Peritoneal Dialysis in Young Adults: A Mixed-Methods Study

Authors: Lyons, Hannah C. ¹, Selman, Lucy E. ¹, Ben-Shlomo, Yoav ¹, Caskey, Fergus J. ¹, Inward, Carol D. ¹, Hamilton, Alexander ^{1, ∗}

Source: In Kidney Medicine April 2025 7(4)

Psychosocial Health Among Young Adults With Kidney Failure: A Longitudinal Follow-up of the SPEAK (Surveying Patients Experiencing Young Adult Kidney Failure) Study

Authors: Al-Talib, Mohammed, Caskey, Fergus J., Inward, Carol, Ben-Shlomo, Yoav, Hamilton, Alexander J.

Source: In Kidney Medicine February 2024 6(2)

Clinical outcomes of pediatric kidney replacement therapy after childhood cancer—An ESPN/ERA Registry study

Authors: Kaijansinkko, Henna, Bonthuis, Marjolein, Jahnukainen, Kirsi, Harambat, Jerome, Vidal, Enrico, Bakkaloglu, Sevcan A., Inward, Carol, Sinha, Manish D., Roperto, Rosa M., Kuehni, Claudia E., Biró, Erika, Kwon, Theresa, Mota, Conceição, Adams, Brigitte, Szczepańska, Maria, Bieniaś, Beata, Höcker, Britta, Fomina, Svitlana, Gjerstad, Ann Christin, Vondrak, Karel, Alpay, Harika, Plumb, Lucy A., Hommel, Kristine, Molchanova, Maria S., Hubmann, Holger, Alonso-Melgar, Angel, Jager, Kitty J., Jahnukainen, Timo

Source: In American Journal of Transplantation November 2024

Atypical hemolytic uremic syndrome in the era of terminal complement inhibition: an observational cohort study

Authors: Holt, Richard, Jones, Caroline, Ashman, Neil, Fan, Stanley, Forbes, Suzanne, Rajakariar, Ravindra, De Freitas, Declan, Magee, Colm, Hanko, Jennifer, Milford, David, Muorah, Mordi, Howie, Alexander J., Baharani, Jyoti, Dasgupta, Indranil, Roberts, Russell, MacDiarmaid-Gordon, Adam, Fry, Andrew, Torpey, Nicholas, Waldron, Mary, Awan, Atif, Raftery, Tara, Ratcliffe, Laura, Vilar, Enric, Newman, Joel, Seviar, Dale, Marks, Stephen D., Rees, Lesley, Veligratli, Faidra, Waters, Aoife, Chowdhury, Paramit, Pattison, James, Booth, Caroline, Williams, Nicole, Corbett, Richard, Amin, Beena, Pickering, Matthew, Bramham, Kate, Al-Hamed, Mohamed, Hill, Anita, Mooney, Andrew, Finlay, Eric, Newnham, Amanda, Yadav, Pallavi, Kaur, Amrit, Plant, Nicholas, Shenoy, Mohan, Choong, Lye Wai, Helps, Aileen, McLemon, Robert, Muniraju, Thalakunte, Khan, Izhar, Kidder, Dana, Padmanabhan, Neal, Cousland, Zoe, Price, Jonathan, Taylor, Alison, Jennings, Claudine, Ahmad, Sohail, Mead, Paul, Aslam, Mona, Bebb, Charlotte, Byrne, Catherine, Ferraro, Alastair, Christian, Martin, Evans, Jonathan, Kim, Jon Jin, Lunn, Andrew, Mallik, Meeta, Mason, Phil, Mole, David, Craze, Janet, Sangala, Nicholas, Uniacke, Mark, McGregor, Ellon, Lambie, Stewart, Bhandary, Nitin, Flossmann, Oliver, Mohteshamzadeh, Mobin, Abeyaratne, Asanga, Bingham, Coralie, Clissold, Rhian, Smyth, Lucy, Connolly, John, Reynolds, Ben, Neary, John, Bell, Joanne, Roxburgh, Sarah, Popoola, Joyce, Donne, Rosie, Fardon, Nicholas, Khwaja, Arif, Siddiqi, Shareen, Kumar, Gurinder, Kardasz, Steve, Moore, Iain, Tez, Didem, Willows, Jamie, Davison, Rachel, Harty, John, Wong, William, Williams, Andrew J., Gale, Daniel, Coward, Richard, Inward, Carol, Mraz, Martin, Ayub, Waqar, Short, Andrew, Lappin, David, Baines, Richard, Bommayya, Girish, Houlberg, Kris, Saif, Imran, Gilbert, Rodney, Griffin, Sian, Smith, Graham, Van Der Voort, Judith, Chandar, Jayanthi, Freundlich, Michael, McCarroll, Frank, Wong, Germaine, Laboi, Paul, Molyneux, Rebekah, Brocklebank, Vicky, Walsh, Patrick R., Smith-Jackson, Kate, Hallam, Thomas M., Marchbank, Kevin J., Wilson, Valerie, Bigirumurame, Theophile, Dutt, Tina, Montgomery, Emma K., Malina, Michal, Wong, Edwin K. S., Johnson, Sally, Sheerin, Neil S., Kavanagh, David

