Health, education, and social care provision after diagnosis of childhood visual disability

Authors: Solebo, Ameenat Lola, Teoh, Lucinda Jade, Sargent, Jenefer, Rahi, Jugnoo Sangeeta, Abbott, Joe, Abdullah, Wajda, Adam, Gill, Allen, Louise, Anderson, Christopher, Ansell, Karen, Ash, Isabel, Ashworth, Jane, Aslam, Sher, Astagi, Majunath, Ball, Colin, Balu, Rajesh, Barrett, Victoria, Bassi, Zahabiyah, Bates, Adam, Batra, Dushyant, Bell, Sarah, Belmour, Linda, Benzimra, James, Birrell, Ginny, Biswas, Susmito, Blaikie, Andrew, Blundell, Michael, Frieteaux, Les, Bos, Ewoud, Bowen, Pamela, Bowman, Richard, Boyle, Natalie, Bradbury, John, Bredow, Maria, Bregu, Marsel, Brennan, Rosie, Brittain, Paul, Buchanan, Charles, Bunce, Catey, Burgess, Priscilla, Burke, Cathie, Kate, Alexandra, Butcher, Jeremy, Butler, Lucilla, Cane, Clare, Chadwick, Cathryn, Charlton, Ruth, Choi, Jessy, Choleva, Vivi, Churchill, Amanda, Clarke, Michael, Clayton, Peter, Clifford, Luke, Connor, Alan, Victoria, Queen, Cresswell, Lyn, Dahlmann‐Noor, Annegret, D'Amore, Angela, Dattani, Mehul, Devlin, Anita, Dhir, Luna, Dorey, Suzanne, Drimmie, Fiona, Duke, Tina, Dutton, Gordon, Eaton, Fiona, Eaton, Megan, Eckersley, Danielle, Edelsten, Clive, Elderkin, Rachel, Ennis, Julia, Escardo‐Paton, Julia, Estephen, Ziad, Etuwewe, Onajite, Evans, Anthony, Ezekwe, Adjoa, Fairfield, Jenny, Falzon, Kevin, Ferguson, Allison, Fleck, Brian, Gainsborough, Mary, Galloway, Alexandra, Gerson‐Sofer, Naomi, Gibbon, Caspar, Gibson, Patricia, Goss, Kevin, Graham‐Evans, Katherine, Gray, Judith, Gregory, Anna, Gulati, Arun, Guy, Emma, Haddad, Diab, Haggerty, Helen, Haigh, Paul, Hale, Julia, Hamada, Samer, Hancox, Joanne, Hanna, Kerry, Harris, Sian, Harrison, Christine, Headland, Sophie, Heaton, Paul, Henderson, Robert, Hingorani, Melanie, Hirst, Zoe, Hogg, Claire, Hogler, Wolfgang, Holden, Roger, Hoole, Janice, Horridge, Karen, Howard, Delyth, Howells, Rachel, Irvine, Vanessa, Irving, Clare, Johnson, Nicola, Johnston, Ian, Jollands, Alice, Jones, David, Joseph, Annie, Joshi, Archana, Kandaswamy, Pugazhvendan, Kattakayam, Charles, Keenan, Joseph, Kelly, Anne, Kersey, James, Khan, Awais, Khaw, Peng, Kipioti, Tina, Kiran, Sadia, Kneen, Lesley, Kotagiri, Ajay, Kulshrestha, Richa, Lambley, Rosemary, Lavy, Tim, Lawson, Joanna, Lee, Vicki, Leitch, Jane, Lennon, Julie, Lipshen, Gabi, Lloyd, Chris, Loftus, John, Lomas, Tom, Long, Vernon, Mackinnon, Jane, MacRae, Mary, Mahmood, Usman, Maino, Anna, Maling, Sarah, Mansfield, David, Marder, Elizabeth, Markham, Richard, Marr, Jane, Marsh, Catherine, Maw, Anna, McCartney, Eleanor, McCullagh, Helen, McDonald, Anna, McPhee, Derek, Miall, Lawrence, Mistry, Shila, Moate, Benjamin, Mohan, Meyyammai, Moore, Helen, Moore, Will, Morgan, Nicola, Morton, Claire, Mulvihill, Alan, Nair, Ranjit, Newman, Bill, Nitsch, Christiane, O'Connell, Katy, Oluonye, Ngozi, Pai, Vittaldas, Palmer, Helen, Papadopoulos, Maria, Parkinson, Shelagh, Parmar, Bina, Parulekar, Manoj, Parvathareddy, Madhavi, Patel, Dipesh, Patel, Himanshu, Patel, Kamal, Petrone, Flaudia, Pilling, Rachel, Pollard, Sally, Puertas, Renata, Pysden, Karen, Quinn, Anthony, Quinn, Philip, Rachdan, Diyaa, Raina, Jyoti, Ramm, Laura, Rands, Catherine, Rao, Tekki, Ray, Mary, Reddy, Ashwin, Reilly, Sheilla, Rekha, Maralla, Richardson, Greg, Riordan, Andrew, Roberts, Nerys, Robertson, Helen, Robinson, Gillian, Rogers, Neil, Saeed, Shakir, Salmon, Caroline, Sarvananthan, Nagini, Schmoll, Conrad, Self, James, Shafiq, Ayad, Shah, Shilpa, Sharma, Vinod, Sharp, Jemima, Shaw, Julia, Shenoy, Manjula, Sleep, Tamsin, Smit, Elisa, Smyth, Katherine, Speedwell, Lynne, Spowart, Katherine, Stanga, Paulo, Stanley, Alison, Stanton, Alan, Steel, David, Stephen, John, Stewart, Catherine, Street, Jessica, Stucke, Sally, Sutherland, Shona, Tambe, Katya, Tandon, Anamika, Tappin, Alison, Taylor, Kate, Taylor, Robert, Teasdale, Katherine, Theodorou, Maria, Thomas, Gareth, Thomas, Megan, Thomas, Paula, Thompson, Dorothy, Thomson, Stephen, Thopte, Indrajit, Tiffin, Peter, Tillett, Angela, Traunecker, Heidi, Tsimpida, Maria, Van Someren, Vivienne, Venkatesh, Udupa, Vermaak, Zoe, Vincent, Michael, Walker, David, Walker, Simon, Walsh, Deidre, Walters, Bronwyn, Ward, Martin, Watson, Louise, Watts, Patrick, West, Siobhan, West, Stephanie, White, Cathy, White, Joy, Whitlingum, Gabriel, Williams, Cathy, Wilne, Sophie, Wilson, Janice, Wong, Chien, Woodbridge, Tamsin, Wright, Paul, Wyles, Martha, Wylie, Philip

