Physical Activity, Bleedings and Quality of Life in Subjects with Haemophilia A without Inhibitors—A Multicenter, Observational Italian Study with a Wearable Device.

Authors: Mancuso, Maria Elisa¹ (AUTHOR) mariaelisa_mancuso@libero.it, Biasoli, Chiara² (AUTHOR) chiara.biasoli@auslromagna.it, Marino, Renato³ (AUTHOR) renato.marino@policlinico.ba.it, Buzzi, Andrea⁴ (AUTHOR) andrea.buzzi@fondazioneparacelso.it, Preti, Daniele⁵ (AUTHOR) daniele.preti@fedemo.it, Sannino, Luigi⁶ (AUTHOR) luigi.sannino@roche.com, Tempre, Rosaria⁶ (AUTHOR) rosaria.tempre@roche.com, Bendinelli, Sara⁶ (AUTHOR) elena.pompeo@roche.com, Pompeo, Elena⁶ (AUTHOR), Siri, Giacomo⁷ (AUTHOR) siri.giacomo03@gmail.com, Castaman, Giancarlo⁸ (AUTHOR) giancarlo.castaman@unifi.it

Source: Journal of Clinical Medicine. Jun2024, Vol. 13 Issue 11, p3036. 22p.

Subject Terms: *QUALITY of life, *PHYSICAL activity, *SEDENTARY behavior, *HEMOPHILIA, *PHYSICAL fitness mobile apps, *SCIENTIFIC observation

Geographic Terms: ITALY

Company/Entity: WORLD Health Organization

Pattern of use and clinical outcomes with rIX‐FP in pediatric/adolescent patients with haemophilia B in Italy: Results from IDEAL real‐world study.

Authors: Giordano, Paola, Pollio, Berardino, Sottilotta, Gianluca, Biasoli, Chiara, Daniele, Filomena, De Cristofaro, Raimondo, Peyvandi, Flora, Villa, Maria Rosaria, Castaman, Giancarlo, Banov, Laura, Borchiellini, Alessandra, Coppola, Antonio, Cultrera, Dorina, Cipolla, Antonino, Demartis, Francesco, Marchesini, Emanuela, Margaglione, Maurizio, Marino, Renato, Radossi, Paolo, Santoro, Cristina

Source: European Journal of Haematology; May2024, Vol. 112 Issue 5, p765-775, 11p

Subject Terms: HEMOPHILIACS, TREATMENT effectiveness, TEENAGERS

Geographic Terms: ITALY

The psychosocial impact of haemophilia from patients' and caregivers' point of view: The results of an Italian survey.

Authors: Fornari, Arianna, Antonazzo, Ippazio Cosimo, Rocino, Angiola, Preti, Daniele, Fragomeno, Anna, Cucuzza, Francesco, Ceresi, Nicola, Santoro, Cristina, Ferretti, Antonietta, Facchetti, Rita, Cozzolino, Paolo, Biasoli, Chiara, Cassone, Cristina, Coppola, Antonio, Cortesi, Paolo Angelo, Mantovani, Lorenzo Giovanni

Source: Haemophilia; Mar2024, Vol. 30 Issue 2, p449-462, 14p

Subject Terms: HEMOPHILIACS, CAREGIVERS, HEMOPHILIA treatment, GENETIC counseling, FAMILY relations

Geographic Terms: ITALY

A multicenter, real-world experience with recombinant FXIII for the treatment of patients with FXIII deficiency: from pharmacokinetics to clinical practice. The Italian FXIII Study.

Authors: Zanon, Ezio, Pasca, Samantha, Sottilotta, Gianluca, Molinari, Angelo C., Ferretti, Antonietta, Gregorio, Patrizia Di, Pollio, Berardino, Pizzuti, Michele, Notarangelo, Lucia Dora, Biasoli, Chiara, Cojutti, Piergiorgio, Pea, Federico, Simioni, Paolo, Peyvandi, Flora

Source: Blood Transfusion (17232007); Jul2023, Vol. 21 Issue 4, p350-355, 6p

IDEAL study: A real‐world assessment of pattern of use and clinical outcomes with recombinant coagulation factor IX albumin fusion protein (rIX‐FP) in patients with haemophilia B in Italy.

