Safety and efficacy of a fitusiran antithrombin-based dose regimen in people with hemophilia A or B: the ATLAS-OLE study

Authors: Khoo, Teh-Liane, Dunkley, Scott, P'ng, Stephanie, Pepperell, Dominic, Lam, Stephanie, Steinepreis, Elizabeth, Malherbe, Jacques, Kendrick, Tulene, Lombard, Marcus, Tran, Huyen, Zhao, Jessie, Stevens, Hannah, Dix, Caroline, McFadyen, James, St-Louis, Jean, Kassis, Jeannine, Rivard, Georges, Sun, Jing, Li, Xiaofang, Li, Huiping, Ye, Jieyu, Zhou, Xuan, Du, Dong, Wang, Xuefeng, Dai, Jing, Ding, Quilan, Wu, Wenman, Lu, Yiyi, Wu, Runhui, Liu, Guoqing, Yao, Wanru, Wang, Yan, Wei, Yunyun, Xu, Weiqun, Du, Yu, Xu, Liyao, Wang, Di, Liao, Chan, Zhang, Hongwei, Yu, Ziqiang, Tian, Hong, Wang, Haibo, Yin, Jie, Zhu, Tienan, Cai, Huacong, Xiao, Juan, Wang, Shujie, Liu, Shufen, Shen, Kaini, Chen, Yun, Chang, Yali, Sang, Tan, Zhao, Jun, Zhou, Yawei, Zhai, Liya, Qiu, Xiadong, He, Yulei, Li, Hui, Xia, Yi, Zhou, Min, Gao, Feng, Feng, Shipin, Luo, Xiaoli, Li, Dan, Cui, Zhongguang, Zhao, Chunzhu, Xu, Hong, Sun, Lingjie, Shi, Xue, Zeng, Xiaojing, Qi, Lu, Cao, Shuyun, Zhou, Zeping, Zhang, Fuhou, Yin, Lingmei, Mu, Hongli, Bi, Hui, Li, Zhengchao, Miu, Yaping, Xi, Yaming, Jia, Mingfeng, Zhao, Long, Zhao, Xielan, Li, Yaochun, Peng, Jie, Chang, Chia-Yau, Liu, Yen-Lin, Shen, Ming-Ching, Huang, Cheng-Wei, Wang, Shih-Chung, Lin, Hsuan-Yu, Lin, Ching-Yeh, Chou, Sheng-Chieh, Chuang, Ming-Kai, Hsu, Szu-Chun, Wang, Jiaan-Der, Shih, Ming-Yang, Hsiao, Liang-Tsai, Hung, Giun-Yi, Yen, Hsiu-Ju, Ko, Po-Shen, Chang, Hung, Chen, Shih-Hsaing, Weng, Te-Fu, Chao, Yu-Hua, Zeng, Sherig-Wei, Kampmann, Peter, Funding, Eva, Dargaud, Yesim, Negrier, Claude, Desag, Stéphanie, Frenzel, Laurent, Fouquet, Guillemette, Bally, Cécile, Klamroth, Robert, Orlovic, Ana-Marija, Pfrepper, Christian, Metze, Michael, Chakaroun, Rima, Weise, Maria, Nemes, László, Ronatas, Agnes, Ross, Cecil, Anandram, Seetharam, Bharadwaj, Vandana, Salvi, Sonali, Lohande, Sunil, Srivastava, Alok, Abraham, Aby, Aboobacker, Fouzia, Verma, Shailendra, Datta, Gaurav, Rangarajan, Savita, Bansal, Shweta, Apte, Shashikant, Subramanian, Kannan, Nolan, Beatrice, Ahmed, Saad, O’Connell, Niamh, O’Donnell, James, Ryan, Kevin, Lavin, Michelle, Kenet, Gili, Cohen, Omri, Misgav, Mudi, Barg, Assaf, Mendelovich, Sarina