Source: Developmental medicine & child neurology. 65(6):803-810

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100186408626.0x000001&indx=1&recIds=ETOCvdc_100186408626.0x000001

Vigabatrin with hormonal treatment versus hormonal treatment alone (ICISS) for infantile spasms: 18-month outcomes of an open-label, randomised controlled trial

Authors: Abdel Aziz, Maysara, Acharya, Triloknath, Adcock, Carolyn, Jones, Robert, Howells, Rachel, Marsh, Ben, Adejare, Kemi, Adiga, Rashmi, Wheater, Mary, Ahmed, Mansoor, Sawal, Mohammad, Goel, Chhavi, Ahmed, MAS, Alber, Michael, Wolff, Markus, Ruf, Susanne, Al-Kharusi, Asya, Al-Moasseb, Hassan, Arora, Ruchi, Beach, Richard, Atkinson, Patricia, Ayonrinde, Kunle, Bala, Pronab, Bamford, Nicola, Barakat, Nagi, Basheer, Nigel, Baxter, Peter, Mordekar, Santosh, Rittey, Chris, Borggraefe, Ingo, Borusiak, Peter, Cagnoli, Sabine, Brown, Richard, Calvert, Sophie, Cameron, Duncan, Chaniyil, Ramesh, Chinthapalli, Ravi, Chow, Gabriel, Whitehouse, William, Clarke, Vinodhini, Cooper, Chris, Datta, Alexane, D'Costa, Selwyn, de Goede, Christian, Basu, Helen, Deekollu, David, Della Marina, Adela, Dison, Penelope, Dunkley, Colin, Eaton, Megan, Ellison, Julie, Pugh, Robert, Fallon, Penny, Faza, Hani, Choonara, Imti, Morton, Richard, Ratnayaka, Mal, Ferrie, Colin, Freeman, Amanda, Warriner, Stephen, Garcia, Maria, Ghazavi, Malihe, Gibbon, Frances, Gibbs, John, Ginbey, Des, Guarino, Iolanda, Gupta, Rajesh, Hanlon, Mary, Harris, Siân, Munyard, Paul, Hemingway, Cheryl, Eltze, Christin, Kaliakatsos, Marios, Murugan, Velayutham, Robinson, Robert, Tan, Jeen, Hindley, Daniel, Hughes, Adrian, Hussain, Akmal, Boden, Greg, Hussain, Munir, Hussain, Nahin, Dabydeen, Lyvia, Irwin, Kate, Jacobs, Julia, Jauhari, Praveen, Minchom, Philip, Jones, Simon, Karenfort, Michael, Keimer, Reinhard, Kennedy, Colin, Kirkham, Fenella, Whitney, Andrea, Kirkpatrick, Martin, Jollands, Alice, Kneen, Rachel, Iyer, Anand, McTague, Amy, Spinty, Stefan, Kumar, Ramesh, Kurlemann, Gerhard, Lee, Matthew, Jurges, Eman, Levy, Robert, Lewis, Helen, Lewis, Hilary, Lloyd Evans, Andrew, Loh, Ne-Ron, Osborne, John, O'Callaghan, Finbar, Maddicks, Hilary, Luecke, Thomas, Lux, Andrew, Majumdar, Anirban, Vijayakumar, Kayal, MacKay, Mark, Freeman, Jeremy, Hayman, Michael, Kornberg, Andrew, Leventer, Rick, Ryan, Monique, Ware, Tyson, Mancais, Penny, Marinaki, Katina, Massarano, Albert, Mathew, Satheesh, McLellan, Ailsa, Melville, Colin, Mewasingh, Leena, Muhle, Hiltrud, Nagmeldin, Eisawi, Natarajan, Jeyashree, Nelapatla, Suresh, Gondwe, Jailosi, Newton, Richard, Hughes, Imelda, Martland, Tim, McCullagh, Gary, Vassallo, Grace, Nirmal, Stephen, Nolan, Melinda, Davis, Suzanne, Patel, Rakesh, Sharpe, Cynthia, Olabi, Anas, O'Neill, Kevin, Gould, Jim, Panzer, Axel, Theophil, Manuela, Parepalli, Srinivas, Hinde, Frank, Smith, Martin, Parker, Alasdair, Chitre, Manali, Philip, Sunny, Gupta, Rajat, Wassmer, Evangeline, Pike, Mike, McShane, Tony, Prakash, Nandhini, Padmakumar, Beena, Pridmore, Clair, Prietsch, Viola, Krieg, Peter, Quinlivan, Ros, Quinn, Michael, Collinson, Andrew, Rajalingam, Usha, Rakshi, Karl, Rao, Tekki, Ravi, Asha, Rifkin, Rob, Roper, Helen, Rowlandson, Piers, Sadleir, Lynette, Sahi, Sanjay, Saraswatula, Arun, O'Sullivan, Siobhan, Saravanan, Kethar, Scammell, Alastair, Rao, Sudhakar, Schmitt, Bernhard, Schubert-Bast, Susanne, Scott, David J, Scott, Fraser, Pye, Matthew, Shah, Ayaz, Stephen, Elma, Shah, Shambhu, Butterfill, Andrew, Shute, Pauline, Singh, Rajeeva, Allogoa, Brigid, Singh, Ravinder, Sinha, Gyanranjan, Sivakumar, Puthuval, Smith, Robert, Sriskandan, Sivaranjini, Steinert, Martin, Strassburg, Michael, Strozzi, Susi, Subramanian, Geeta, Tandy, Andrew, O'Callaghan, Finbar J K, Edwards, Stuart W, Alber, Fabienne Dietrich, Cortina Borja, Mario, Hancock, Eleanor, Johnson, Anthony L, Kennedy, Colin R, Likeman, Marcus, Lux, Andrew L, Mackay, Mark T, Mallick, Andrew A, Newton, Richard W, Pressler, Ronit, Rating, Dietz, Verity, Christopher M, Osborne, John P

Source: In The Lancet Child & Adolescent Health October 2018 2(10):715-725

Early childhood epilepsies: epidemiology, classification, aetiology, and socio-economic determinants.

Authors: Symonds, Joseph D^1,2, Elliott, Katherine S³, Shetty, Jay⁴, Armstrong, Martin⁵, Brunklaus, Andreas^1,2, Cutcutache, Ioana⁶, Diver, Louise A⁷, Dorris, Liam^1,2, Gardiner, Sarah⁷, Jollands, Alice⁸, Joss, Shelagh⁷, Kirkpatrick, Martin^8,9, McLellan, Ailsa⁴, MacLeod, Stewart¹, O'Regan, Mary^1,10, Page, Matthew⁵, Pilley, Elizabeth^4,8, Pilz, Daniela T⁷, Stephen, Elma¹¹, Stewart, Kirsty⁷

Source: Brain: A Journal of Neurology; Sep2021, Vol. 144 Issue 9, p2879-2891, 13p

Neuronal antibody prevalence in children with seizures under 3 years: A prospective national cohort.

