Context in Shaping the Ability of a Child to Assent to Research

Authors: Fernandez, Conrad V

Source: The American Journal of Bioethics. 3(4):29-30

Availability: https://muse.jhu.edu/article/49732

Outcomes according to treatment using an established protocol in patients with bilateral Wilms' tumor: A national Canadian population-based study

Authors: Bednarek, Olga L., Seemann, Natashia, Brzezinski, Jack, Lorenzo, Armando, Fernandez, Conrad V., Romao, Rodrigo L.P.

Source: JOURNAL OF PEDIATRIC SURGERY. 58(5):1014-1017

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100187592581.0x000001&indx=1&recIds=ETOCvdc_100187592581.0x000001

Circulating Tumor DNA as a Biomarker in Patients With Stage III and IV Wilms Tumor: Analysis From a Children's Oncology Group Trial, AREN0533

Authors: Madanat-Harjuoja, Laura M., Renfro, Lindsay A., Klega, Kelly, Tornwall, Brett, Thorner, Aaron R., Nag, Anwesha, Dix, David, Dome, Jeffrey S., Diller, Lisa R., Fernandez, Conrad V., Mullen, Elizabeth A., Crompton, Brian D.

Source: Journal of clinical oncology. 40(26):3047-3056

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100170415462.0x000001&indx=1&recIds=ETOCvdc_100170415462.0x000001

Pain and Fear of Cancer Recurrence in Survivors of Childhood Cancer

Authors: Tutelman, Perri R., Chambers, Christine T., Noel, Melanie, Heathcote, Lauren C., Fernandez, Conrad V., Flanders, Annette, MacLeod, Julia, Sherry, Simon B., Simard, Sébastien, Stern, Maya, Stewart, Sherry H., Urquhart, Robin

Source: Clinical journal of pain. 38(7):484-491

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100155547812.0x000001&indx=1&recIds=ETOCvdc_100155547812.0x000001

Implementing compassion in pediatric healthcare: A qualitative study of Canadian patients', parents', and healthcare providers' perspectives

Authors: Sinclair, Shane, Jaggi, Priya, Bouchal, Shelley Raffin, Kuhn, Susan, Schulte, Fiona, Guilcher, Gregory M.T., Rapoport, Adam, Punnett, Angela, Fernandez, Conrad V., Letourneau, Nicole, Chung, Joanna

Source: Journal of pediatric nursing. 62:e103-e112

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100154955358.0x000001&indx=1&recIds=ETOCvdc_100154955358.0x000001

Outcomes based on histopathologic response to preoperative chemotherapy in children with bilateral Wilms tumor: A prospective study (COG AREN0534)

Authors: Chintagumpala, Murali M., Perlman, Elizabeth J., Tornwall, Brett, Chi, Yueh‐Yun, Kim, Yeonil, Hoffer, Fredric A., Kalapurakal, John A., Warwick, Anne B., Shamberger, Robert C., Khanna, Geetika, Hamilton, Thomas E., Gow, Kenneth W., Paulino, Arnold C., Gratias, Eric J., Mullen, Elizabeth A., Geller, James I., Fernandez, Conrad V., Ritchey, Michael L., Grundy, Paul E., Dome, Jeffrey S., Ehrlich, Peter F.

Source: Cancer. 128(13):2493-2503

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100153654170.0x000001&indx=1&recIds=ETOCvdc_100153654170.0x000001

Measuring fear of cancer recurrence in survivors of childhood cancer: Development and preliminary validation of the Fear of Cancer Recurrence Inventory (FCRI)‐Child and Parent versions

Authors: Tutelman, Perri R., Chambers, Christine T., Heathcote, Lauren C., Fernandez, Conrad V., Flanders, Annette, Patton, Michaela, Schulte, Fiona S. M., Guilcher, Gregory M. T., Simard, Sébastien, MacLeod, Julia, Stern, Maya

Source: Psycho-oncology. 31(6):911-919

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100152026542.0x000001&indx=1&recIds=ETOCvdc_100152026542.0x000001

Long-term alterations in somatosensory functioning in survivors of childhood cancer

Authors: Tutelman, Perri R., Chambers, Christine T., Cornelissen, Laura, Fernandez, Conrad V., Flanders, Annette, MacLeod, Julia, Sherry, Simon B., Stewart, Sherry H., Urquhart, Robin, de Gagne, Sitara, Guilcher, Gregory M.T., Hashmi, Javeria, Heathcote, Lauren C., Noel, Melanie, Schulte, Fiona S.M., Stinson, Jennifer N., Stern, Maya

