Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome

Authors: Pearson, Gail, Stylianou, Mario, Mahony, Lynn, Sleeper, Lynn, Tennstedt, Sharon, Colan, Steven, Klein, Gloria, Guey, Lin, Wruck, Lisa, Travison, Thomas, Chen, Shan, Gerstenberger, Eric, Olesker, Tanya, Teitel, David F., Newburger, Jane, King, Martha, Dunbar-Masterson, Carolyn, Posa, Andrea, Nang, Quincy, Hass, Cara, Hsu, Daphne, Lai, Wyman, Hellenbrand, William, Printz, Beth, Devereux, Richard, Sherwood, Greysi, Vetter, Victoria, Paridon, Stephen, Gleason, Marie, Mirarchi, Nicole, DiLullo, Sandra, Ejembi, Agbenu, Morgan, Ruth, Benson, D. Woodrow, Border, William, Cnota, James, Heydarian, Haleh, James, Jeanne, Hogan, Kathryn, Bogenschutz, Lois, Benham, Mary Pat, Barnard, Teresa, Anderson, Page A.W., Li, Jennifer S., Wechsler, Stephanie Burns, Cook, Amanda, Sang, Charles, Covitz, Wesley, Sutton, Lori Jo, Crawford, Kari, Roberts, Summer, Palmer, Deborah, Saul, J. Philip, Atz, Andrew, Forbus, Geoffrey, Infinger, Patricia, Choudhury, Aparna, Minich, LuAnn, Williams, Richard, Yetman, Angela, Shearrow, Marian, Robinson, Michelle, Porter, June, McCrindle, Brian, Russell, Jennifer, Colman, Jack, Khaikin, Svetlana, Slater, Nancy, Dietz, Harry C., Ravekes, William J., Rykiel, Mary, Sparks, Elisabeth, MacCarrick, Gretchen, Leadroot, Jennifer, Canter, Charles, Sharkey, Angela, Braverman, Alan, Rainey, Cheryl, Jefferies, John L., Slesnick, Timothy, Martinez, Hugo, Menesses, Andres, Tenende, Tunu, Liang, David, Merkel, Elisabeth, Loeys, Bart, De Backer, Julie, Cobben, Jan Maarten, Sluysmans, Thierry, De Paepe, Anne, Gelb, Bruce, Srivastava, Shubhika, Mendiz-Ramdeen, Tejani, Weismann, Constance, Lawrence, Emily, Chin, Stephanie, Ko, Helen, Le Yau, Jen, Webber, Steven, Drant, Stacey, Luce, Jane, Stiegler, Kevin, Kinnard, Cheryl, Stewart, Cheri, Sommers, Sue, Madison, Carol, Young, Luciana, Domenico, Megan, Waitzman, Kathryn, Lozano, Carla, Baker, Charles, Zielinski, Erin, Velden, Heidi Vander, Overman, Alison, Lewin, Mark, Payne, Amy, Rimoin, David, Pariani, Mitchel, Siegel, Robert, Rafique, Asim, Grossfeld, Paul, Smith, Arlene, McLees-Palinkas, Terri, Colan, Steven D., Tierney, Elif Seda Selamet, Trevey, Shari, Rivera, Marga, Artman, Michael, Austin, Erle, Baldwin, H. Scott, Bernstein, Daniel, Feltes, Timothy, Johnson, Julie, Klitzner, Thomas, Krischer, Jeffrey, Matherne, G. Paul, Zahka, Kenneth G., Kugler, John, Driscoll, David J., Galantowicz, Mark, Hunsberger, Sally A., Knight, Thomas J., Taylor, Holly, Handisides, Jill C., Hollenbeck-Pringle, Danielle, Uzark, Karen, Trachtenberg, Felicia L., Pemberton, Victoria L., Atz, Teresa W., Bradley, Timothy J., Cappella, Elizabeth, De Nobele, Sylvia, Groh, Georgeann Keh-Teng, Hamstra, Michelle S., Korsin, Rosalind, Levine, Jami C., Lindauer, Bergen, Liou, Aimee, Neal, Meghan K. Mac, Markham, Larry W., Morrison, Tonia, Mussatto, Kathleen A., Olson, Aaron K., Pierpont, Mary Ella M., Pyeritz, Reed E., Radojewski, Elizabeth A., Roman, Mary J., Xu, Mingfen, Lacro, Ronald V. ^*

Source: In The Journal of Pediatrics January 2019 204:250-255

Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation

Authors: Pearson, Gail, Stylianou, Mario, Kaltman, Jonathan, Sleeper, Lynn, Colan, Steven, Gallagher, Dianne, Mahony, Lynn, Newburger, Jane, Breitbart, Roger, Dunbar-Masterson, Carolyn, Buckley, Lisa-Jean, Trainor, Bethany, Korsin, Rosalind, Shaddy, Robert, Gaynor, J. William, Paridon, Stephen M., Morrison, Tonia, Mirarchi, Nicole, Li, Jennifer S., Barker, Piers, Xu, Mingfen, Saul, J. Philip, Infinger, Patricia, Frampton, Ann Harvey, Minich, LuAnn, Williams, Richard, Lambert, Linda, McCrindle, Brian, Radojewski, Elizabeth, Khaikin, Svetlana, Walter, Patricia, Marino, Bradley, Artman, Michael, Feltes, Timothy, Johnson, Julie, Krischer, Jeffrey, Matherne, G. Paul, Cook, Nakela, Kugler, John, Gordon, David, Driscoll, David J., Galantowicz, Mark, Hunsberger, Sally A., Taylor, Holly, Knight, Thomas J., Webb, Catherine L., Uzark, Karen, Zak, Victor, Shrader, Peter, McCrindle, Brian W., Varni, James W., Daniels, Kaitlyn, Handisides, Jill, Hill, Kevin D., Lambert, Linda M., Margossian, Renee, Pemberton, Victoria L., Lai, Wyman W., Atz, Andrew M.

