Applicability of the Child Health Utility instrument to measure health utility in children with intestinal failure: A qualitative study of caregivers

Authors: Raghu, Vikram K., Lakkis, Lisa, Cameron, Flor de Abril, Valdes, Daniela Gattini, Kosmach-Park, Beverly, Hanmer, Janel

Source: In Intestinal Failure April-June 2024 2

A Roadmap for Increasing the Usefulness and Impact of Patient-Preference Studies in Decision Making in Health: A Good Practices Report of an ISPOR Task Force

Authors: Bridges, John F.P., de Bekker-Grob, Esther W., Hauber, Brett, Heidenreich, Sebastian, Janssen, Ellen, Bast, Alice, Hanmer, Janel, Danyliv, Andriy, Low, Eric, Bouvy, Jacoline C., Marshall, Deborah A.

Source: In Value in Health February 2023 26(2):153-162

Common Patient-Reported Outcomes Within the Food and Drug Administration Voice of the Patient Reports

Authors: Metz, Cameron, McCracken, Polly, Hanmer, Janel

Source: In Value in Health October 2022 25(10):1743-1751

Patient reported outcomes and the real‐world use of calcitonin gene–related peptide medications in migraine.

Authors: Peasah, Samuel K., Soh, Yu Hyeon, Huang, Yan, Nguyen, Jennifer, Hanmer, Janel, Good, Chester

Source: Headache: The Journal of Head & Face Pain; Mar2025, Vol. 65 Issue 3, p452-459, 8p

Subject Terms: MIGRAINE prevention, RESEARCH funding, CALCITONIN, RETROSPECTIVE studies, DESCRIPTIVE statistics, PEPTIDES, GENES, LONGITUDINAL method, MEDICAL records, ACQUISITION of data, QUALITY of life, HEALTH outcome assessment, MIGRAINE, PREVENTIVE health services, EVALUATION, CHEMICAL inhibitors

Use of telemedicine for initial outpatient subspecialist consultative visit: A national survey of general pediatricians and pediatric subspecialists

Authors: Ray, Kristin N., Bohnhoff, James C., Schweiberger, Kelsey, Sequeira, Gina M., Hanmer, Janel, Kahn, Jeremy M.

Source: In Healthcare March 2022 10(1)

Cross-sectional validation of the PROMIS-Preference scoring system by its association with social determinants of health

Authors: Hanmer, Janel

Source: Quality of Life Research, 2021 Mar 01. 30(3), 881-889.

Access URL: https://www.jstor.org/stable/48750876

Linking AM-PAC Cognition to PROMIS Cognitive Function

Authors: Thackeray, Anne, Marcus, Robin L., Yu, Lan, McCracken, Polly, Cardell, Beth, Hanmer, Janel

Source: In Archives of Physical Medicine and Rehabilitation November 2021 102(11):2157-2164

Agreement of PROMIS Preference (PROPr) scores generated from the PROMIS-29 + 2 and the PROMIS-16.

Authors: Hanmer, Janel¹ (AUTHOR), Zeng, Chengbo² (AUTHOR), Cizik, Amy M.³ (AUTHOR), Raad, Jason H.¹ (AUTHOR), Tsevat, Joel⁴ (AUTHOR), Rodriguez, Anthony⁵ (AUTHOR), Hays, Ron D.⁶ (AUTHOR), Edelen, Maria Orlando^2,5 (AUTHOR) medelen@bwh.harvard.edu

Source: Quality of Life Research. Jan2025, Vol. 34 Issue 1, p43-51. 9p.

Subject Terms: *QUALITY of life, *PUBLIC health, *MEDICAL sciences, *FATIGUE (Physiology), *BACKACHE

Study Protocol for Pain Self-Management and Patient-Oriented Buprenorphine Dosing for Pain and Retention in Office-Based Opioid Treatment: A Hybrid Type 1, 2 × 2 Factorial Randomized Controlled Trial.

Authors: Salay, Melessa, Edwards, Karlyn A., Winstanley, Erin L., Bachrach, Rachel L., Bulls, Hailey W., Hanmer, Janel, Liebschutz, Jane M., Robbins, Jonathan, Wilson, J. Deanna, Yu, Lan, Merlin, Jessica S., Murray-Krezan, Cristina

Source: Substance Use & Addiction Journal; Jan2025, Vol. 46 Issue 1, p201-207, 7p

Comparing patient-reported outcomes measurement information system^® (PROMIS^®)-16 domain scores with the PROMIS-29 and 5-item PROMIS cognitive function scores.