Source: In Blood 19 October 2023 142(16):1371-1386

Identifying acute kidney injury in children: comparing electronic alerts with health record data.

Authors: Plumb, Lucy, Savino, Manuela, Casula, Anna, Sinha, Manish D., Inward, Carol D., Marks, Stephen D., Medcalf, James, Nitsch, Dorothea

Source: BMC Nephrology; 2/13/2025, Vol. 26 Issue 1, p1-10, 10p

Subject Terms: ACUTE kidney failure, ELECTRONIC health records, HOSPITAL records, PUBLIC hospitals, MEDICAL sciences

Associations between Deprivation, Geographic Location, and Access to Pediatric Kidney Care in the United Kingdom

Authors: Plumb, Lucy A., Sinha, Manish D., Casula, Anna, Inward, Carol D., Marks, Stephen D., Caskey, Fergus J., Ben-Shlomo, Yoav

Source: Clinical journal of the American Society of Nephrology. 16(2):194-203

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCRN625668977&indx=1&recIds=ETOCRN625668977

The spectrum of co-existing disease in children with established kidney failure using registry and linked electronic health record data.

Authors: Plumb, Lucy, Steenkamp, Retha, Hamilton, Alexander J., Maxwell, Heather, Inward, Carol D., Marks, Stephen D., Nitsch, Dorothea

Source: Pediatric Nephrology; Dec2024, Vol. 39 Issue 12, p3521-3531, 11p

Subject Terms: KIDNEY failure, CROSS-sectional method, DOCUMENTATION, CONGENITAL heart disease, THERAPEUTICS, RENAL replacement therapy, LOGISTIC regression analysis, REPORTING of diseases, RETROSPECTIVE studies, DESCRIPTIVE statistics, ODDS ratio, ELECTRONIC health records, MEDICAL coding, MEDICAL records, ACQUISITION of data, STATISTICS, CONFIDENCE intervals, TUMORS, COMORBIDITY, SENSITIVITY & specificity (Statistics), ADOLESCENCE, CHILDREN

Geographic Terms: WALES, ENGLAND

Long-term outcomes and response to treatment in diacylglycerol kinase epsilon nephropathy

Authors: Brocklebank, Vicky, Kumar, Gurinder, Howie, Alexander J., Chandar, Jayanthi, Milford, David V., Craze, Janet, Evans, Jonathan, Finlay, Eric, Freundlich, Michael, Gale, Daniel P., Inward, Carol, Mraz, Martin, Jones, Caroline, Wong, William, Marks, Stephen D., Connolly, John, Corner, Bronte M., Smith-Jackson, Kate, Walsh, Patrick R., Marchbank, Kevin J., Harris, Claire L., Wilson, Valerie, Wong, Edwin K.S., Malina, Michal, Johnson, Sally, Sheerin, Neil S., Kavanagh, David

Source: In Kidney International June 2020 97(6):1260-1274

The 21st UK Renal Registry Annual Report: A Summary of Analyses of Paediatric Data in 2017

Authors: Plumb, Lucy, Casula, Anna, Pyart, Rhodri, Evans, Katharine M., Inward, Carol, Medcalf, James, Marks, Stephen D.

Source: Nephron journals. 144(2):67-71

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100096980012.0x000001&indx=1&recIds=ETOCvdc_100096980012.0x000001

Psychosocial Health and Lifestyle Behaviors in Young Adults Receiving Renal Replacement Therapy Compared to the General Population: Findings From the SPEAK Study

Authors: Hamilton, Alexander J., Caskey, Fergus J., Casula, Anna, Ben-Shlomo, Yoav, Inward, Carol D.

Source: In American Journal of Kidney Diseases February 2019 73(2):194-205

Increasing trends in hemodialysis and living donor kidney transplantation for children and young people in the United Kingdom

Authors: Mudalige, Nadeesha Lakmal, Sun, Kristi, Plumb, Lucy, Casula, Anna, Evans, Katharine M., Inward, Carol, Marks, Stephen D.