Authors: Tagliaferri, Annarita, Molinari, Angelo Claudio, Peyvandi, Flora, Coppola, Antonio, Demartis, Francesco, Biasoli, Chiara, Borchiellini, Alessandra, Cultrera, Dorina, De Cristofaro, Raimondo, Daniele, Filomena, Giordano, Paola, Marchesini, Emanuela, Margaglione, Maurizio, Marino, Renato, Pollio, Berardino, Radossi, Paolo, Santoro, Cristina, Santoro, Rita Carlotta, Siragusa, Sergio, Sottilotta, Gianluca

Source: Haemophilia; Jan2023, Vol. 29 Issue 1, p135-144, 10p, 4 Diagrams, 1 Chart, 2 Graphs

Subject Terms: BLOOD coagulation factor IX, BLOOD coagulation factors, CHIMERIC proteins, HEMOPHILIA, ALBUMINS

Geographic Terms: ITALY

Physical Activity, Bleedings and Quality of Life in Patients with Haemophilia a without Inhibitors - a Multicenter, Observational Italian Study with a Wearable Device

Authors: Mancuso, Maria Elisa, Biasoli, Chiara, Marino, Renato, Buzzi, Andrea, Preti, Daniele, Bendinelli, Sara, Tempre, Rosaria, Pompeo, Elena, Sannino, Luigi, Siri, Giacomo, Castaman, Giancarlo

Source: In Blood 2 November 2023 142 Supplement 1:663-663

Association between Severe Acute Respiratory Syndrome Coronavirus 2 Infection (Coronavirus Disease 2019) and Lupus Anticoagulant-Hypoprothrombinemia Syndrome: A Case Report and Literature Assessment.

Authors: Monti, Marta, Martini, Tiziano, Pengo, Vittorio, Poletti, Giovanni, Pedrazzi, Paola, Biasoli, Chiara, Giovacchini, Maddalena, Fasano, Tommaso

Source: Seminars in Thrombosis & Hemostasis; Jul2023, Vol. 49 Issue 5, p558-560, 3p

Subject Terms: COVID-19, CORONAVIRUS diseases, ANTIPHOSPHOLIPID syndrome, SARS-CoV-2

Intracranial Haemorrhage in Haemophilia Patients Is Still an Open Issue: The Final Results of the Italian EMO.REC Registry.

Authors: Zanon, Ezio, Pasca, Samantha, Demartis, Francesco, Tagliaferri, Annarita, Santoro, Cristina, Cantori, Isabella, Molinari, Angelo Claudio, Biasoli, Chiara, Coppola, Antonio, Luciani, Matteo, Sottilotta, Gianluca, Ricca, Irene, Pollio, Berardino, Borchiellini, Alessandra, Tosetto, Alberto, Peyvandi, Flora, Frigo, Anna Chiara, Simioni, Paolo

Source: Journal of Clinical Medicine; Apr2022, Vol. 11 Issue 7, p1969-N.PAG, 10p

Subject Terms: HEMOPHILIACS, HEMOPHILIA, INTRACEREBRAL hematoma, INTRACRANIAL hemorrhage, BLOOD coagulation factors, HEMORRHAGE

Haemophilia management and treatment: An Italian survey on patients', caregivers' and clinicians' point of view.

Authors: Cortesi, Paolo Angelo, Rocino, Angiola, Preti, Daniele, Fragomeno, Anna, Cucuzza, Francesco, Ceresi, Nicola, Santoro, Cristina, Ferretti, Antonietta, Fornari, Arianna, Antonazzo, Ippazio Cosimo, Facchetti, Rita, Cozzolino, Paolo, Biasoli, Chiara, Cassone, Cristina, Coppola, Antonio, Mantovani, Lorenzo G.

Source: Haemophilia; Mar2022, Vol. 28 Issue 2, p254-263, 10p, 3 Charts, 4 Graphs

Subject Terms: HEMOPHILIA treatment, CAREGIVERS, HEALTH facilities, MEDICAL personnel, PATIENT surveys

Geographic Terms: ITALY

The effect of carriers' reproductive choices and pregnancy history on sporadic severe haemophilia: A 20‐year retrospective study through a regional registry.

Authors: Riccardi, Federica, Coppola, Antonio, Rivolta, Gianna Franca, Matichecchia, Annalisa, Quintavalle, Gabriele, Biasoli, Chiara, Valdrè, Lelia, Piscitelli, Lydia, Percesepe, Antonio, Tagliaferri, Annarita

Source: Haemophilia; Mar2022, Vol. 28 Issue 2, p308-315, 8p, 3 Charts, 2 Graphs

Subject Terms: REPRODUCTIVE history, HEMOPHILIA, GENETIC counseling, CHILDBEARING age, PRENATAL diagnosis, VON Willebrand disease

Diagnosis and treatment of chronic synovitis in patients with haemophilia: consensus statements from the Italian Association of Haemophilia Centres.

Authors: Di Minno, Matteo Nicola Dario, Napolitano, Mariasanta, Giuffrida, Anna Chiara, Baldacci, Erminia, Carulli, Christian, Boccalandro, Elena, Bruno, Clarissa, Forneris, Eleonora, Ricca, Irene, Passeri, Walter, Martinelli, Marco, Rivolta, Gianna Franca, Solimeno, Luigi Piero, Martinoli, Carlo, Rocino, Angiola, Pasta, Gianluigi, Aru, Brigida, Balestri, Elena, Biasoli, Chiara, Cantori, Isabella

Source: British Journal of Haematology; Feb2022, Vol. 196 Issue 4, p871-883, 13p

Subject Terms: HEALTH facilities, SYNOVITIS, HEMOPHILIA, JOINT diseases, DIAGNOSIS, JOINT pain

Promoting physical activity in people with haemophilia: the MEMO (Movement for persons with haEMOphilia) expert consensus project.