Source: Pain. 163(6):1193-1205

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100150156697.0x000001&indx=1&recIds=ETOCvdc_100150156697.0x000001

White paper: Oncofertility in pediatric patients with Wilms tumor

Authors: Perk, M. E. Madeleine, Cost, Nicholas G., Bos, Annelies M. E., Brannigan, Robert, Chowdhury, Tanzina, Davidoff, Andrew M., Daw, Najat C., Dome, Jeffrey S., Ehrlich, Peter, Graf, Norbert, Geller, James, Kalapurakal, John, Kieran, Kathleen, Malek, Marcus, McAleer, Mary F., Mullen, Elizabeth, Pater, Luke, Polanco, Angela, Romao, Rodrigo, Saltzman, Amanda F., Walz, Amy L., Woods, Andrew D., Heuvel‐Eibrink, Marry M., Fernandez, Conrad V.

Source: International journal of cancer. 151(6):843-858

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100156723599.0x000001&indx=1&recIds=ETOCvdc_100156723599.0x000001

Outcomes of relapsed favorable‐histology Wilms tumor in non‐clinical trial setting.

Authors: Schneller, Netta, Daw, Najat, Throckmorton, Whitney, Mullen, Elizabeth, DeSmith, Kylene, Marcarenhas, Leo, O'Connell, Cameron, Fernandez, Conrad V., Sutton, Kathryn S., Venkatramani, Rajkumar

Source: Pediatric Blood & Cancer; Jan2025, Vol. 72 Issue 1, p1-6, 6p

A Validated Risk Prediction Model for Bone Fragility in Children With Acute Lymphoblastic Leukemia

Authors: Verwaaijen, Emma J., Ma, Jinhui, Groot‐Kruseman, Hester A., Pieters, Rob, Sluis, Inge M., Atteveld, Jenneke E., Halton, Jacqueline, Fernandez, Conrad V., Hartman, Annelies, Jonge, Robert, Lequin, Maarten H., Winkel, Mariël L., Alos, Nathalie, Atkinson, Stephanie A., Barr, Ronald, Grant, Ronald M., Hay, John, Huber, Adam M., Ho, Josephine, Jaremko, Jacob, Koujok, Khaldoun, Lang, Bianca, Matzinger, Mary‐Ann, Shenouda, Nazih, Rauch, Frank, Rodd, Celia, Heuvel‐Eibrink, Marry M., Pluijm, Saskia M.F., Ward, Leanne M.

Source: Journal of bone and mineral research. 36(12):2290-2299

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100137339409.0x000001&indx=1&recIds=ETOCvdc_100137339409.0x000001

SLC25A38 congenital sideroblastic anemia: Phenotypes and genotypes of 31 individuals from 24 families, including 11 novel mutations, and a review of the literature

Authors: Heeney, Matthew M., Berhe, Simon, Campagna, Dean R., Oved, Joseph H., Kurre, Peter, Shaw, Peter J., Teo, Juliana, Shanap, Mayada A., Hassab, Hoda M., Glader, Bertil E., Shah, Sanjay, Yoshimi, Ayami, Ameri, Afshin, Antin, Joseph H., Boudreaux, Jeanne, Briones, Michael, Dickerson, Kathryn E., Fernandez, Conrad V., Farah, Roula, Hasle, Henrik, Keel, Sioban B., Olson, Timothy S., Powers, Jacquelyn M., Rose, Melissa J., Shimamura, Akiko, Bottomley, Sylvia S., Fleming, Mark D.

Source: Human mutation. 42(11):1367-1383

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100131857093.0x000001&indx=1&recIds=ETOCvdc_100131857093.0x000001

Compassion in pediatric oncology: A patient, parent and healthcare provider empirical model

Authors: Sinclair, Shane, Bouchal, Shelley Raffin, Schulte, Fiona, Guilcher, Gregory, Kuhn, Susan, Rapoport, Adam, Punnett, Angela, Fernandez, Conrad V., Letourneau, Nicole, Chung, Joanna

Source: Psycho-oncology. 30(10):1728-1738

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100131622117.0x000001&indx=1&recIds=ETOCvdc_100131622117.0x000001

Investigating the gut microbial community and genes in children with differing levels of change in serum asparaginase activity during pegaspargase treatment for acute lymphoblastic leukemia

Authors: Dunn, Katherine A., Connors, Jessica, Bielawski, Joseph P., Nearing, Jacob T., Langille, Morgan G. I., Van Limbergen, Johan, Fernandez, Conrad V., MacDonald, Tamara, Kulkarni, Ketan

Source: Leukemia & lymphoma. 62(4):927-936

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100117673842.0x000001&indx=1&recIds=ETOCvdc_100117673842.0x000001

Survival effect of complete surgical resection of the primary tumor in patients with metastatic, high‐risk neuroblastoma in a large Canadian cohort

Authors: Seemann, Natashia M., Erker, Craig, Irwin, Meredith S., Lopushinsky, Steven R., Kulkarni, Ketan, Fernandez, Conrad V., Romao, Rodrigo L. P.

