Pimentel-Quiroz, Victor R., Putterman, Chaim, Rahman, Anisur, Riemekasten, Gabriela, Rosenbaum, James T., Rovin, Brad H., Sammaritano, Lisa R., Sandhu, Vaneet K., Schuler, Andrew, Sheikh, Saira Z., Shen, Nan, Shen, Yiwei, Silverman, Gregg J., Skaggs, Brian, Su, Valerie L., Sun, Enid Y., Tang, Yuanjia, Tohidi-Esfahani, Ibrahim, Topilow, James, Torralba, Karina D., Tsao, Betty P., Tsokos, George C., Ugarte-Gil, Manuel F., Vara, Emily L., Venuturupalli, Swamy, Volkmann, Elizabeth R., Wagner, Catriona A., Wainwright, Benjamin, Wallace, Daniel J., Wang, Runci, Weinberg, Stacy, Werth, Victoria P., Xiang, Chunyan, Yang, Wanling, Yazdany, Jinoos, Yiu, Gloria, Zhang, Yutong, Zickuhr, Lisa, Zou, Yong-Rui

Source: In Dubois' Lupus Erythematosus and Related Syndromes Edition: Tenth Edition. 2025:viii-xiv

Dr. Roberts et al reply.

Authors: Roberts, Janet H., Gunn, Cheri, Mackinnon, Jennifer E., Parlee, Susan, Bakowsky, Volodko, Taylor, Trudy, Barber, Claire E. H., Hanly, John G., Legge, Alexandra

Source: Journal of Rheumatology; Feb2025, Vol. 52 Issue 2, p195-196, 2p

Subject Terms: MEDICAL personnel, MEDICAL quality control, BRITISH kings & rulers, QUEENS, PATIENT experience