Authors: Symonds, Joseph D., Moloney, Teresa C., Lang, Bethan, McLellan, Ailsa, O'Regan, Mary E., MacLeod, Stewart, Jollands, Alice, Vincent, Angela, Kirkpatrick, Martin, Brunklaus, Andreas, Shetty, Jayakara, Dorris, Liam, Forbes, Kirsten, Abu-Arafeh, Ishaq, Andrew, Jamie, Brink, Philip, Callaghan, Mary, Cruden, Jamie, Findlay, Christine, Grattan, Rosemary

Source: Neurology; 9/15/2020, Vol. 95 Issue 11, pe1590-e1598, 9p

Incidence and phenotypes of childhood-onset genetic epilepsies: a prospective population-based national cohort.

Authors: Symonds, Joseph D^1,2, Zuberi, Sameer M^1,2, sameer.zuberi@nhs.net, Stewart, Kirsty³, McLellan, Ailsa⁴, O'Regan, Mary¹, MacLeod, Stewart¹, Jollands, Alice⁵, Joss, Shelagh³, Kirkpatrick, Martin⁵, Brunklaus, Andreas^1,2, Pilz, Daniela T³, Shetty, Jay⁴, Dorris, Liam^1,2, Abu-Arafeh, Ishaq⁶, Andrew, Jamie⁷, Brink, Philip⁵, Callaghan, Mary⁷, Cruden, Jamie⁸, Diver, Louise A³, Findlay, Christine⁹

Source: Brain: A Journal of Neurology; Aug2019, Vol. 142 Issue 8, p2303-2318, 16p

Vigabatrin with hormonal treatment versus hormonal treatment alone (ICISS) for infantile spasms: 18-month outcomes of an open-label, randomised controlled trial