Levy, Peyvandi, Flora, Gualtierotti, Roberta, Zanon, Ezio, Spiezia, Luca, Simion, Chiara, Matsushita, Tadashi, Okamoto, Shuichi, Suzuki, Nobuaki, Kanematsu, Takeshi, Suzuki, Naruko, Kawaguchi, Yuka, Higasa, Satoshi, Tokugawa, Tazuko, Sawada, Akihiro, Shirayama, Rie, Kawamura, Masaru, Asai, Hiroshi, Oshida, Koichi, Sato, Tetsuji, Ito, Takuma, Koh, Katsuyoshi, Mizushima, Yoshitaka, Ishikawa, Takahiro, Kubota, Hirohito, Kaneko, Ryota, Irikura, Tomoya, Honda, Mamoru, Taira, Katsuaki, Arakawa, Yuki, Mori, Makiko, Fukoka, Kohei, Oshima, Koichi, Mitani, Yuichi, Ogawa, Yoshiaki, Ando, Kiyoshi, Suzuki, Rikio, Hara, Ryujiro, Aoyama, Yasuyuki, Toyosaki, Masako, Ogiya, Daisuke, Machida, Shinichiro, Kawada, Hiroshi, Shirasugi, Yukari, Onizuka, Makoto, Omachi, Ken, Amano, Kagehiro, Yamaguchi, Tomoko, Kinai, Ei, Hagiwara, Takeshi, Yotsumoto, Mihoko, Sekiya, Ryoko, Bingo, Masato, Chikasawa, Yushi, Ichiki, Akito, Kamikubo, Yoshiko, Miyashita, Ryui, Muramatsu, Takashi, Shin, Ho-Jin, Kim, DoYoung, You, Chur-Woo, Kim, Ju Young, Hahn, Seung Min, Lyu, Chuhl Joo, Han, Jung Woo, Park, Young Shil, Cho, Ja Hyang, Shariq, Azizan, Lim, Soo Min, Wong, Lily, Chang Choo, Heng, Wilfred, Gilbert, Ahmad Zakhi, Mohd Tarmizi, Lim, Yin Man, Raghunathan, Khaiteri, Sathar, Jameela, Nasution, Syazarin Fidhora, Yap, Yee Yee, Selvaratnam, Veena, Malan, Daniel, Punt, Zelda Erika, Antmen, Ali Bulent, Sasmaz, Ilgen, Aygunes, Utku, Kavakli, Kaan, Karadas, Nihal, Karapinar, Deniz, Kupesiz, Alphan, Erkan, Mine, Tayfun, Kupesiz Funda, Guler, Elif, Zulfikar, Bulent, Koc, Basak, Okan, Vahap, Haydaroglu, Sahin Handan, Albayrak, Canan, Kartal, Ibrahim, Yilmaz, Ebru, Karakukcu, Musa, Unal, Ekrem, Ozcan, Alper, Sahin, Fahri, Tuzun, Betul, Saydam, Guray, Averianov, Ievgenii, Kovtunenko, Oksana, Stasyshyn, Oleksandra, Semerak, Maksym, Tushnytskyy, Orest, Vilchevska, Kateryna, Bakhchyvandzhy, Iryna, Romanyuk, Nataliya, Nikulin, Stanislav, Kobets, Alina, Alamelu MRCPCH, Jayanthi, Babiker, Samah, Bagot, Catherine, Rodgers, James Tyan, Boggio, Lisa, Simpson, Mindy, Cockrell, Erin, DeBerry, Candance, Obzut, Dana, Fargo, John, Hord, Jeffrey, Savelli, Stephanie, Lasky, Joseph, Buitrago, Jennifer, Alhushki, Waseem, Gauger, Cynthia, Klawinski, Darren, Sandler, Eric, Bradfield, Scott, Pitel, Paul, Joyce, Michael, Katzenstein, Howard, Bansal, Manisha, Bechtel, Allison, Knoll, Christine, Gomez, Esteban, White, Shanna, Shah, Sanjay, Gendreau, Joanna, Wagner, Lori, Quarmyne, Maa-Ohui, Bornikova, Larissa, Cleary CNP, Colleen, Hodges, Pamela G., Mossali, Alexandra, Rosovsky, Rachel, Turbini, Victoria, Wood, Valerie, Al-Samkari, Hanny, Pipe, Steven, Weyand, Angela, Shavit, Jordan, Soni, Amit, Nugent, Diane, Hwang, Nina, Salinas, Vanessa, Young, Guy, Hofstra, Tom, Donkin, Jennifer, Keegan, Jacquelyn, Sibgha, Zaheer, Leung, Wendy, Jaffray, Julie, Pipe, Steven W. ⁷, Menapace, Laurel A. ¹⁷, Zhang, Chuanwu ¹⁸, Shen, Yuqian ¹⁹, Puurunen, Marja ¹⁷, Demissie, Marek ¹⁷

