Through the Looking Glass: A Data Lens on Health of People With Intellectual and Developmental Disabilities.

Authors: Krahn, Gloria L.¹, Gloria.Krahn@oregonstate.edu, Havercamp, Susan M.², Bonardi, Alexandra³

Source: Intellectual & Developmental Disabilities; Dec2024, Vol. 62 Issue 6, p433-445, 13p

Research About Us, With Us: An Inclusive Research Case Study.

Authors: Buck, Andrew S.¹, Chapman, Richard², Krahn, Gloria L.³, Brown, Christine¹, Gertz, Braden¹, Havercamp, Susan M.¹

Source: Intellectual & Developmental Disabilities; Aug2024, Vol. 62 Issue 4, p260-273, 14p

Putting “ME” into measurement: Adapting self-report health measures for use with individuals with intellectual disability

Authors: Walton, Katherine, Krahn, Gloria L., Buck, Andrew, Andridge, Rebecca, Lecavalier, Luc, Hollway, Jill A., Davies, Daniel K., Arnold, L. Eugene, Havercamp, Susan M.

Source: In Research in Developmental Disabilities September 2022 128

Working with Adults with Intellectual Disability and Clinicians to Advance Mental Health Treatment: Informing Practice Guidelines and Research.

Authors: Witwer, Andrea N., Rosencrans, Margaret E., Taylor, Christopher A., Cobranchi, Chelsea, Krahn, Gloria L., Havercamp, Susan M.

Source: Journal of Mental Health Research in Intellectual Disabilities; Jan-Mar2025, Vol. 18 Issue 1, p1-29, 29p

Subject Terms: MENTAL health services, INTELLECTUAL disabilities, PATIENT-professional relations, GROUPOIDS, GROUP theory

Invisible populations: Who is missing from research in intellectual disability?

Authors: Rosencrans, Margaret, Tassé, Marc J., Kim, Minje, Krahn, Gloria L., Bonardi, Alexandra, Rabidoux, Paula, Bourne, Mary Lou, Havercamp, Susan M. ^*

Source: In Research in Developmental Disabilities December 2021 119

Identifying People with Intellectual and Developmental Disabilities in National Population Surveys

Authors: Havercamp, Susan M., Krahn, Gloria L., Larson, Sheryl A., Fujiura, Glenn, Goode, Tawara D., Kornblau, Barbara L.

Source: Intellectual and Developmental Disabilities. Oct 2019 57(5):376-389.

Peer Reviewed: Y

Page Count: 14

Descriptors: National Surveys, Intellectual Disability, Developmental Disabilities, Disability Identification, Incidence, Health, Adults

Assessment and Survey Identifiers: National Health Interview Survey

What Matters in Population Health and How We Count It among People with Intellectual and Developmental Disabilities

Authors: Havercamp, Susan M., Krahn, Gloria L.

Source: Intellectual and Developmental Disabilities. Oct 2019 57(5):347-356.

Peer Reviewed: Y

Page Count: 10

Sponsoring Agency: Centers for Disease Control and Prevention (DHHS/PHS)

Descriptors: Intellectual Disability, Developmental Disabilities, Population Groups, Adults, Public Health, Incidence, Data Collection, Accuracy, Justice

A Call for Better Data on Prevalence and Health Surveillance of People with Intellectual and Developmental Disabilities

Authors: Krahn, Gloria L.

Source: Intellectual and Developmental Disabilities. Oct 2019 57(5):357-375.

Peer Reviewed: Y

Page Count: 19

Descriptors: Health Promotion, Data, Incidence, Intellectual Disability, Developmental Disabilities, Well Being

From Invisible to Visible to Valued: Improving Population Health of People With Intellectual and Developmental Disabilities

Authors: Krahn, Gloria L., Havercamp, Susan M.

Source: Intellectual and developmental disabilities. 57(5):476-481

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCRN621645857&indx=1&recIds=ETOCRN621645857

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It's time to reconsider how we define health: Perspective from disability and chronic condition

Authors: Krahn, Gloria L., Robinson, Ann, Murray, Alexa J., Havercamp, Susan M.

Source: Disability and health journal. 14(4)

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100139403414.0x000001&indx=1&recIds=ETOCvdc_100139403414.0x000001

Book Review

Authors: Krahn, Gloria L.

Source: Disability and health journal. 14(4)

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100162072374.0x000001&indx=1&recIds=ETOCvdc_100162072374.0x000001

Health Disparities of Adults with Intellectual Disabilities: What Do We Know? What Do We Do?

Authors: Krahn, Gloria L., Fox, Michael H.

Source: Journal of Applied Research in Intellectual Disabilities. Sep 2014 27(5):431-446.

Peer Reviewed: Y

Page Count: 16

Descriptors: Health, Mental Retardation, Adults, Research Methodology, Guidelines, Health Services, Mixed Methods Research, Decision Making, Policy Formation, Educational Policy, Social Influences, Models, Access to Health Care, Disadvantaged

Chapter Four - Health Surveillance and People with Intellectual Disabilities

Authors: Hatton, Chris, Bonardi, Alexandra, Emerson, Eric, Fox, Michael H., Glover, Gyles, Krahn, Gloria L., Ouellette-Kuntz, Hélène, Turner, Sue

Source: In International Review of Research in Developmental Disabilities 2015 48:73-114

Drilling Deeper on the Impact of the Affordable Care Act on Disability-Related Health Care Access Disparities

Authors: Krahn, Gloria L.

Source: American journal of public health. 109(7):956-958

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCRN631279799&indx=1&recIds=ETOCRN631279799

Pap, Mammography, and Clinical Breast Examination Screening Among Women with Disabilities: A Systematic Review

Authors: Andresen, Elena M., Peterson-Besse, Jana J., Krahn, Gloria L., Walsh, Emily S., Horner-Johnson, Willi, Iezzoni, Lisa I.

Source: In Women's Health Issues July-August 2013 23(4):e205-e214

Family Life Goes On: Disability in Contemporary Families

Authors: Farrell, Anne F., Krahn, Gloria L.

Source: Family Relations, 2014 Feb 01. 63(1), 1-6.

Access URL: http://www.jstor.org/stable/43695327

A Cascade of Disparities: Health and Health Care Access for People with Intellectual Disabilities

Authors: Krahn, Gloria L., Hammond, Laura, Turner, Anne

Source: Mental Retardation and Developmental Disabilities Research Reviews. Jan-Feb 2006 12(1):70-82.

Peer Reviewed: Y

Page Count: 13

Descriptors: Health Services, Health Promotion, Mental Retardation, Caregivers, Identification, Access to Health Care, Intervention, Health Needs, Public Policy, Vision, Dental Health, Prevention, Delivery Systems, Cultural Influences, Economic Factors, Hearing (Physiology)

Health Surveillance and People with Intellectual Disabilities

Authors: Hatton, Chris, Bonardi, Alexandra, Emerson, Eric, Fox, Michael H., Glover, Gyles, Krahn, Gloria L., Ouellette-Kuntz, Hélène, Turner, Sue

Source: International review of research in developmental disabilities. 48:73-114

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCRN602811485&indx=1&recIds=ETOCRN602811485

Using Intervention Mapping to Promote the Receipt of Clinical Preventive Services Among Women With Physical Disabilities

Authors: Suzuki, Rie, Peterson, Jana J., Weatherby, Amanda V., Buckley, David I., Walsh, Emily S., Kailes, June Isaacson, Krahn, Gloria L.

Source: Health Promotion Practice, 2012 Jan 01. 13(1), 106-115.

Access URL: https://www.jstor.org/stable/26737998