Genetics healthcare providers' experiences counseling patients with results from consumer genomic testing

Authors: Magan Trottier, Dina Green, Hannah Ovadia, Amanda Catchings, Julia Gruberg, Victoria Groner, Catherine Fanjoy, Sita Dandiker, Kathleen Blazer, Jada G. Hamilton, Kenneth Offit

Source: Molecular Genetics & Genomic Medicine, Vol 12, Iss 8, Pp n/a-n/a (2024)

Subject Terms: consumer‐initiated genetic testing, direct‐to‐consumer genetic testing, genetic counseling, genetics healthcare providers, Genetics, QH426-470

File Description: electronic resource

Relation: https://doaj.org/toc/2324-9269

Access URL: https://doaj.org/article/c11147e7f55d4992b7ae423cd88b052d

Ethics of the clinical practice of nutrigenetics and nutrigenomics

Authors: Florencia Ceriani, Martha Montalvan, Beatriz Quintero, Rosario Suárez, Estefanía Bautista-Valarezo, Evelyn Frias-Toral

Source: Clinical Nutrition Open Science, Vol 49, Iss , Pp 58-66 (2023)

Subject Terms: Ethical dilemmas, Nutrigenomics and nutrigenetics, Professional training, Consumers/recipients' dilemmas, Direct-to-consumer genetic testing, Nutrition. Foods and food supply, TX341-641

File Description: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2667268523000189; https://doaj.org/toc/2667-2685

Access URL: https://doaj.org/article/31f241127805433a9a54aebb606118a6

Genomic Privacy and Direct-to-Consumer Genetics: Big Consumer Genetic Data -- What's in that Contract?

Authors: Phillips, Andelka M.

Source: 2015 IEEE Security and Privacy Workshops Security and Privacy Workshops (SPW), 2015 IEEE. :60-64 May, 2015

Relation: 2015 IEEE Security and Privacy Workshops (SPW)

Security Implications of Direct-to-Consumer Genetic Sevices

Authors: Li, Jingquan

Source: 2015 IEEE First International Conference on Big Data Computing Service and Applications Big Data Computing Service and Applications (BigDataService), 2015 IEEE First International Conference on. :147-153 Mar, 2015

Relation: 2015 IEEE First International Conference on Big Data Computing Service and Applications (BigDataService)

Direct-to-Consumer Genetic Testing in South Africa: Stumbling Over the First Legal Hurdle?

Authors: Amy Gooden, Donrich W Thaldar

Source: Potchefstroom Electronic Law Journal, Vol 25 (2022)

Subject Terms: Direct-to-consumer genetic testing, saliva sample, removal, tissue, biological material, National Health Act, Law in general. Comparative and uniform law. Jurisprudence, K1-7720

File Description: electronic resource

Relation: https://perjournal.co.za/article/view/11764; https://doaj.org/toc/1727-3781

Access URL: https://doaj.org/article/637215e83fe940fa9fd175267370f480

Are providers prepared for genomic medicine: interpretation of Direct-to-Consumer genetic testing (DTC-GT) results and genetic self-efficacy by medical professionals

Authors: Scott P. McGrath, Nephi Walton, Marc S. Williams, Katherine K. Kim, Kiran Bastola

Source: BMC Health Services Research, Vol 19, Iss 1, Pp 1-12 (2019)

Subject Terms: Precision medicine, Commercial genetics, Direct-to-consumer genetic testing, Primary care, Genetic counseling, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s12913-019-4679-8; https://doaj.org/toc/1472-6963

Access URL: https://doaj.org/article/d8eb0f160ec04e9a9d9919dfffb9c26b

Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?