Source: In Blood February 2025

Length of Hospital Stay in Adolescents Receiving High-Dose Oral Contraceptive Pills with and without Conjugated Equine Estrogen for the Treatment of Acute Abnormal Uterine Bleeding

Authors: Khalighi, Misha ^{1, ⁎}, Durazo-Arvizu, Ramon ², Jaffray, Julie ^{3, 4}, Nelson, Anita ⁵, Belzer, Marvin ⁶, Borzutzky, Claudia ⁶

Source: In Journal of Pediatric and Adolescent Gynecology January 2025

The Functional Characterization of Venous Thromboembolic Disease (FUVID) study: rationale, design, and methods of a prospective, observational, multicenter study to evaluate mechanisms of exercise intolerance and dyspnea following pediatric pulmonary embolism

Authors: Adix, Leah M., Ambrusko, Steven, Alaesa, Shames, Bradley, Kristen, Branchford, Brain R., Carlberg, Katie, Cooper, James D., Corley, Susan A., Di Miero, Marissa, Eidenberger, Anna, Freyer, Edith, Guerrero, Kevin, Gurunathan, Arun, Hathorn, Brandon, Khan, Muhammad, Lade, Shawn D., Maida, Deanna M., Martinelli, Marie, Mozingo, Corey, Moran, Raksa, Primeaux, Sharon A., Raffini, Leslie, Robinson, Rhea, Sabo, Cynthia, Saleh, Negin, Sharathkumar, Anjali A., Simon, Rachel, Srivaths, Lakshmi, Tasset, MacKenzie, Williams, Katrina, Woodward, Rebekah Summerall, Levine, Benjamin, Goldenberg, Neil A., Klok, Frederikus A., Male, Christoph, Babb, Tony G., Rajpurkar, Madhvi, Zhang, Song, Zia, Ayesha ^{1, ∗}, Nelson, Michael D. ², Ren, Jimin ^{1, 3}, Mattrey, Robert F. ^{1, 5}, Han, Brian L. ^{1, 6}, Hussain, Tarique ^{1, 7}, Greer, Joshua S. ^{1, 7}, Al-Qahtani, Manal ^{1, 7}, Malone, Kendra ⁸, Stutzman, Sonja E. ⁹, Sida, Deseray V. ⁹, Primeaux, Sharon ⁹, Torres, Marcela D. ¹⁰, Cohen, Clay T. ¹¹, Crary, Shelley ¹², Bernstein, Jonathan ¹³, Whitworth, Hilary B. ¹⁴, Kumar, Riten ¹⁵, Beg, Kisha A. ¹⁶, Khan, Osman ¹⁶, Hege, Kerry ¹⁸, Schaefer, Beverly A. ¹⁹, Woods, Gary M. ²⁰, Amos, Lauren E. ²¹, Betensky, Marisol ²², Bhat, Rukhmi V. ²³, O’ Brien, Sarah ²⁴, Jaffray, Julie ²⁵, Jesudas, Rohit ²⁶, Pacheco, Martha M. ²⁷, Tarango, Cristina ²⁸, Weyand, Angela C. ²⁹, Wilson, Hope P. ³⁰, Garcia, Jessica ^{1, 9}, Dang, Mary P. ^{1, 9}, Sharma, Ruchika ^{1, 9}, Balmain, Bryce N. ³⁵

Source: In Research and Practice in Thrombosis and Haemostasis January 2025 9(1)

Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities for mucocutaneous bleeding disorders

Authors: Sidonio, Jr, Robert F., Bryant, Paulette C., Di Paola, Jorge, Hale, Sarah, Heiman, Meadow, Horowitz, G Shellye, Humphrey, Christi, Jaffray, Julie, Joyner, Lora C., Kasthuri, Raj, Konkle, Barbara A., Kouides, Peter A., Montgomery, Robert, Neeves, Keith, Randi, Anna M., Scappe, Nikole, Tarango, Cristina, Tickle, Kelly, Trapane, Pamela, Wang, Michael, Waters, Brittany, Flood, Veronica H.

Source: Expert review of hematology. 16:39-54

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100177532999.0x000001&indx=1&recIds=ETOCvdc_100177532999.0x000001

Evaluation of venous thromboembolism risk factors reveals subtype heterogenicity in children with central venous catheters: a multicenter study from the Children’s Hospital Acquired Thrombosis consortium

Authors: Jaffray, Julie, Mosha, Maua, Branchford, Brian, Goldenberg, Neil A., Silvey, Michael, Croteau, Stacy E., Fargo, John H., Cooper, James D., Bakeer, Nihal, Stillings, Amy, Krava, Emily, Young, Guy, Amankwah, Ernest K.

