Unlocking Engagement: Enhancing Participation in Research With Vulnerable Populations

Authors: Laura Rojas-Rozo, Geneviève Arsenault-Lapierre, Diane Dumaresq, Thérèse Trépanier, Paul Lea, Karen Myers Barnett, Denis O’Connor, Rosette Fernandez Loughlin, Kori Miskucza, Mary Beth Wighton, Claire Godard-Sebillotte, Andrea Gruneir, Jean-Baptiste Beuscart, Susan E. Bronskill, Nadia Sourial, Eric E. Smith, Jennifer Bethell, Isabelle Vedel, The COVID ROSA Research Team, Juanita Bacsu, Howard Bergman, Joanne Bracken, Matthieu Calafiore, Yves Couturier, Nouha Ben Gaied, Serge Gauthier, Mario Gregorio, Sid Feldman, Ngozi Iroanyah, Aaron Jones, Vladimir Khanassov, Julie Kosteniuk, Ginny Lane, Laura C. Maclagan, Carrie McAiney, Debra Morgan, Megan O’Connell, Manuel Montero Odasso, Lisa Poole, Jacqueline Quail, Pamela Roach, Dallas Seitz, Saskia Sivananthan, Natalia Smith, Machelle Wilchesky

Source: International Journal of Public Health, Vol 69 (2024)

Subject Terms: guide, dementia, vulnerability, patient engagement, participatory research, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://www.ssph-journal.org/articles/10.3389/ijph.2024.1606705/full; https://doaj.org/toc/1661-8564

Access URL: https://doaj.org/article/a0b89a59a22d4963b61a6a092a4d92ca

Services for older adults in rural primary care memory clinic communities and surrounding areas: a qualitative descriptive study

Authors: Valerie Elliot, Julie Kosteniuk, Megan E. O’Connell, Chelsie Cameron, Debra Morgan

Source: BMC Health Services Research, Vol 24, Iss 1, Pp 1-13 (2024)

Subject Terms: Rural, Older adults, Dementia, Programs, Services, Primary care, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/1472-6963

Access URL: https://doaj.org/article/9fe420baaa704b208f524319a7f10a8c

Perceptions and outcomes of an embedded Alzheimer Society First Link Coordinator in rural primary health care memory clinics

Authors: Debra G. Morgan, Julie Kosteniuk, Melanie Bayly

Source: BMC Health Services Research, Vol 24, Iss 1, Pp 1-14 (2024)

Subject Terms: Memory clinic, Rural, Dementia, Primary care, Care navigator, Team-based care, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/1472-6963

Access URL: https://doaj.org/article/798d19aedecf443db9959cc6f262437d

Rural-urban differences in use of health services before and after dementia diagnosis: a retrospective cohort study

Authors: Julie Kosteniuk, Beliz Acan Osman, Meric Osman, Jacqueline Quail, Naorin Islam, Megan E. O’Connell, Andrew Kirk, Norma Stewart, Chandima Karunanayake, Debra Morgan

Source: BMC Health Services Research, Vol 24, Iss 1, Pp 1-11 (2024)

Subject Terms: Dementia, Rural health, Health services, Aging, Physicians, Hospitals, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/1472-6963

Access URL: https://doaj.org/article/2928c3c83b1a43569f9d0b8f522bab84

Factors influencing sustainability and scale-up of rural primary healthcare memory clinics: perspectives of clinic team members

Authors: Debra Morgan, Julie Kosteniuk, Megan E. O’Connell, Dallas Seitz, Valerie Elliot, Melanie Bayly, Amanda Froehlich Chow, Chelsie Cameron

Source: BMC Health Services Research, Vol 22, Iss 1, Pp 1-19 (2022)

Subject Terms: Sustainability, Spread, Scaling up, Primary healthcare, Memory clinic, Rural, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/1472-6963

Access URL: https://doaj.org/article/37a940ef8df94160bdf8e4a8c6e1c095

Digital tools for delivery of dementia education for caregivers of persons with dementia: A systematic review and meta-analysis of impact on caregiver distress and depressive symptoms.

