Implementation of patient and public involvement and engagement (PPIE) for the therapies for long COVID in non-hospitalised individuals (TLC) project

Authors: Olalekan Lee Aiyegbusi, Christel McMullan, Sarah E. Hughes, Grace M. Turner, Shamil Haroon, Richard Hotham, Kirsty Brown, Yvonne Alder, Lisa Agyen, Lewis Buckland, Jennifer Camaradou, Amy Chong, Felicity Jeyes, Karen L. Matthews, Patricia Moore, Jane Ormerod, Gary Price, Michael Saint-Cricq, David Stanton, Anita Walker, Melanie J. Calvert

Source: Research Involvement and Engagement, Vol 10, Iss 1, Pp 1-10 (2024)

Subject Terms: Patient and public involvement and engagement, PPIE, Involvement, Engagement, Co-production, Patient partners, Medicine, Medicine (General), R5-920

File Description: electronic resource

Relation: https://doaj.org/toc/2056-7529

Access URL: https://doaj.org/article/676f8d0e9a844e78a56f07789d3af488

Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial

Authors: Christel McMullan, Ameeta Retzer, Sarah E. Hughes, Olalekan Lee Aiyegbusi, Camilla Bathurst, Alan Boyd, Jamie Coleman, Elin Haf Davies, Alastair K. Denniston, Helen Dunster, Chris Frost, Rosie Harding, Amanda Hunn, Derek Kyte, Rebecca Malpass, Gary McNamara, Sandra Mitchell, Saloni Mittal, Philip N. Newsome, Gary Price, Anna Rowe, Wilma van Reil, Anita Walker, Roger Wilson, Melanie Calvert

Source: Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-13 (2023)

Subject Terms: Electronic patient reported outcomes, Usability testing, Inflammatory conditions, Cognitive interviews, Early phase advanced therapy trial, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/2509-8020

Access URL: https://doaj.org/article/1f4183a1c1e54a1a8341cfe7200a5ed5

MR histology reveals tissue features beneath heterogeneous MRI signal in genetically engineered mouse models of sarcoma

Authors: Stephanie J. Blocker, Yvonne M. Mowery, Jeffrey I. Everitt, James Cook, Gary Price Cofer, Yi Qi, Alex M. Bassil, Eric S. Xu, David G. Kirsch, Cristian T. Badea, G. Allan Johnson

Source: Frontiers in Oncology, Vol 14 (2024)

Subject Terms: MRI, sarcoma, histology, image registration, multi-modal, preclinical, Neoplasms. Tumors. Oncology. Including cancer and carcinogens, RC254-282

File Description: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fonc.2024.1287479/full; https://doaj.org/toc/2234-943X

Access URL: https://doaj.org/article/ca1846e23b09407c8c9408552edbc62d

Feasibility of a new electronic patient-reported outcome (ePRO) system for an advanced therapy clinical trial in immune-mediated inflammatory disease (PROmics): protocol for a qualitative feasibility study

Authors: Ameeta Retzer, Christel McMullan, Melanie Calvert, Gary Price, Sarah E Hughes, Elin Haf Davies, Anna Rowe, Chris Frost, Roger Wilson, Philip N Newsome, Anita Walker, Gary McNamara, Rebecca Malpass, Camilla Bathurst, Rosie Harding

Source: BMJ Open, Vol 12, Iss 9 (2022)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/12/9/e063199.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/7fd415117cb1499ca1fce27038899080

Development of an electronic patient-reported outcome measure (ePROM) system to aid the management of patients with advanced chronic kidney disease

Authors: Derek Kyte, Nicola Anderson, Ram Auti, Olalekan Lee Aiyegbusi, Jon Bishop, Andrew Bissell, Elizabeth Brettell, Melanie Calvert, Marie Chadburn, Paul Cockwell, Mary Dutton, Helen Eddington, Elliot Forster, Gabby Hadley, Natalie J. Ives, Louise Jackson, Sonja O’Brien, Gary Price, Keeley Sharpe, Stephanie Stringer, Gael Stephenson, Rav Verdi, Judi Waters, Adrian Wilcockson, Jim Williams

Source: Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-9 (2020)

Subject Terms: Chronic kidney disease, Patient-reported outcomes, Symptom monitoring, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s41687-020-00223-8; https://doaj.org/toc/2509-8020

Access URL: https://doaj.org/article/6cb7927cc5514de392809659e77a7e5a

Therapies for Long COVID in non-hospitalised individuals: from symptoms, patient-reported outcomes and immunology to targeted therapies (The TLC Study)