Source: Pediatric transplantation. 26(4)

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100149277004.0x000001&indx=1&recIds=ETOCvdc_100149277004.0x000001

Factor H autoantibody is associated with atypical hemolytic uremic syndrome in children in the United Kingdom and Ireland

Authors: Brocklebank, Vicky, Johnson, Sally, Sheerin, Thomas P., Marks, Stephen D., Gilbert, Rodney D., Tyerman, Kay, Kinoshita, Meredith, Awan, Atif, Kaur, Amrit, Webb, Nicholas, Hegde, Shivaram, Finlay, Eric, Fitzpatrick, Maggie, Walsh, Patrick R., Wong, Edwin K.S., Booth, Caroline, Kerecuk, Larissa, Salama, Alan D., Almond, Mike, Inward, Carol, Goodship, Timothy H., Sheerin, Neil S., Marchbank, Kevin J., Kavanagh, David

Source: In Kidney International November 2017 92(5):1261-1271

Associations with Wellbeing and Medication Adherence in Young Adults Receiving Kidney Replacement Therapy

Authors: Hamilton, Alexander James, Caskey, Fergus J., Casula, Anna, Inward, Carol D., Ben-Shlomo, Yoav

Source: Clinical journal of the American Society of Nephrology. 13(11):1669-1679

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCRN617986230&indx=1&recIds=ETOCRN617986230

Continually improving standards of care: The UK Renal Registry as a translational public health tool

Authors: Plumb, Lucy A., Hamilton, Alexander J., Inward, Carol D., Ben-Shlomo, Yoav, Caskey, Fergus J.

Source: Pediatric nephrology. 33(3):373-380

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100125314625.0x000001&indx=1&recIds=ETOCvdc_100125314625.0x000001

Sociodemographic, Psychologic Health, and Lifestyle Outcomes in Young Adults on Renal Replacement Therapy

Authors: Hamilton, Alexander J., Clissold, Rhian L., Inward, Carol D., Caskey, Fergus J., Ben-Shlomo, Yoav

Source: Clinical journal of the American Society of Nephrology. 12(12):1951-1961

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCRN615180001&indx=1&recIds=ETOCRN615180001

Psychological Health in Young Adults With Kidney Failure: A 5-Year Follow-up of the SPEAK Study

Authors: Al-Talib, Mohammed, Caskey, Fergus J., Inward, Carol, Ben-Shlomo, Yoav, Hamilton, Alexander J.

Source: In Kidney Medicine June 2023 5(6)

Survival and clinical outcomes of children starting renal replacement therapy in the neonatal period

Authors: van Stralen, Kariljn J. ^*, Borzych-Dużalka, Dagmara, Hataya, Hiroshi, Kennedy, Sean E., Jager, Kitty J., Verrina, Enrico, Inward, Carol, Rönnholm, Kai, Vondrak, Karel, Warady, Bradley A., Zurowska, Aleksandra M., Schaefer, Franz, Cochat, Pierre

Source: In Kidney International July 2014 86(1):168-174

UK Renal Registry 18th Annual Report: Chapter 10 Clinical, Haematological and Biochemical Parameters in Patients Receiving Renal Replacement Therapy in Paediatric Centres in the UK in 2014: National and Centre-specific Analyses

Authors: Hamilton, Alexander J, Braddon, Fiona, Casula, Anna, Inward, Carol, Lewis, Malcolm, Mallett, Tamara, Maxwell, Heather, O''Brien, Catherine, Tse, Yincent, Sinha, Manish D

Source: Nephron journals. 132(1):237-252

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100085426099.0x000001&indx=1&recIds=ETOCvdc_100085426099.0x000001

UK Renal Registry 18th Annual Report: Chapter 4 Demography of Patients Receiving Renal Replacement Therapy in Paediatric Centres in the UK in 2014

Authors: Hamilton, Alexander J, Braddon, Fiona, Casula, Anna, Inward, Carol, Lewis, Malcolm, Mallett, Tamara, Maxwell, Heather, O'Brien, Catherine, Tse, Yincent, Sinha, Manish D

Source: Nephron journals. 132(1):99-110

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100085426050.0x000001&indx=1&recIds=ETOCvdc_100085426050.0x000001

Early Requirement for RRT in Children at Presentation in the United Kingdom: Association with Transplantation and Survival

Authors: Pruthi, Rishi, Casula, Anna, Inward, Carol, Roderick, Paul, Sinha, Manish D.

Source: Clinical journal of the American Society of Nephrology. 11(5):795-802

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCRN607262637&indx=1&recIds=ETOCRN607262637