Authors: Christi J. Guerrini, Meaganne Lewellyn, Mary A. Majumder, Meredith Trejo, Isabel Canfield, Amy L. McGuire

Source: BMC Medical Ethics, Vol 20, Iss 1, Pp 1-13 (2019)

Subject Terms: Citizen science, Intellectual property, Return of results, Research ethics, Direct-to-consumer genetic testing, Medical philosophy. Medical ethics, R723-726

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s12910-019-0419-1; https://doaj.org/toc/1472-6939

Access URL: https://doaj.org/article/ad9a333493834239928a2c9c5f14b2a2

Contestable kinship: user experience and engagement on DTC genetic testing sites

Authors: Katherine Gregory

Source: New Genetics and Society, Vol 38, Iss 4, Pp 387-409 (2019)

Subject Terms: balkan identity, social media tools, genetic kinship, direct-to-consumer genetic testing kits, particapatory tools, user-generated information and social capital, autoethnography, Genetics, QH426-470, Medical philosophy. Medical ethics, R723-726

File Description: electronic resource

Relation: https://doaj.org/toc/1463-6778; https://doaj.org/toc/1469-9915

Access URL: https://doaj.org/article/530ea75baf0b4663a05fbc821d274c19

Editorial: Personal Genomes: Accessing, Sharing, and Interpretation

Authors: Manuel Corpas, Stephan Beck, Gustavo Glusman, Mahsa Shabani

Source: Frontiers in Genetics, Vol 12 (2021)

Subject Terms: personal genomics, direct-to-consumer genetic testing, citizen science, data sharing, ethical, legal, Genetics, QH426-470

File Description: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fgene.2021.687584/full; https://doaj.org/toc/1664-8021

Access URL: https://doaj.org/article/499263248b41460785a83f2e2e39c47f

Contesting New Markets for Bodily Knowledge: When and How Experts Draw the Line

Authors: Almeling, Rene

Contributors: Boero, Natalie, book editor, Mason, Katherine, book editor

Source: The Oxford Handbook of the Sociology of Body and Embodiment.

Availability: https://doi.org/10.1093/oxfordhb/9780190842475.013.29

Genetic Testing Consumers in Italy: A Preliminary Investigation of the Socio-Demographic Profile, Health-Related Habits, and Decision Purposes

Authors: Serena Oliveri, Giulia Marton, Laura Vergani, Ilaria Cutica, Alessandra Gorini, Francesca Spinella, Gabriella Pravettoni

Source: Frontiers in Public Health, Vol 8 (2020)

Subject Terms: direct to consumer genetic testing, consumers' socio-demographic profile, public health, decision making, education in genetics, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://www.frontiersin.org/article/10.3389/fpubh.2020.00511/full; https://doaj.org/toc/2296-2565

Access URL: https://doaj.org/article/805a6a31813a4fc0af9173198100f2b2

Failure to follow up on a medically actionable finding from direct to consumer genetic testing: A case report

Authors: Ramin Garmany, Christopher J. Lee, Richard R. Sharp, Iftikhar J. Kullo

Source: Molecular Genetics & Genomic Medicine, Vol 8, Iss 6, Pp n/a-n/a (2020)

Subject Terms: C282Y HFE, direct to consumer genetic testing, genetic counseling, hereditary hemochromatosis, Genetics, QH426-470

File Description: electronic resource

Relation: https://doaj.org/toc/2324-9269

Access URL: https://doaj.org/article/3256c96b25464454b8bebf4f68735fd6

Genetic Privacy and Data Protection: A Review of Chinese Direct-to-Consumer Genetic Test Services

Authors: Li Du, Meng Wang

Source: Frontiers in Genetics, Vol 11 (2020)

Subject Terms: direct-to-consumer genetic testing, Chinese genetic testing providers, genetic information protection, data privacy, consumers’ right to their genetic information, data sharing, Genetics, QH426-470

File Description: electronic resource

Relation: https://www.frontiersin.org/article/10.3389/fgene.2020.00416/full; https://doaj.org/toc/1664-8021

Access URL: https://doaj.org/article/dc15b5bd6d4e45c5b1baed74855a6744

Medicine, market and communication: ethical considerations in regard to persuasive communication in direct-to-consumer genetic testing services

Authors: Manuel Schaper, Silke Schicktanz

Source: BMC Medical Ethics, Vol 19, Iss 1, Pp 1-11 (2018)

Subject Terms: Direct-to-consumer genetic testing, Communication ethics, Advertising, Genetic Counselling, Persuasive communication, Medical philosophy. Medical ethics, R723-726