Source: In Journal of Thrombosis and Haemostasis September 2023 21(9):2441-2450

A need to increase von Willebrand disease awareness: vwdtest.com – A global initiative to help address this gap

Authors: Corrales-Medina, Fernando F., Federici, Augusto B., Srivastava, Alok, Dougall, Alison, Millar, Carolyn M., Roberts, Jonathan C., Jaffray, Julie, Berntorp, Erik

Source: In Blood Reviews March 2023 58

Risk factors for hospital acquired venous thromboembolism in congenital heart disease patients: A report from the children's hospital acquired thrombosis (CHAT) consortium

Authors: Silvey, Michael, Nguyen, Anh Thy H., Amankwah, Ernest K., McElwaine, Emily, Branchford, Brian, Stillings, Amy, Krava, Emily, Young, Guy, Goldenberg, Neil, Jaffray, Julie

Source: In Thrombosis Research December 2022 220:116-120

Risk of venous thromboembolism in pediatric hospitalized patients undergoing noncardiac surgery: A report from the Children's Hospital‐Acquired Thrombosis consortium

Authors: Stephens, Elizabeth T. ^*, Nguyen, Anh Thy H., Jaffray, Julie, Branchford, Brian, Amankwah, Ernest K., Goldenberg, Neil A., Faustino, E. Vincent S., Zakai, Neil A., Stillings, Amy, Krava, Emily, Young, Guy, Fargo, John H.

Source: In Research and Practice in Thrombosis and Haemostasis October 2022 6(7)

Current practices in pediatric hospital‐acquired thromboembolism: Survey of the Children's Hospital Acquired Thrombosis (CHAT) Consortium

Authors: Abrams, Christina M., Jaffray, Julie, Stillings, Amy, Branchford, Brian R., Young, Guy, Goldenberg, Neil A., Abajas, Yasmina L. ^*, Fargo, John, Crary, Shelly, Kumar, Riten, Woods, Gary, Narang, Shalu, Cooper, James, Silvey, Mike, Garland, Kate, Mahajerin, Arash, Luchtman‐Jones, Lori, Torres, Marcela, Wright, Jordan, Pahl, Kristy, Armstrong, Katherine, Braunreiter, Chi, Bakeer, Nihal, Sochet, Anthony, Hogan, Marie, Gupta, Shveta, Knoll, Christine, Hege, Kerry, Schaefer, Beverly, Panigrahi, Arun, Thornburg, Courtney, Shimano, Kristin, Ahuja, Sanjay, Weyand, Angela, Boucher, Alexander, Abajas, Yasmina, Subbaswamy, Anjali, Khan, Osman, Druzgal, Colleen, Maida, Deanna, Wheeler, Allison, Malec, Lynn, Branchford, Brian, Kucine, Nicole Elena, Prozora, Stephanie

Source: In Research and Practice in Thrombosis and Haemostasis October 2022 6(7)

Direct oral anticoagulants for use in paediatrics

Authors: Jaffray, Julie, Young, Guy

Source: Lancet.Child & adolescent health. 6(3):207-214

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100183234288.0x000001&indx=1&recIds=ETOCvdc_100183234288.0x000001

Practical considerations and consensus opinion for children's hospital–based inpatient hemostasis and thrombosis (HAT) consultative services: Communication from the ISTH SSC Subcommittee on Pediatric/Neonatal Thrombosis and Hemostasis

Authors: Woods, Gary M., Raffini, Leslie, Brandão, Leonardo R., Jaffray, Julie, Branchford, Brian R., Ng, Christopher J., Sartain, Sarah E., Pak, Jennifer, Male, Christoph, Zia, Ayesha, Rizzi, Mattia, Sirachainan, Nongnuch, Faustino, Edward Vincent S., Carpenter, Shannon L., Goldenberg, Neil A.

Source: Journal of thrombosis and haemostasis. 20(9):2151-2158

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100163494939.0x000001&indx=1&recIds=ETOCvdc_100163494939.0x000001

Symptomatic pulmonary embolus after catheter removal in children with catheter related thrombosis: A report from the CHAT Consortium

Authors: Jaffray, Julie, Baumann Kreuziger, Lisa, Branchford, Brian, Wee, Choo Phei, Faustino, E. Vincent S., Zakai, Neil A., Croteau, Stacy E., Silvey, Michael, Fargo, John H., Cooper, James D., Bakeer, Nihal, Stillings, Amy, Krava, Emily, Young, Guy, Goldenberg, Neil A.