Authors: Zeng, Chengbo, Hays, Ron D., Rodriguez, Anthony, Hanmer, Janel, Herman, Patricia M., Edelen, Maria Orlando

Source: Quality of Life Research; Jan2025, Vol. 34 Issue 1, p27-34, 8p

Subject Terms: PSYCHOMETRICS, COGNITIVE psychology, QUALITY of life, COGNITIVE ability, FATIGUE (Physiology), SLEEP interruptions

Development of an ultra-short measure of eight domains of health-related quality of life for research and clinical care: the patient-reported outcomes measurement information system® PROMIS®-16 profile.

Authors: Edelen, Maria Orlando, Zeng, Chengbo, Hays, Ron D., Rodriguez, Anthony, Hanmer, Janel, Baumhauer, Judy, Cella, David, Reeve, Bryce B., Herman, Patricia M.

Source: Quality of Life Research; Jan2025, Vol. 34 Issue 1, p3-15, 13p

Subject Terms: QUALITY of life, ITEM response theory, COGNITIVE psychology, PSYCHOMETRICS, DEVELOPMENTAL psychology, SLEEP interruptions

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Computing PROPr Utility Scores for PROMIS® Profile Instruments

Authors: Dewitt, Barry, Jalal, Hawre, Hanmer, Janel

Source: In Value in Health March 2020 23(3):370-378

Evaluation of options for presenting health-states from PROMIS® item banks for valuation exercises

Authors: Hanmer, Janel, Cella, David, Feeny, David, Fischhoff, Baruch, Hays, Ron D., Hess, Rachel, Pilkonis, Paul A., Revicki, Dennis, Roberts, Mark, Tsevat, Joel, Yu, Lan

Source: Quality of Life Research, 2018 Jul 01. 27(7), 1835-1843.

Access URL: https://www.jstor.org/stable/44856342

Relative Disutilities of 47 Risk Factors and Conditions Assessed with Seven Preference-Based Health Status Measures in a National U.S. Sample: Toward Consistency in Cost-Effectiveness Analyses

Authors: Franks, Peter, Hanmer, Janel, Fryback, Dennis G.

Source: Medical Care, 2006 May 01. 44(5), 478-485.

Access URL: https://www.jstor.org/stable/3768286

Selection of key health domains from PROMIS® for a generic preference-based scoring system

Authors: Hanmer, Janel, Cella, David, Feeny, David, Fischhoff, Baruch, Hays, Ron D., Hess, Rachel, Pilkonis, Paul A., Revicki, Dennis, Roberts, Mark, Tsevat, Joel, Yu, Lan

Source: Quality of Life Research, 2017 Dec 01. 26(12), 3377-3385.

Access URL: https://www.jstor.org/stable/44855965

Preferences for risks and benefits of treatment outcomes for chronic low back pain: Choice‐based conjoint measure development and discrete choice experiment.

Authors: Wilson, Leslie¹ (AUTHOR) leslie.wilson@ucsf.edu, Denham, Alina² (AUTHOR), Ionova, Yelena¹ (AUTHOR), O'Neill, Conor¹ (AUTHOR), Greco, Carol M.³ (AUTHOR), Hassett, Afton L.⁴ (AUTHOR), Hanmer, Janel³ (AUTHOR), Shaikh, Sana⁵ (AUTHOR), Wolf, Mehling¹ (AUTHOR), Berven, Sigurd¹ (AUTHOR), Williams, David⁵ (AUTHOR), Ma, Yanlei⁶ (AUTHOR), Lotz, Jeffrey¹ (AUTHOR), Zheng, Patricia¹ (AUTHOR)

Source: PM & R: Journal of Injury, Function & Rehabilitation. Aug2024, Vol. 16 Issue 8, p836-847. 12p.

Subject Terms: Chronic pain, Patient preferences, Physical activity, Behavioral research, Fatigue (Physiology)

The Association between Social Media Use and Eating Concerns among US Young Adults

Authors: Sidani, Jaime E., Shensa, Ariel, Hoffman, Beth, Hanmer, Janel, Primack, Brian A.

Source: In Journal of the Academy of Nutrition and Dietetics September 2016 116(9):1465-1472

A single question about a respondent's perceived financial ability to pay monthly bills explains more variance in health utility scores than absolute income and assets questions

Authors: Hanmer, Janel, Cherepanov, Dasha

Source: Quality of Life Research, 2016 Sep 01. 25(9), 2233-2237.

Access URL: https://www.jstor.org/stable/44853302

Health Care Use, Health Behaviors, and Medical Conditions Among Individuals in Same-Sex and Opposite-Sex Partnerships : A Cross-Sectional Observational Analysis of the Medical Expenditures Panel Survey (MEPS), 2003–2011

Authors: Blosnich, John R., Hanmer, Janel, Yu, Lan, Matthews, Derrick D., Kavalieratos, Dio

Source: Medical Care, 2016 Jun 01. 54(6), 547-554.

Access URL: https://www.jstor.org/stable/26418178