Adaptive Governance: Empowering Data Sharing for Public Health Impact - Insights from North Carolina Department of Health and Human Services

Authors: Amy Hawn Nelson, Paul Hogle, Sharon Zanti, Scott Proescholdbell, Jessie Tenenbaum

Source: International Journal of Population Data Science, Vol 9, Iss 5 (2024)

Subject Terms: Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/2569; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/7bc3f0f5ba974b259739c3d9ba1970fd

Equity in practice: Lessons from a cohort-based model for community voice and input in data linkage and use

Authors: Amy Hawn Nelson, Adelia Jenkins, Deja Kemp, Emily Berkowitz, TC Burnett, Jessie Rios Benitez, Sharon Zanti

Source: International Journal of Population Data Science, Vol 9, Iss 5 (2024)

Subject Terms: Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/2547; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/e33e20cdc6e24e4689b3a628936b321a

A governance and legal framework for getting to 'yes' with enterprise-level data integration

Authors: Amy Hawn Nelson, Paul Hogle, Sharon Zanti, Scott Proescholdbell, Jessica D. Tenenbaum

Source: Data & Policy, Vol 6 (2024)

Subject Terms: data governance, data sharing, ethical data use, health and human services, legal framework, Information technology, T58.5-58.64, Political institutions and public administration (General), JF20-2112

File Description: electronic resource

Relation: https://www.cambridge.org/core/product/identifier/S2632324924000233/type/journal_article; https://doaj.org/toc/2632-3249

Access URL: https://doaj.org/article/31b448d658bb4e92ba45da7cea60409f

Four Questions to Guide Decision-Making for Data Sharing and Integration

Authors: Amy Hawn Nelson, Sharon Zanti

Source: International Journal of Population Data Science, Vol 8, Iss 4 (2023)

Subject Terms: data governance, ethical data sharing, legal frameworks for data integration, Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/2159; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/c5d51111ec0c49529f5f3a1560713eaa

Essential requirements for the governance and management of data trusts, data repositories, and other data collaborations

Authors: P Alison Paprica, Monique Crichlow, Donna Curtis Maillet, Sarah Kesselring, Conrad Pow, Thomas P. Scarnecchia, Michael J. Schull, Rosario G. Cartagena, Annabelle Cumyn, Salman Dostmohammad, Keith O. Elliston, Michelle Greiver, Amy Hawn Nelson, Sean L. Hill, Wanrudee Isaranuwatchai, Evgueni Loukipoudis, James Ted McDonald, John R. McLaughlin, Alan Rabinowitz, Fahad Razak, Stefaan G. Verhulst, Amol A. Verma, J. Charles Victor, Andrew Young, Joanna Yu, Kimberlyn McGrail

Source: International Journal of Population Data Science, Vol 8, Iss 4 (2023)

Subject Terms: data governance, data management, standards, public engagement, Indigenous Data Sovereignty, data trust, Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/2142; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/940b2c3308a8427586a6aa4c7e236fc9

Data Integration in the time of COVID: Getting to Yes with Enterprise-Wide Data Governance.

Authors: Amy Hawn Nelson

Source: International Journal of Population Data Science, Vol 7, Iss 3 (2022)

Subject Terms: data governance, data sharing, data integration, health and human services, legal framework, Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/1802; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/484ae0fd0c264356b66183cb6d5c5845

How can we measure the developmental impacts of the COVID-19 pandemic on young children?

Authors: Amy Hawn Nelson, Emily Berkowitz

Source: International Journal of Population Data Science, Vol 7, Iss 3 (2022)

Subject Terms: COVID-19, Data model, Administrative Data Reuse, Indicators, Racial equity, Cross-sector data linkage, Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/1803; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/d46ec03362e44d61ab75edd49a7108f1

Developmental Impacts of the COVID-19 Pandemic on Young Children: A Conceptual Model for Research with Integrated Administrative Data Systems

Authors: Heather L. Rouse, Rebecca J. Bulotsky Shearer, Sydney S. Idzikowski, Amy Hawn Nelson, Mark Needle, Matthew F. Katz, Jhonelle Bailey, Justin T. Lane, Emily Berkowitz, Sharon Zanti, Astrid Pena, Maggie Reeves

Source: International Journal of Population Data Science, Vol 5, Iss 4 (2021)

Subject Terms: data model, child development, COVID-19, integrated administrative data systems, Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/1651; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/585ebaa80fda438ca49a618cb80783ec

Centering Equity Across the Administrative Data Life Cycle

Authors: Amy Hawn Nelson

Source: International Journal of Population Data Science, Vol 5, Iss 5 (2020)

Subject Terms: Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/1522; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/04ce40a865ad4130a4b502324654cd83

Supporting A Developmental Approach for Shared Data Infrastructure

Authors: Amy Hawn Nelson, Emily Berkowitz

Source: International Journal of Population Data Science, Vol 5, Iss 5 (2020)

Subject Terms: Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/1638; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/280ee1b3c5934359b295c782a9d1e244

Strategies for centering equity and public engagement in the ethical use of integrated administrative data

Authors: Adelia Jenkins, Amy Hawn Nelson

Source: International Journal of Population Data Science, Vol 4, Iss 3 (2019)

Subject Terms: Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/1253; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/d78555964ecf4ea198eb8b73ceebf535

Understanding the Information Architecture for Civic Innovation, Research, and Evaluation

Authors: Natalie Evans Harris, Amy Hawn Nelson

Source: International Journal of Population Data Science, Vol 3, Iss 5 (2018)

Subject Terms: Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/1042; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/785f81e875e245ff81fe24a313581e27

Creating a Community of Practice to Support Data Linkage Across Government Agencies

Authors: Amy Hawn Nelson

Source: International Journal of Population Data Science, Vol 3, Iss 4 (2018)

Subject Terms: Demography. Population. Vital events, HB848-3697

File Description: electronic resource

Relation: https://ijpds.org/article/view/734; https://doaj.org/toc/2399-4908

Access URL: https://doaj.org/article/14cf2236c53f428fa7878de0ea7d3469

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