Authors: Biasoli, Chiara, Baldacci, Erminia, Coppola, Antonio, De Cristofaro, Raimondo, Di Minno, Matteo N. D., Lassandro, Giuseppe, Linari, Silvia, Mancuso, Maria E., Napolitano, Mariasanta, Pasta, Gianluigi, Rocino, Angiola

Source: Blood Transfusion (17232007); Jan/Feb2022, Vol. 20 Issue 1, p66-77, 12p

Predictors of inhibitor eradication by primary immune tolerance induction in severe haemophilia A with high responding inhibitors.

Authors: Di Minno, Giovanni, Coppola, Antonio, Margaglione, Maurizio, Rocino, Angiola, Mancuso, Maria Elisa, Tagliaferri, Annarita, Linari, Silvia, Zanon, Ezio, Santoro, Cristina, Biasoli, Chiara, Castaman, Giancarlo, Santagostino, Elena, Mannucci, Pier Mannuccio

Source: Haemophilia; Jan2022, Vol. 28 Issue 1, p55-64, 10p, 1 Diagram, 6 Charts, 1 Graph

Subject Terms: IMMUNOLOGICAL tolerance, BLOOD coagulation factor VIII antibodies, HEMOPHILIA, MISSENSE mutation, INSERTION mutation, VON Willebrand disease

Management of patients with severe haemophilia a without inhibitors on prophylaxis with emicizumab: AICE recommendations with focus on emergency in collaboration with SIBioC, SIMEU, SIMEUP, SIPMeL and SISET.

Authors: Coppola, Antonio, Castaman, Giancarlo, Santoro, Rita C., Mancuso, Maria Elisa, Franchini, Massimo, Marino, Renato, Rivolta, Gianna Franca, Santoro, Cristina, Zanon, Ezio, Sciacovelli, Laura, Manca, Salvatore, Lubrano, Riccardo, Golato, Maria, Tripodi, Armando, Rocino, Angiola, Bernardini, Sergio, Biasoli, Chiara, Borchiellini, Alessandra, Cultrera, Dorina, De Cristofaro, Raimondo

Source: Haemophilia; Nov2020, Vol. 26 Issue 6, p937-945, 9p, 3 Charts

Subject Terms: HEMOPHILIA, EMICIZUMAB, METRORRHAGIA, PREVENTIVE medicine, EMERGENCY management

Risk of bleeding and thrombosis in inherited qualitative fibrinogen disorders.

Authors: Castaman, Giancarlo, Giacomelli, Sofia H., Biasoli, Chiara, Contino, Laura, Radossi, Paolo

Source: European Journal of Haematology; Oct2019, Vol. 103 Issue 4, p379-384, 6p

Subject Terms: THROMBOSIS, DISEASES, WOMEN patients, GENETIC disorders, THROMBOEMBOLISM

Efficacy of Corticosteroids Alone in the Eradication of Factor VIII Inhibitor in an Old Female with Idiopathic Acquired Haemophilia A: Description of a Case.

Authors: Girelli, Francesco¹ fgirodoc@libero.it, Biasoli, Chiara², Bassi, Bruna¹, Bagioni, Franco³, Bondi, Gabriele¹, Camporesi, Claudio¹, Gardelli, Lucia¹, Mazzeo, Vincenzo¹, Nizzoli, Maurizio¹

Source: Case Reports in Rheumatology. 2012, p1-3. 3p.

Subject Terms: *HEMOPHILIA treatment, *DRUG efficacy, *CORTICOSTEROIDS, *BLOOD coagulation factor VIII antibodies, *DISEASES in older women, *IMMUNOSUPPRESSIVE agents, *AUTOIMMUNE disease treatment

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Therapeutic management and costs of severe haemophilia A patients with inhibitors in Italy.

Authors: Abbonizio, F., Giampaolo, A., Coppola, A., Arcieri, R., Hassan, H. J., Accorsi, Arianna, Ettorre, Pietro Cosimo, Giordano, Paola, Rodorigo, Giuseppina, Valdrè, Lelia, Notarangelo, Lucia, Aru, Anna Brigida, Cultrera, Dorina, Iannaccaro, Piergiorgio, Biasoli, Chiara, Gregorio, Patrizia Di, Rossi, Vincenza, Testa, Sophie, Serino, Maria Luisa, Morfini, Massimo

Source: Haemophilia; 2014, Vol. 20 Issue 4, pe243-e250, 8p, 1 Chart, 4 Graphs

Subject Terms: HEMOPHILIA treatment, BLOOD coagulation factor VIII antibodies, IMMUNOLOGICAL tolerance, HEMOPHILIACS, MEDICAL care costs, THERAPEUTICS