Authors: O'Callaghan, Finbar J K, Edwards, Stuart W, Alber, Fabienne Dietrich, Cortina Borja, Mario, Hancock, Eleanor, Johnson, Anthony L, Kennedy, Colin R, Likeman, Marcus, Lux, Andrew L, Mackay, Mark T, Mallick, Andrew A, Newton, Richard W, Nolan, Melinda, Pressler, Ronit, Rating, Dietz, Schmitt, Bernhard, Verity, Christopher M, Osborne, John P, Abdel Aziz, Maysara, Acharya, Triloknath, Adcock, Carolyn, Jones, Robert, Howells, Rachel, Marsh, Ben, Adejare, Kemi, Adiga, Rashmi, Wheater, Mary, Ahmed, Mansoor, Sawal, Mohammad, Goel, Chhavi, Ahmed, MAS, Alber, Michael, Wolff, Markus, Ruf, Susanne, Al-Kharusi, Asya, Al-Moasseb, Hassan, Arora, Ruchi, Beach, Richard, Atkinson, Patricia, Ayonrinde, Kunle, Bala, Pronab, Bamford, Nicola, Barakat, Nagi, Basheer, Nigel, Baxter, Peter, Mordekar, Santosh, Rittey, Chris, Borggraefe, Ingo, Borusiak, Peter, Cagnoli, Sabine, Brown, Richard, Calvert, Sophie, Calvert, Sophie, Cameron, Duncan, Chaniyil, Ramesh, Chinthapalli, Ravi, Chow, Gabriel, Whitehouse, William, Clarke, Vinodhini, Cooper, Chris, Datta, Alexane, D'Costa, Selwyn, de Goede, Christian, Basu, Helen, Deekollu, David, Della Marina, Adela, Dison, Penelope, Dunkley, Colin, Eaton, Megan, Ellison, Julie, Pugh, Robert, Fallon, Penny, Faza, Hani, Choonara, Imti, Morton, Richard, Ratnayaka, Mal, Ferrie, Colin, Freeman, Amanda, Warriner, Stephen, Garcia, Maria, Ghazavi, Malihe, Gibbon, Frances, Gibbs, John, Ginbey, Des, Guarino, Iolanda, Gupta, Rajesh, Hanlon, Mary, Harris, Siân, Munyard, Paul, Hemingway, Cheryl, Eltze, Christin, Kaliakatsos, Marios, Murugan, Velayutham, Robinson, Robert, Tan, Jeen, Hindley, Daniel, Hughes, Adrian, Hussain, Akmal, Boden, Greg, Hussain, Munir, Hussain, Nahin, Dabydeen, Lyvia, Irwin, Kate, Jacobs, Julia, Jauhari, Praveen, Minchom, Philip, Jones, Simon, Karenfort, Michael, Keimer, Reinhard, Kennedy, Colin, Kirkham, Fenella, Whitney, Andrea, Kirkpatrick, Martin, Jollands, Alice, Kneen, Rachel, Iyer, Anand, McTague, Amy, Spinty, Stefan, Kumar, Ramesh, Kurlemann, Gerhard, Lee, Matthew, Jurges, Eman, Levy, Robert, Lewis, Helen, Lewis, Hilary, Lewis, Hilary, Lloyd Evans, Andrew, Loh, Ne-Ron, Osborne, John, O'Callaghan, Finbar, Maddicks, Hilary, Luecke, Thomas, Lux, Andrew, O'Callaghan, Finbar, Majumdar, Anirban, Vijayakumar, Kayal, MacKay, Mark, Freeman, Jeremy, Hayman, Michael, Kornberg, Andrew, Leventer, Rick, Ryan, Monique, Ware, Tyson, Mancais, Penny, Marinaki, Katina, Massarano, Albert, Mathew, Satheesh, McLellan, Ailsa, Melville, Colin, Mewasingh, Leena