Source: In The Journal of Pediatrics March 2016 170:166-172

Association of Impaired Linear Growth and Worse Neurodevelopmental Outcome in Infants with Single Ventricle Physiology: A Report from the Pediatric Heart Network Infant Single Ventricle Trial

Authors: Ravishankar, Chitra, Zak, Victor, Williams, Ismee A., Bellinger, David C., Gaynor, J. William, Ghanayem, Nancy S., Krawczeski, Catherine D., Licht, Daniel J., Mahony, Lynn, Newburger, Jane W., Pemberton, Victoria L., Williams, Richard V., Sananes, Renee, Cook, Amanda L., Atz, Teresa, Khaikin, Svetlana, Hsu, Daphne T.

Source: In The Journal of Pediatrics February 2013 162(2):250-256

Transplantation-Free Survival and Interventions at 3 Years in the Single Ventricle Reconstruction Trial

Authors: Newburger, Jane W., Sleeper, Lynn A., Frommelt, Peter C., Pearson, Gail D., Mahle, William T., Chen, Shan, Dunbar-Masterson, Carolyn, Mital, Seema, Williams, Ismee A., Ghanayem, Nancy S., Goldberg, Caren S., Jacobs, Jeffrey P., Krawczeski, Catherine D., Lewis, Alan B., Pasquali, Sara K., Pizarro, Christian, Gruber, Peter J., Atz, Andrew M., Khaikin, Svetlana, Gaynor, J. William, Ohye, Richard G.

Source: Circulation. 129(20):2013-2020

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100030394628.0x000001&indx=1&recIds=ETOCvdc_100030394628.0x000001

Prenatal diagnosis and risk factors for preoperative death in neonates with single right ventricle and systemic outflow obstruction: Screening data from the Pediatric Heart Network Single Ventricle Reconstruction Trial ∗

Authors: Atz, Andrew M., Travison, Thomas G., Williams, Ismee A., Pearson, Gail D., Laussen, Peter C., Mahle, William T., Cook, Amanda L., Kirsh, Joel A., Sklansky, Mark, Khaikin, Svetlana, Goldberg, Caren, Frommelt, Michele, Krawczeski, Catherine, Puchalski, Michael D., Jacobs, Jeffrey P., Baffa, Jeanne M., Rychik, Jack, Ohye, Richard G.

Source: In The Journal of Thoracic and Cardiovascular Surgery 2010 140(6):1245-1250

Evaluation of the Utility of Radiography in Acute Bronchiolitis

Authors: Schuh, Suzanne, Lalani, Amina, Allen, Upton, Manson, David, Babyn, Paul, Stephens, Derek, MacPhee, Shannon, Mokanski, Matthew, Khaikin, Svetlana, Dick, Paul

Source: In The Journal of Pediatrics 2007 150(4):429-433

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LINEAR GROWTH FAILURE IS ASSOCIATED WITH WORSE NEURODEVELOPMENTAL OUTCOME IN INFANTS WITH SINGLE VENTRICLE PHYSIOLOGY

Authors: Ravishankar, Chitra, Zak, Victor, Bellinger, David, Cook, Amanda, Gaynor, J. William, Ghanayem, Nancy, Krawczeski, Catherine, Licht, Daniel J., Mahony, Lynn, Newburger, Jane, Pemberton, Victoria, Atz, Teresa, Khaikin, Svetlana, Sananes, Renee, Williams, Ismee A., Williams, Richard V., Hsu, Daphne

Source: Journal of the American College of Cardiology. 57(14):E420-E420

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100052166603.0x000001&indx=1&recIds=ETOCvdc_100052166603.0x000001

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Prenatal diagnosis and risk factors for preoperative death in neonates with single right ventricle and systemic outflow obstruction: Screening data from the Pediatric Heart Network Single Ventricle Reconstruction Trial^∗.

Authors: Atz, Andrew M., Travison, Thomas G., Williams, Ismee A., Pearson, Gail D., Laussen, Peter C., Mahle, William T., Cook, Amanda L., Kirsh, Joel A., Sklansky, Mark, Khaikin, Svetlana, Goldberg, Caren, Frommelt, Michele, Krawczeski, Catherine, Puchalski, Michael D., Jacobs, Jeffrey P., Baffa, Jeanne M., Rychik, Jack, Ohye, Richard G.

Source: Journal of Thoracic & Cardiovascular Surgery; Dec2010, Vol. 140 Issue 6, p1245-1250, 6p

Subject Terms: PRENATAL diagnosis, NEONATAL death, RIGHT heart ventricle, PREOPERATIVE period, CONGENITAL heart disease, MEDICAL statistics, BLOOD circulation disorders

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