Source: Pediatric blood & cancer. 70(6)

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100182167021.0x000001&indx=1&recIds=ETOCvdc_100182167021.0x000001

Treatment of stage I anaplastic Wilms' tumour: a report from the Children's Oncology Group AREN0321 study

Authors: Daw, Najat C., Chi, Yueh-Yun, Kim, Yeonil, Mullen, Elizabeth A., Kalapurakal, John A., Tian, Jing, Khanna, Geetika, Geller, James I., Perlman, Elizabeth J., Ehrlich, Peter F., Warwick, Anne B., Grundy, Paul E., Fernandez, Conrad V., Dome, Jeffrey S.

Source: In European Journal of Cancer September 2019 118:58-66

A prospective study of pediatric and adolescent renal cell carcinoma: A report from the Children's Oncology Group AREN0321 study

Authors: Geller, James I., Cost, Nicholas G., Chi, Yueh‐Yun, Tornwall, Brett, Cajaiba, Mariana, Perlman, Elizabeth J., Kim, Yeonil, Mullen, Elizabeth A., Glick, Richard D., Khanna, Geetika, Daw, Najat C., Ehrlich, Peter, Fernandez, Conrad V., Dome, Jeffrey S.

Source: Cancer. 126(23):5156-5164

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100127391320.0x000001&indx=1&recIds=ETOCvdc_100127391320.0x000001

Results of Treatment for Patients With Multicentric or Bilaterally Predisposed Unilateral Wilms Tumor (AREN0534): A report from the Children's Oncology Group

Authors: Ehrlich, Peter F., Chi, Yueh‐Yun, Chintagumpala, Murali M., Hoffer, Fredric A., Perlman, Elizabeth J., Kalapurakal, John A., Tornwall, Brett, Warwick, Anne, Shamberger, Robert C., Khanna, Geetika, Hamilton, Thomas E., Gow, Kenneth W., Paulino, Arnold C., Gratias, Eric J., Mullen, Elizabeth A., Geller, James I., Grundy, Paul E., Fernandez, Conrad V., Dome, Jeffrey S.

Source: Cancer. 126(15):3516-3525

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100122591875.0x000001&indx=1&recIds=ETOCvdc_100122591875.0x000001

Androgen therapy in inherited bone marrow failure syndromes: analysis from the Canadian Inherited Marrow Failure Registry

Authors: Català, Albert, Ali, Salah S., Cuvelier, Geoffrey D. E., Steele, MacGregor, Klaassen, Robert J., Fernandez, Conrad V., Pastore, Yves D., Abish, Sharon, Rayar, Meera, Jardine, Lawrence, Breakey, Vicky R., Brossard, Josee, Sinha, Roona, Silva, Mariana, Goodyear, Lisa, Lipton, Jeffrey H., Michon, Bruno, Corriveau‐Bourque, Catherine, Sung, Lillian, Lauhasurayotin, Supanun, Zlateska, Bozana, Cada, Michaela, Dror, Yigal

Source: British journal of haematology. 189(5):976-981

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100120009512.0x000001&indx=1&recIds=ETOCvdc_100120009512.0x000001

Outcome analysis of stage I epithelial‐predominant favorable‐histology Wilms tumors: A report from Children's Oncology Group study AREN03B2

Authors: Parsons, Lauren N., Mullen, Elizabeth A., Geller, James I., Chi, Yueh‐Yun, Khanna, Geetika, Glick, Richard D., Aldrink, Jennifer H., Vallance, Kelly L., Kim, Yeonil, Fernandez, Conrad V., Dome, Jeffrey S., Perlman, Elizabeth J.

Source: Cancer. 126(12):2866-2871

Availability: http://explore.bl.uk/primo_library/libweb/action/display.do?tabs=detailsTab&gathStatTab=true&ct=display&fn=search&doc=ETOCvdc_100107441624.0x000001&indx=1&recIds=ETOCvdc_100107441624.0x000001