Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program

Authors: Linda Kwakkenbos, Nora Østbø, Marie-Eve Carrier, Warren R. Nielson, Claire Fedoruk, Brooke Levis, Richard S. Henry, Janet Pope, Tracy Frech, Shadi Gholizadeh, Sindhu R. Johnson, Pamela Piotrowski, Lisa R. Jewett, Jessica Gordon, Lorinda Chung, Dan Bilsker, Lydia Tao, Kimberly A. Turner, Julie Cumin, Joep Welling, Catherine Fortuné, Catarina Leite, Karen Gottesman, Maureen Sauvé, Tatiana Sofia Rodriguez Reyna, Marie Hudson, Maggie Larche, Ward van Breda, Maria E. Suarez-Almazor, Susan J. Bartlett, Vanessa L. Malcarne, Maureen D. Mayes, Isabelle Boutron, Luc Mouthon, Andrea Benedetti, Brett D. Thombs, on behalf of the SPIN Investigators

Source: Pilot and Feasibility Studies, Vol 8, Iss 1, Pp 1-15 (2022)

Subject Terms: Feasibility trial, Scleroderma, Systemic sclerosis, Self-management, Internet intervention, Cohort multiple RCT, Medicine (General), R5-920

File Description: electronic resource

Relation: https://doaj.org/toc/2055-5784

Access URL: https://doaj.org/article/b34149341f2740519aca1039e7c0187a

The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial

Authors: Julia Nordlund, Richard S. Henry, Linda Kwakkenbos, Marie-Eve Carrier, Brooke Levis, Warren R. Nielson, Susan J. Bartlett, Laura Dyas, Lydia Tao, Claire Fedoruk, Karen Nielsen, Marie Hudson, Janet Pope, Tracy Frech, Shadi Gholizadeh, Sindhu R. Johnson, Pamela Piotrowski, Lisa R. Jewett, Jessica Gordon, Lorinda Chung, Dan Bilsker, Alexander W. Levis, Kimberly A. Turner, Julie Cumin, Joep Welling, Catherine Fortuné, Catarina Leite, Karen Gottesman, Maureen Sauve, Tatiana Sofía Rodríguez-Reyna, Maggie Larche, Ward van Breda, Maria E. Suarez-Almazor, Amanda Wurz, Nicole Culos-Reed, Vanessa L. Malcarne, Maureen D. Mayes, Isabelle Boutron, Luc Mouthon, Andrea Benedetti, Brett D. Thombs, on behalf of the SPIN Investigators

Source: Trials, Vol 22, Iss 1, Pp 1-22 (2021)

Subject Terms: Scleroderma, Systemic sclerosis, Self-management, Self-efficacy, Patient activation, Randomized controlled trial, Medicine (General), R5-920

File Description: electronic resource

Relation: https://doaj.org/toc/1745-6215

Access URL: https://doaj.org/article/1357d21853f5484f8f43ccef5c8ce654

Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (SPIN-SSLED) Program

Authors: Brett D. Thombs, Kylene Aguila, Laura Dyas, Marie-Eve Carrier, Claire Fedoruk, Linda Horwood, Mara Cañedo-Ayala, Maureen Sauvé, Linda Kwakkenbos, Vanessa L. Malcarne, Ghassan El-Baalbaki, Sandra Peláez, Kerri Connolly, Marie Hudson, Robert W. Platt, SPIN-SSLED Support Group Advisory Team

Source: Trials, Vol 20, Iss 1, Pp 1-12 (2019)

Subject Terms: Patient education, Peer support, Feasibility trial, Scleroderma, Support groups, Systemic sclerosis, Medicine (General), R5-920

File Description: electronic resource

Relation: https://doaj.org/toc/1745-6215

Access URL: https://doaj.org/article/4aa56f5851d44668b86837d19f688652

Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study

Authors: Thierry Martin, Carter Thorne, Brett D Thombs, Vincent Poindron, John Varga, Isabelle Boutron, Linda Kwakkenbos, Marie-Eve Carrier, Karen Nielsen, Alexandra Portales, Susan J Bartlett, Vanessa L Malcarne, Karen Gottesman, Warren R Nielson, Robert Riggs, Maureen Sauve, Fredrick Wigley, Shervin Assassi, Angela Costa Maia, Ghassan El-Baalbaki, Carolyn Ells, Catherine Fortune, Dominique Godard, Ann Impens, Yeona Jang, Ann Tyrell Kennedy, Annett Körner, Maggie Larche, Catarina Leite, Carlo Marra, Janet Pope, Tatiana Sofia Rodriguez Reyna, Joep Welling, Durhane Wong-Rieger, Alexandra Albert, Marc André, Guylaine Arsenault, Ilham Benzidia, Lyne Bissonnette, Gilles Boire, Alessandra Bruns, Patricia Carreira, Marion Casadevall, Lorinda Chung, Pascal Cohen, Pierre Dagenais, Christopher Denton, Robyn Domsic, Sandrine Dubois, Bertrand Dunogue, Alexia Esquinca, Regina Fare, Dominique Farge-bancel, Anna Gill, Jessica Gordon, Brigitte Granel-Rey, Genevieve Gyger, Pierre-Yves Hatron, Ariane L Herrick, Adrian Hij, Monique Hinchcliff, Alena Ikic, Niall Jones, Suzanne Kafaja, Nader Khalidi, Patrick Liang, Joanne Manning, Maria Martin, Ariel Masetto, Sheila Melchor, David Robinson, Esther Rodriguez, Sophie Roux, Perrine Smets, Doug Smith, Robert Spiera, Evelyn Sutton, Benjamin Terrier, Pearce Wilcox, Michelle Wilson, Julie Cumin, François Rannou, Daniel E. Furst, Maureen D. Mayes, Lindsay Cronin, Stephen Elrod, Cornelia van den Ende, Amy Gietzen, Daphna Harel Geneviève Guillot, Shirley Haslam, Sindhu R. Johnson, Christelle Nguyen, Michelle Richard, Ken Rozee, Anne A. Schouffoer, Russell J. Steele, Nancy Stephens, Maria E. Suarez-Almazor, Chase Correia, James V. Dunne, Paul R. Fortin, Artur Jose de B. Fernandes, Nancy Maltez, Isabelle Marie, Kylene Anne Aguila, Mara Cañedo Ayala, Andrea Carboni-Jiménez, Claire Fedoruk, Lydia Tao, Kimberly Turner, Sami Harb, Mekinian Arsene, Nikpour Mandana, Gholizadeh Shadi

Source: BMJ Open, Vol 9, Iss 10 (2019)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/9/10/e029542.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/cbae4e695cfa46f89f3d6e4456d53273

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