, Muhle, Hiltrud, Nagmeldin, Eisawi, Natarajan, Jeyashree, Nelapatla, Suresh, Gondwe, Jailosi, Newton, Richard, Hughes, Imelda, Martland, Tim, McCullagh, Gary, Tan, Jeen, Vassallo, Grace, Nirmal, Stephen, Nolan, Melinda, Davis, Suzanne, Patel, Rakesh, Sharpe, Cynthia, Olabi, Anas, O'Neill, Kevin, Gould, Jim, Panzer, Axel, Theophil, Manuela, Parepalli, Srinivas, Hinde, Frank, Smith, Martin, Parker, Alasdair, Chitre, Manali, Philip, Sunny, Gupta, Rajat, Wassmer, Evangeline, Pike, Mike, McShane, Tony, Prakash, Nandhini, Padmakumar, Beena, Pridmore, Clair, Prietsch, Viola, Krieg, Peter, Quinlivan, Ros, Quinn, Michael, Collinson, Andrew, Howells, Rachel, Rajalingam, Usha, Rakshi, Karl, Rao, Tekki, Ravi, Asha, Rifkin, Rob, Roper, Helen, Rowlandson, Piers, Sadleir, Lynette, Sahi, Sanjay, Saraswatula, Arun, O'Sullivan, Siobhan, Saravanan, Kethar, Scammell, Alastair, Rao, Sudhakar, Schmitt, Bernhard, Schubert-Bast, Susanne, Scott, David J, Scott, Fraser, Pye, Matthew, Shah, Ayaz, Stephen, Elma, Shah, Shambhu, Butterfill, Andrew, Shute, Pauline, Singh, Rajeeva, Allogoa, Brigid, Singh, Ravinder, Sinha, Gyanranjan, Sivakumar, Puthuval, Smith, Robert, Sriskandan, Sivaranjini, Steinert, Martin, Strassburg, Michael, Strozzi, Susi, Subramanian, Geeta, Tandy, Andrew

Source: The Lancet Child & Adolescent Health; October 2018, Vol. 2 Issue: 10 p715-725, 11p

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Infective Endocarditis Presenting With Parinaud's Dorsal Midbrain Syndrome.

Authors: Ferguson, Andrew W., Jollands, Alice, Kirkpatrick, Martin, Pringle, Stuart D., George, Nick D. L.

Source: Journal of Pediatric Ophthalmology & Strabismus; Jan/Feb2006, Vol. 43 Issue 1, p41-43, 3p

Subject Terms: INFECTIVE endocarditis, BODY piercing, ENDOCARDITIS, GAZE, PARALYSIS

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Compound Heterozygous ROBO3 Mutations Cause Horizontal Gaze Palsy with Progressive Scoliosis in Non-Consanguineous Individuals.

Authors: Jen, Joanna C., Carr, Janai R., Sharpe, James A., Jollands, Alice, Goudie, David, Mamsa, Hafsa, Wan, Ji Jun, Baloh, Robert W.

Source: Neurology; 2006 Supplement, Vol. 66, pA20-A20, 1p

Compound Heterozygous ROBO3 Mutations Cause Horizontal Gaze Palsy with Progressive Scoliosis in NonConsanguineous Individuals

Authors: Jen, Joanna C., Carr, Janai R., Sharpe, James A., Jollands, Alice, Goudie, David, Mamsa, Hafsa, Wan, Ji Jun, Baloh, Robert W.

Source: Neurology (Ovid); March 2006, Vol. 66 Issue: 5, Number 5 Supplement 2 pA20-A20, 1p