Genetic Essentialism and Social Warranting

Authors: Halverson, Colin M. E.

Source: Perspectives in Biology and Medicine. 65(3):396-414

Availability: https://muse.jhu.edu/article/863667

Informed Consent and Comprehension after the Pragmatic Turn.

Authors: Halverson, Colin M. E.^1,2,3 chalver@iu.edu, Schwartz, Peter H.^1,3

Source: American Journal of Bioethics. Apr2025, Vol. 25 Issue 4, p61-63. 3p.

Subject Terms: *READABILITY (Literary style), *BIOETHICS, *GENETIC counseling, *TISSUE banks, *ETHICAL decision making, *INFORMED consent (Medical law), *COMMUNICATION

Lost in translation: the history of the Ebers Papyrus and Dr. Carl H. von Klein.

Authors: Hartsock, Jane A.¹ jhartsock@iuhealth.org, Halverson, Colin M. E.² chalver@iu.edu

Source: Journal of the Medical Library Association. Oct2023, Vol. 111 Issue 4, p844-851. 8p.

Subject Terms: *HISTORY of medicine

Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care.

Authors: Halley, Meghan C.¹, Halverson, Colin M. E.^2,3, Tabor, Holly K.¹, Goldenberg, Aaron J.⁴

Source: American Journal of Bioethics. Jul2023, Vol. 23 Issue 7, p17-26. 10p. 1 Chart.

Subject Terms: *DELAYED diagnosis, *SELF advocacy, *EDUCATION, *HEALTH services accessibility, *STAKEHOLDER analysis, *SOCIAL justice, *SOCIAL capital, *CONSUMER activism, *HEALTH equity, *RARE diseases

Geographic Terms: UNITED States

Social media use by patients with hypermobile Ehlers–Danlos syndrome.

Authors: Halverson, Colin M. E.^1,2,3,4,5 (AUTHOR) chalver@iu.edu, Doyle, Tom A.¹ (AUTHOR), Vershaw, Samantha¹ (AUTHOR)

Source: Molecular Genetics & Genomic Medicine. Jun2024, Vol. 12 Issue 6, p1-11. 11p.

Subject Terms: *EHLERS-Danlos syndrome, *SOCIAL media, *THEMATIC analysis, *CONNECTIVE tissues, *SOCIAL support, *SOCIAL perception

Patients' strategies for numeric pain assessment: a qualitative interview study of individuals with hypermobile Ehlers–Danlos Syndrome.

Authors: Halverson, Colin M. E.^1,2,3,4,5 chalver@iu.edu, Doyle, Tom A.¹

Source: Disability & Rehabilitation. Apr2024, Vol. 46 Issue 8, p1527-1533. 7p.

Subject Terms: *CHRONIC pain & psychology, *PAIN measurement, *EHLERS-Danlos syndrome, *RESEARCH funding, *QUALITATIVE research, *ACADEMIC medical centers, *INTERVIEWING, *DESCRIPTIVE statistics, *THEMATIC analysis, *PATIENTS' attitudes

Geographic Terms: INDIANA

Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region.

Authors: Wagner, Wendy, Doyle, Tom A., Francomano, Clair A., Knight, Dacre R. T., Halverson, Colin M. E.

Source: Orphanet Journal of Rare Diseases; 3/14/2024, Vol. 19 Issue 1, p1-9, 9p

Subject Terms: EHLERS-Danlos syndrome, JOINT hypermobility, MEDICAL personnel, HEALTH facilities, SUBURBS, CONNECTIVE tissues

Geographic Terms: CHICAGO (Ill.)

Improving Social Media-Based Support Groups for the Rare Disease Community: Interview Study With Patients and Parents of Children with Rare and Undiagnosed Diseases.

Authors: Doyle, Tom A¹, doylet@iu.edu, Vershaw, Samantha L¹, Conboy, Erin², Halverson, Colin M E¹

Source: JMIR Human Factors; 2024, Vol. 11, p1-13, 13p

Attitudes of African-American parents about biobank participation and return of results for themselves and their children

Authors: Halverson, Colin M E, Ross, Lainie Friedman

Source: Journal of Medical Ethics, 2012 Sep 01. 38(9), 561-566.

Access URL: https://www.jstor.org/stable/23273332

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Diagnostic deserts: Community‐level barriers to appropriate genetics services.

Authors: Doyle, Tom A.¹, Conboy, Erin¹, Halverson, Colin M. E.^1,2, chalver@iu.edu

Source: American Journal of Medical Genetics. Part A; Jan2023, Vol. 191 Issue 1, p296-298, 3p

Assessing parental understanding of variant reclassification in pediatric neurology and developmental pediatrics clinics.

Authors: Margolin, Amy, Helm, Benjamin M., Treat, Kayla, Prucka, Sandra K., Halverson, Colin M. E.

Source: Journal of Community Genetics; Oct2021, Vol. 12 Issue 4, p663-670, 8p

Patient perspectives on variant reclassification after cancer susceptibility testing.

Authors: Halverson, Colin M. E.^1,2 (AUTHOR) chalver@iu.edu, Connors, Laurie M.³ (AUTHOR), Wessinger, Bronson C.⁴ (AUTHOR), Clayton, Ellen W.^5,6,7 (AUTHOR), Wiesner, Georgia L.^4,8,9 (AUTHOR)

Source: Molecular Genetics & Genomic Medicine. Jul2020, Vol. 8 Issue 7, p1-8. 8p.

Subject Terms: *MEDICAL genetics, *GENETIC counseling, *GENETIC testing, *SEMI-structured interviews, CANCER susceptibility

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Patients' willingness to reconsider cancer genetic testing after initially declining: Mention it again.

Authors: Halverson, Colin M. E., Wessinger, Bronson C., Clayton, Ellen W., Wiesner, Georgia L.

Source: Journal of Genetic Counseling; Feb2020, Vol. 29 Issue 1, p18-24, 7p

Unspoken Ambivalence in KinshipObligation in Living Donation.

Authors: Halverson, Colin M. E., Crowley-Matoka, Megan, Ross, Lainie Friedman

Source: Progress in Transplantation; Sep2018, Vol. 28 Issue 3, p250-255, 6p

Subject Terms: CHRONIC kidney failure, CONTENT analysis, DECISION making, ORGAN donation, FAMILIES, INTERVIEWING, KIDNEY transplantation, RESEARCH methodology, PATIENT-family relations, ORGAN donors, RESEARCH funding, QUALITATIVE research, MEDICAL coding

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Content Analysis of Emoji and Emoticon Use in Clinical Texting Systems.

Authors: Halverson, Colin M. E., Donnelly, Claire E., Weiner, Michael, Lee, Joy L.

Source: JAMA Network Open; 6/13/2023, Vol. 6 Issue 6, pe2318140-e2318140, 1p

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