Source: Journal of thrombosis and haemostasis. 20(1):133-137

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100151117490.0x000001&indx=1&recIds=ETOCvdc_100151117490.0x000001

Rate of thrombosis in children and adolescents hospitalized with COVID-19 or MIS-C

Authors: Whitworth, Hilary, Sartain, Sarah E., Kumar, Riten, Armstrong, Katherine, Ballester, Lance, Betensky, Marisol, Cohen, Clay T., Diaz, Rosa, Diorio, Caroline, Goldenberg, Neil A., Jaffray, Julie, Keegan, Jacquelyn, Malone, Kendra, Randolph, Adrienne G., Rifkin-Zenenberg, Stacey, Leung, Wendy Seto, Sochet, Anthony, Srivaths, Lakshmi, Zia, Ayesha, Raffini, Leslie ^*

Source: In Blood 15 July 2021 138(2):190-198

Development of a Risk Model for Pediatric Hospital-Acquired Thrombosis: A Report from the Children's Hospital-Acquired Thrombosis Consortium

Authors: Jaffray, Julie, Branchford, Brian, Goldenberg, Neil, Malvar, Jemily, Croteau, Stacy E., Silvey, Michael, Fargo, John H., Cooper, James D., Bakeer, Nihal, Sposto, Richard, Ji, Lingyun, Zakai, Neil A., Faustino, E. Vincent S., Stillings, Amy, Krava, Emily, Young, Guy, Mahajerin, Arash

Source: In The Journal of Pediatrics January 2021 228:252-259

Transfusional hemosiderosis in childhood cancer patients and survivors.

Authors: Baskin‐Miller, Jacquelyn, Carson, Susan, Jaffray, Julie, Fletcher, Craig, Singer, Jessie, Freyer, David R., Wood, John, Coates, Thomas D., Denton, Christopher C.

Source: Pediatric Blood & Cancer; Oct2024, Vol. 71 Issue 10, p1-9, 9p

The Edoxaban Hokusai VTE PEDIATRICS Study: An open‐label, multicenter, randomized study of edoxaban for pediatric venous thromboembolic disease

Authors: van Ommen, Cornelia Heleen ^*, Albisetti, Manuela, Chan, Anthony K., Estepp, Jeremie, Jaffray, Julie, Kenet, Gili, Young, Guy, Dave, Jay, Grosso, Michael A., Duggal, Anil

Source: In Research and Practice in Thrombosis and Haemostasis July 2020 4(5):886-892

Comparative validation study of risk assessment models for pediatric hospital‐acquired venous thromboembolism

Authors: Mahajerin, Arash ^*, Jaffray, Julie, Branchford, Brian, Stillings, Amy, Krava, Emily, Young, Guy, Goldenberg, Neil A., Faustino, E. Vincent S.

Source: In Journal of Thrombosis and Haemostasis March 2020 18(3):633-641

Peripherally inserted central catheters lead to a high risk of venous thromboembolism in children

Authors: Jaffray, Julie ^{1, 1}, Witmer, Char ², O'Brien, Sarah H. ³, Diaz, Rosa ⁴, Ji, Lingyun ⁵, Krava, Emily ¹, Young, Guy ¹

Source: In Blood 16 January 2020 135(3):220-226

Consensus‐based clinical recommendations and research priorities for anticoagulant thromboprophylaxis in children hospitalized for COVID‐19–related illness

Authors: Goldenberg, Neil A., Sochet, Anthony, Albisetti, Manuela, Biss, Tina, Bonduel, Mariana, Jaffray, Julie, MacLaren, Graeme, Monagle, Paul, O'Brien, Sarah, Raffini, Leslie, Revel‐Vilk, Shoshana, Sirachainan, Nongnuch, Williams, Suzan, Zia, Ayesha, Male, Christoph

Source: Journal of thrombosis and haemostasis. 18(11):3099-3105

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100110153337.0x000001&indx=1&recIds=ETOCvdc_100110153337.0x000001

Current approaches in the treatment of catheter-related deep venous thrombosis in children

Authors: Jaffray, Julie, Goldenberg, Neil

Source: Expert review of hematology. 13(6):607-617

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100110708183.0x000001&indx=1&recIds=ETOCvdc_100110708183.0x000001