Authors: Andrea Scerbe, Megan E O'Connell, Arlene Astell, Debra Morgan, Julie Kosteniuk, Ivan Panyavin, Andrea DesRoches, Claire Webster

Source: PLoS ONE, Vol 18, Iss 5, p e0283600 (2023)

Subject Terms: Medicine, Science

File Description: electronic resource

Relation: https://doaj.org/toc/1932-6203

Access URL: https://doaj.org/article/a5d0947e185d4a718dd5e86549dd17d3

Health service use before and after dementia diagnosis: a retrospective matched case–control study

Authors: Debra Morgan, Julie Kosteniuk, Megan E O'Connell, Andrew Kirk, Norma J Stewart, Beliz Açan Osman, Meric Osman, Jacqueline M Quail, Naorin Islam

Source: BMJ Open, Vol 12, Iss 11 (2022)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/12/11/e067363.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/a299e201a79844359ea88f5b4f16b62a

Understanding and Improving the Care of Older Adults Living with Dementia Across Four Canadian Provinces during the COVID-19 Pandemic: A Mixed-Methods Study to Inform Policy and Practices

Authors: Isabelle Vedel, Geneviève Arsenault-Lapierre, Howard Bergman, Susan Bronskill, Yves Couturier, Claire Godard-Sebillotte, Mary Henein, Julie Kosteniuk, Vladimir Khanassov, Carrie McAiney, Debra Morgan, Nadia O’Brien, Megan O’Connell, Laura Rojas-Rozo, Dallas Seitz, Saskia Sivananthan, Eric Smith, Nadia Sourial, Machelle Wilchesky, COVID-ROSA Research Team

Source: Science of Nursing and Health Practices, Vol 4, Iss 1, Pp 1-15 (2021)

Subject Terms: dementia, health and social services use, covid-19, mixed-methods study, protocol, Nursing, RT1-120

File Description: electronic resource

Relation: https://www.erudit.org/en/journals/snahp/2021-v4-n1-snahp06099/1077989ar/; https://doaj.org/toc/2561-7516

Access URL: https://doaj.org/article/902c3182de87498bb657814f851dcec7

A stakeholder engagement strategy for an ongoing research program in rural dementia care: Stakeholder and researcher perspectives.

Authors: Debra Morgan, Julie Kosteniuk, Megan E O'Connell, Norma J Stewart, Andrew Kirk, Allison Cammer, Vanina Dal Bello-Haas, Duane P Minish, Valerie Elliot, Melanie Bayly, Amanda Froehlich Chow, Joanne Bracken, Edna Parrott, Tanis Bronner

Source: PLoS ONE, Vol 17, Iss 9, p e0274769 (2022)

Subject Terms: Medicine, Science

File Description: electronic resource

Relation: https://doaj.org/toc/1932-6203

Access URL: https://doaj.org/article/813754ba7dd34299821a1675f31c0dbb

Barriers and facilitators to development and implementation of a rural primary health care intervention for dementia: a process evaluation

Authors: Debra Morgan, Julie Kosteniuk, Megan E. O’Connell, Andrew Kirk, Norma J. Stewart, Dallas Seitz, Melanie Bayly, Amanda Froehlich Chow, Valerie Elliot, Jean Daku, Tracy Hack, Faye Hoium, Deb Kennett-Russill, Kristen Sauter

Source: BMC Health Services Research, Vol 19, Iss 1, Pp 1-18 (2019)

Subject Terms: Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s12913-019-4548-5; https://doaj.org/toc/1472-6963

Access URL: https://doaj.org/article/a31c771d45314c18bee9aa79df34244e

Correction to: Factors infuencing sustainability and scaleup of rural primary healthcare memory clinics: perspectives of clinic team members

Authors: Debra Morgan, Julie Kosteniuk, Megan E. O’Connell, Dallas Seitz, Valerie Elliot, Melanie Bayly, Amanda Froehlich Chow, Chelsie Cameron

Source: BMC Health Services Research, Vol 22, Iss 1, Pp 1-2 (2022)

Subject Terms: Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/1472-6963

Access URL: https://doaj.org/article/0a4c98d060904f02a1fcdeeb152118d7

Palliative and end-of-life care for people living with dementia in rural areas: A scoping review.

Authors: Valerie Elliot, Debra Morgan, Julie Kosteniuk, Melanie Bayly, Amanda Froehlich Chow, Allison Cammer, Megan E O'Connell

Source: PLoS ONE, Vol 16, Iss 1, p e0244976 (2021)

Subject Terms: Medicine, Science

File Description: electronic resource

Relation: https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0244976&type=printable; https://doaj.org/toc/1932-6203