Authors: Tom Marshall, Elizabeth Sapey, Krishnarajah Nirantharakumar, Anuradhaa Subramanian, Christel McMullan, Melanie Calvert, Alastair K Denniston, Joht Singh Chandan, Louise J Jackson, Gary Price, George Gkoutos, Tim Williams, Sarah E Hughes, Janet Lord, Krishna Gokhale, Puja Myles, Dawit T Zemedikun, Kirsty McGee, David C Wraith, Shamil Haroon, Kirsty Brown, Karen Jones, Grace Turner, Olalekan Lee Aiyegbusi, Elin Haf Davies, Amy Bamford, Anita Walker, Christopher Frost, Thomas Taverner, Nikita Simms-Williams, Steven Marwaha, Gary McNamara, Karen Matthews, Jennifer Camaradou, Edward Leggett, Clare Iles, Michael Saint-Cricq, Sumita Kumar, Yvonne Alder, David E Stanton, Lisa Agyen, Megan Baber, Hannah Blaize

Source: BMJ Open, Vol 12, Iss 4 (2022)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/12/4/e060413.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/020ab24db6554592b038e1219d742820

Results of a pilot feasibility randomised controlled trial exploring the use of an electronic patient-reported outcome measure in the management of UK patients with advanced chronic kidney disease

Authors: Paul Cockwell, Derek Kyte, Melanie Calvert, Louise J Jackson, Gary Price, Natalie J Ives, Jon Bishop, Mary Dutton, Elizabeth Brettell, Helen Eddington, Gabby Hadley, Stephanie Stringer, Rav Verdi, Judi Waters, Keeley Sharpe, Nicola Anderson, Andrew Bissell, Marie Chadburn, Elliot Forster, Sonia O'Brien, Adrian Wilcockson

Source: BMJ Open, Vol 12, Iss 3 (2022)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/12/3/e050610.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/4509a03d98ec454997872fdd90475a50

Racial Differences in Androgen Receptor (AR) and AR Splice Variants (AR-SVs) Expression in Treatment-Naïve Androgen-Dependent Prostate Cancer

Authors: Farhan Khan, Obianuju Mercy Anelo, Qandeel Sadiq, Wendy Effah, Gary Price, Daniel L. Johnson, Suriyan Ponnusamy, Brandy Grimes, Michelle L. Morrison, Jay H. Fowke, D. Neil Hayes, Ramesh Narayanan

Source: Biomedicines, Vol 11, Iss 3, p 648 (2023)

Subject Terms: androgen receptor (AR), AR splice variants (AR-SV), prostate cancer, castration-resistant prostate cancer (CRPC), race, African American (AA), Biology (General), QH301-705.5

File Description: electronic resource

Relation: https://www.mdpi.com/2227-9059/11/3/648; https://doaj.org/toc/2227-9059

Access URL: https://doaj.org/article/6bcc6af54d354d46beb55bb163520772

‘Give Us The Tools!’: development of knowledge transfer tools to support the involvement of patient partners in the development of clinical trial protocols with patient-reported outcomes (PROs), in accordance with SPIRIT-PRO Extension

Authors: Ameeta Retzer, Anita Slade, Melanie Calvert, Rebecca Mercieca-Bebber, Gary Price, Lesley Roberts, Claudia Rutherford, Olalekan Lee Aiyegbusi, Samantha Cruz Rivera, Richard Stephens, Rav Verdi, Roger Wilson, Philip Edge, Lesley Gosden

Source: BMJ Open, Vol 11, Iss 6 (2021)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/11/6/e046450.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/038859a02a1e4dfca5e27999a64b75fa

SPIRIT-PRO Extension explanation and elaboration: guidelines for inclusion of patient-reported outcomes in protocols of clinical trials

Authors: Kirstie Haywood, Joseph C Cappelleri, Ameeta Retzer, Anita Slade, Derek Kyte, Melanie Calvert, Jane Blazeby, An-Wen Chan, Rebecca Mercieca-Bebber, Antonia Bennett, Carolyn Ells, Gary Price, Galina Velikova, Heather Draper, Dennis Revicki, Julia Brown, laura Martin, Lori Frank, Madeleine King, Jane Scott, Sandra Mitchell, Grace Turner, Michael Brundage, Andrew Bottomley, Michael Palmer, Richard Stephens, Ingolf Griebsch, Donald Patrick, Lari Wenzel, Daniel O'Connor, Robert M Golub, Olalekan Aiyegbusi, E Basch, Jill Bell, Vishal Bhatnagar, Lisa Campbell, Amylou C Dueck, Amanda Hunn, Bellinda King-Kallimanis, Thomas Morel, Linda Nelson, Josephine Norquist, Antoine Regnault, Antonia Valakas, Maria von Hildebrand, Anita Walker

Source: BMJ Open, Vol 11, Iss 6 (2021)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/11/6/e045105.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/781a2d9ef823452cb74c4e858f349f4c

Infrastructure and operating processes of PIONEER, the HDR-UK Data Hub in Acute Care and the workings of the Data Trust Committee: a protocol paper

Authors: Elizabeth Sapey, Gary Price, Suzy Gallier, Andy Rosser, Chris James, Hina Pandya, Gillian McCarmack, Bob Ruane, Laura Forty, Benjamin L Crosby, Catherine Atkin, Ralph Evans, Kevin W Dunn, Eliot Marston, Clark Crawford, Martin Levermore, Shekha Modhwadia, John Attwood, Stephen Perks, Rima Doal, Georgios Gkoutos, Richard Dormer, Hilary Fanning