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s12910-018-0292-3; https://doaj.org/toc/1472-6939

Access URL: https://doaj.org/article/0bd3f1661ea04b788e1a879d583bf0c6

Reading the fine print when buying your genetic self online: direct-to-consumer genetic testing terms and conditions

Authors: Andelka M. Phillips

Source: New Genetics and Society, Vol 36, Iss 3, Pp 273-295 (2017)

Subject Terms: direct-to-consumer genetic testing, regulation, contract, unfair terms, clickwrap, informed choice, Genetics, QH426-470, Medical philosophy. Medical ethics, R723-726

File Description: electronic resource

Relation: https://doaj.org/toc/1463-6778; https://doaj.org/toc/1469-9915

Access URL: https://doaj.org/article/641c7155298c4ecd9482ed94a5683997

What is genomic medicine?

Authors: Stephanie Clare Roth

Source: Journal of the Medical Library Association, Vol 107, Iss 3 (2019)

Subject Terms: Genomic Medicine, Precision Medicine, Gene Editing, CRISPR, Direct-to-Consumer Genetic Testing, Genetic Testing, Bibliography. Library science. Information resources, Medicine

File Description: electronic resource

Relation: http://jmla.pitt.edu/ojs/jmla/article/view/604; https://doaj.org/toc/1536-5050; https://doaj.org/toc/1558-9439

Access URL: https://doaj.org/article/1b2d2f1663f34efea456b9571fc3ad3a

Regulation of Internet-based Genetic Testing: Challenges for Australia and Other Jurisdictions

Authors: Jane Tiller, Paul Lacaze

Source: Frontiers in Public Health, Vol 6 (2018)

Subject Terms: direct-to-consumer genetic testing, regulation, public health genomics, Australia, Therapeutic Goods Administration, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: http://journal.frontiersin.org/article/10.3389/fpubh.2018.00024/full; https://doaj.org/toc/2296-2565

Access URL: https://doaj.org/article/b2ef16172f534247b93fb62c09677add

Reflections on the US FDA's Warning on Direct-to-Consumer Genetic Testing

Authors: Seon-Hee Yim, Yeun-Jun Chung

Source: Genomics & Informatics, Vol 12, Iss 4, Pp 151-155 (2014)

Subject Terms: direct-to-consumer genetic testing, medical device, regulation, Genetics, QH426-470

File Description: electronic resource

Relation: http://genominfo.org/upload/pdf/gni-12-151.pdf; https://doaj.org/toc/1598-866X; https://doaj.org/toc/2234-0742

Access URL: https://doaj.org/article/da9174cf56014142b0a9f9f7cfe0958a

Regulating the use of genetic tests: Is Dutch law an example for other countries with regard to DTC genetic testing?

Authors: R.E. van Hellemondt, A.C. Hendriks, M.H. Breuning

Source: Amsterdam Law Forum, Vol 3, Iss 1, Pp 13-24 (2011)

Subject Terms: regulation, direct-to-consumer genetic testing, Dutch Act on Population Screening, European legal standards, Law

File Description: electronic resource

Relation: http://ojs.ubvu.vu.nl/alf/article/view/194; https://doaj.org/toc/1876-8156

Access URL: https://doaj.org/article/dfdc508b14b04da0bc486fbb6225657f

Dealing with the unexpected: consumer responses to direct-access BRCA mutation testing

Authors: Uta Francke, Cheri Dijamco, Amy K. Kiefer, Nicholas Eriksson, Bianca Moiseff, Joyce Y. Tung, Joanna L. Mountain

Source: PeerJ, Vol 1, p e8 (2013)

Subject Terms: BRCA mutations, Ashkenazi Jewish ancestry, Direct-access genetic testing, Direct-to-consumer genetic testing, Male BRCA carriers, Risk-reducing mastectomy, Medicine, Biology (General), QH301-705.5

File Description: electronic resource

Relation: https://peerj.com/articles/8.pdf; https://peerj.com/articles/8/; https://doaj.org/toc/2167-8359

Access URL: https://doaj.org/article/b19720005e88478cbc73dcd8bbf9a507