Access URL: https://doaj.org/article/1eddd4bb70274f9da42a8169295d3950

Nurses who work in rural and remote communities in Canada: a national survey

Authors: Martha L. P. MacLeod, Norma J. Stewart, Judith C. Kulig, Penny Anguish, Mary Ellen Andrews, Davina Banner, Leana Garraway, Neil Hanlon, Chandima Karunanayake, Kelley Kilpatrick, Irene Koren, Julie Kosteniuk, Ruth Martin-Misener, Nadine Mix, Pertice Moffitt, Janna Olynick, Kelly Penz, Larine Sluggett, Linda Van Pelt, Erin Wilson, Lela Zimmer

Source: Human Resources for Health, Vol 15, Iss 1, Pp 1-11 (2017)

Subject Terms: Rural, Remote, Northern, Workforce, Nurses, Recruitment, Medicine (General), R5-920, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s12960-017-0209-0; https://doaj.org/toc/1478-4491

Access URL: https://doaj.org/article/23151785c9ca497d97493ecd87f69735

Communication tools and sources of education and information: a national survey of rural and remote nurses

Authors: Julie Kosteniuk, Norma J. Stewart, Erin C. Wilson, Kelly L. Penz, Ruth Martin-Misener, Debra G. Morgan, Chandima Karunanayake, Martha L. P. MacLeod

Source: Journal of the Medical Library Association, Vol 107, Iss 4 (2019)

Subject Terms: nurses, rural nursing, rural health services, nursing research, information seeking behavior, education, nursing, continuing, Bibliography. Library science. Information resources, Medicine

File Description: electronic resource

Relation: http://jmla.pitt.edu/ojs/jmla/article/view/632; https://doaj.org/toc/1536-5050; https://doaj.org/toc/1558-9439

Access URL: https://doaj.org/article/5c7a4cf1d73147cda480bdc1d4776a15

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Does early-stage intervention improve caregiver well-being or their ability to provide care to persons with mild dementia or mild cognitive impairment? A systematic review and meta-analysis.

Authors: Bayly, Melanie, ORCID 0000-0001-5285-839X. Canadian Centre for Health and Safety in Agriculture, University of Saskatchewan, Saskatoon, SK, Canada, melanie.bayly@usask.ca, Morgan, Debra, ORCID 0000-0002-6344-6822. Canadian Centre for Health and Safety in Agriculture, University of Saskatchewan, Saskatoon, SK, Canada, Elliot, Valerie. Canadian Centre for Health and Safety in Agriculture, University of Saskatchewan, Saskatoon, SK, Canada, Kosteniuk, Julie, ORCID 0000-0003-0232-7894. Canadian Centre for Health and Safety in Agriculture, University of Saskatchewan, Saskatoon, SK, Canada, Froehlich Chow, Amanda. School of Public Health, University of Saskatchewan, Saskatoon, SK, Canada, Peacock, Shelley. College of Nursing, University of Saskatchewan, Saskatoon, SK, Canada, O'Connell, Megan E., ORCID 0000-0001-6159-4322. Department of Psychology, University of Saskatchewan, Saskatoon, SK, Canada

Source: Psychology and Aging, Vol 36(7), Nov, 2021. pp. 834-854.

NLM Title Abbreviation: Psychol Aging

Publisher: US : American Psychological Association

Supplemental Data: Tables and Figures Internet

Publication Type: Journal; Peer Reviewed Journal

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Scoring algorithms for a computer-based cognitive screening tool: An illustrative example of overfitting machine learning approaches and the impact on estimates of classification accuracy.

Authors: Ursenbach, Jake. Department of Psychology, University of Saskatchewan, Saskatoon, SK, Canada, O'Connell, Megan E., ORCID 0000-0001-6159-4322. Department of Psychology, University of Saskatchewan, Saskatoon, SK, Canada, megan.oconnell@usask.ca, Neiser, Jennafer. Department of Computer Science, University of Saskatchewan, Saskatoon, SK, Canada, Tierney, Mary C.. Department of Family & Community Medicine, University of Toronto, Toronto, ON, Canada, Morgan, Debra. Canadian Centre for Health and Safety in Agriculture, University of Saskatchewan, Saskatoon, SK, Canada, Kosteniuk, Julie. Canadian Centre for Health and Safety in Agriculture, University of Saskatchewan, Saskatoon, SK, Canada, Spiteri, Raymond J.. Department of Computer Science, University of Saskatchewan, Saskatoon, SK, Canada

Source: Psychological Assessment, Vol 31(11), Nov, 2019. pp. 1377-1382.

NLM Title Abbreviation: Psychol Assess

Publisher: US : American Psychological Association

Other Journal Titles: Psychological Assessment: A Journal of Consulting and Clinical Psychology

Publication Type: Journal; Peer Reviewed Journal

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