Source: BMJ Health & Care Informatics, Vol 28, Iss 1 (2021)

Subject Terms: Computer applications to medicine. Medical informatics, R858-859.7

File Description: electronic resource

Relation: https://informatics.bmj.com/content/28/1/e100294.full; https://doaj.org/toc/2632-1009

Access URL: https://doaj.org/article/5ea042fd771347ff8bdf1942e0d39c1f

Guidelines for clinical trial protocols for interventions involving artificial intelligence: the SPIRIT-AI extension

Authors: Samantha Cruz Rivera, PhD, Xiaoxuan Liu, MBChB, An-Wen Chan, MD, Alastair K Denniston, ProfPhD, Melanie J Calvert, ProfPhD, Hutan Ashrafian, Andrew L Beam, Gary S Collins, Ara Darzi, Jonathan J Deeks, M Khair ElZarrad, Cyrus Espinoza, Andre Esteva, Livia Faes, Lavinia Ferrante di Ruffano, John Fletcher, Robert Golub, Hugh Harvey, Charlotte Haug, Christopher Holmes, Adrian Jonas, Pearse A Keane, Christopher J Kelly, Aaron Y Lee, Cecilia S Lee, Elaine Manna, James Matcham, Melissa McCradden, David Moher, Joao Monteiro, Cynthia Mulrow, Luke Oakden-Rayner, Dina Paltoo, Maria Beatrice Panico, Gary Price, Samuel Rowley, Richard Savage, Rupa Sarkar, Sebastian J Vollmer, Christopher Yau

Source: The Lancet: Digital Health, Vol 2, Iss 10, Pp e549-e560 (2020)

Subject Terms: Computer applications to medicine. Medical informatics, R858-859.7

File Description: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2589750020302193; https://doaj.org/toc/2589-7500

Access URL: https://doaj.org/article/be10f290c6a145a4b1d1ab837cb8746b

Reporting guidelines for clinical trial reports for interventions involving artificial intelligence: the CONSORT-AI extension

Authors: Xiaoxuan Liu, MBChB, Samantha Cruz Rivera, PhD, David Moher, PhD, Melanie J Calvert, ProfPhD, Alastair K Denniston, ProfPhD, Hutan Ashrafian, Andrew L Beam, An-Wen Chan, Gary S Collins, Ara DarziJonathan J Deeks, M Khair ElZarrad, Cyrus Espinoza, Andre Esteva, Livia Faes, Lavinia Ferrante di Ruffano, John Fletcher, Robert Golub, Hugh Harvey, Charlotte Haug, Christopher Holmes, Adrian Jonas, Pearse A Keane, Christopher J Kelly, Aaron Y Lee, Cecilia S Lee, Elaine Manna, James Matcham, Melissa McCradden, Joao Monteiro, Cynthia Mulrow, Luke Oakden-Rayner, Dina Paltoo, Maria Beatrice Panico, Gary Price, Samuel Rowley, Richard Savage, Rupa Sarkar, Sebastian J Vollmer, Christopher Yau

Source: The Lancet: Digital Health, Vol 2, Iss 10, Pp e537-e548 (2020)

Subject Terms: Computer applications to medicine. Medical informatics, R858-859.7

File Description: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2589750020302181; https://doaj.org/toc/2589-7500

Access URL: https://doaj.org/article/35cdeea7f8414dccbc73aed812fd7a9e

Persistent psychotic symptoms following COVID-19 infection

Authors: Soon Tjin Lim, Benjamin Janaway, Harry Costello, Anand Trip, Gary Price

Source: BJPsych Open, Vol 6 (2020)

Subject Terms: Psychotic disorders, schizophrenia, clinical neurology, cognitive neuroscience, neuroimmunology, Psychiatry, RC435-571

File Description: electronic resource

Relation: https://www.cambridge.org/core/product/identifier/S2056472420000769/type/journal_article; https://doaj.org/toc/2056-4724

Access URL: https://doaj.org/article/31677f4e8c7e4cce88b6d03dfe30d89b

MR histology reveals tissue features beneath heterogeneous MRI signal in genetically engineered mouse models of sarcoma.

Authors: Blocker, Stephanie J., Mowery, Yvonne M., Everitt, Jeffrey I., Cook, James, Cofer, Gary Price, Yi Qi, Bassil, Alex M., Xu, Eric S., Kirsch, David G., Badea, Cristian T., Johnson, G. Allan

Source: Frontiers in Oncology; 2024, p1-16, 16p

Subject Terms: HISTOLOGY, LABORATORY mice, MAGNETIC resonance imaging, SARCOMA, MULTIPLE comparisons (Statistics)

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Systems and Methods for Assessing Pulmonary Gas Transfer using Hyperpolarized 129XE MRI

SYSTEMS AND METHODS FOR ASSESSING PULMONARY GAS TRANSFER USING HYPERPOLARIZED 129XE MRI

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