Assessing patient-reported outcomes (PROs) in paediatric oncology research: Which PRO would a pro pick, if a pro was picking PROs?

Authors: Ameeta Retzer, Sarah Al-Jilaihawi, Shivani Bailey, Vickie Buenger, Sarah Damery, Anne-Sophie Darlington, Manuel Diezi, John Devin Peipert, Jessica Roydhouse, Bryce B. Reeve

Source: EJC Paediatric Oncology, Vol 5, Iss , Pp 100232- (2025)

Subject Terms: Patient-reported outcomes, Paediatric oncology, Drug development, Outcome measures, Children, Neoplasms. Tumors. Oncology. Including cancer and carcinogens, RC254-282

File Description: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2772610X25000200; https://doaj.org/toc/2772-610X

Access URL: https://doaj.org/article/2449ef8c266344e0a5a5aa38a986a03f

Testing an Electronic Patient-Reported Outcome Platform in the Context of Traumatic Brain Injury: PRiORiTy Usability Study

Authors: Christel McMullan, Grace Turner, Ameeta Retzer, Antonio Belli, Elin Haf Davies, Laura Nice, Luke Flavell, Jackie Flavell, Melanie Calvert

Source: JMIR Formative Research, Vol 9, Pp e58128-e58128 (2025)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://formative.jmir.org/2025/1/e58128; https://doaj.org/toc/2561-326X

Access URL: https://doaj.org/article/d2119386ce7c43b18fdaa1f726773a6b

Impact of education and training on LGBT-specific health issues for healthcare students and professionals: a systematic review of comparative studies

Authors: Kate Jolly, Ameeta Retzer, Sarah Damery, Nicola Kay Gale, Adekemi Oluwayemisi Sekoni, Ifeoma Okafor, Bibiane Manga-Atangana, Rachel Posaner

Source: BMJ Open, Vol 15, Iss 1 (2025)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/15/1/e090005.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/fdfc178934dd4f308c24c08b57083504

Advancing patient-centric care: integrating patient reported outcomes for tolerability assessment in early phase clinical trials – insights from an expert virtual roundtable

Authors: Christina Yap, Olalekan Lee Aiyegbusi, Emily Alger, Ethan Basch, Jill Bell, Vishal Bhatnagar, David Cella, Philip Collis, Amylou C. Dueck, Alexandra Gilbert, Ari Gnanasakthy, Alastair Greystoke, Aaron R. Hansen, Paul Kamudoni, Olga Kholmanskikh, Bellinda L. King-Kallimanis, Harlan Krumholz, Anna Minchom, Daniel O'Connor, Joan Petrie, Claire Piccinin, Khadija Rerhou Rantell, Saaeha Rauz, Ameeta Retzer, Steven Rizk, Lynne Wagner, Maxime Sasseville, Lesley K. Seymour, Harald A. Weber, Roger Wilson, Melanie Calvert, John Devin Peipert

Source: EClinicalMedicine, Vol 76, Iss , Pp 102838- (2024)

Subject Terms: Patient-reported outcomes, Dose-finding, Phase I, Phase II, Early phase trials, Tolerability, Medicine (General), R5-920

File Description: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2589537024004176; https://doaj.org/toc/2589-5370

Access URL: https://doaj.org/article/67c77703c1de4dd99159ee45db094c8f

Collaborative care intervention for individuals with severe mental illness: the PARTNERS2 programme including complex intervention development and cluster RCT

Authors: Humera Plappert, Richard Byng, Siobhan Theresa Reilly, Charley Hobson-Merrett, Jon Allard, Elina Baker, Nicky Britten, Melanie Calvert, Michael Clark, Siobhan Creanor, Linda Davies, Rebecca Denyer, Julia Frost, Linda Gask, Bliss Gibbons, John Gibson, Laura Gill, Ruth Gwernan-Jones, Joanne Hosking, Peter Huxley, Alison Jeffery, Benjamin Jones, Tom Keeley, Richard Laugharne, Steven Marwaha, Claire Planner, Tim Rawcliffe, Ameeta Retzer, Debra Richards, Ruth Sayers, Lynsey Williams, Vanessa Pinfold, Maximillian Birchwood

Source: Programme Grants for Applied Research, Vol 12, Iss 06 (2024)

Subject Terms: severe mental illness, collaborative care, primary care, complex intervention, intervention development, cluster randomised controlled trial, process evaluation, patient and public involvement, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/2050-4330

Access URL: https://doaj.org/article/4c00605411d4488587c8f7e54ddd8920

Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial

Authors: Christel McMullan, Ameeta Retzer, Sarah E. Hughes, Olalekan Lee Aiyegbusi, Camilla Bathurst, Alan Boyd, Jamie Coleman, Elin Haf Davies, Alastair K. Denniston, Helen Dunster, Chris Frost, Rosie Harding, Amanda Hunn, Derek Kyte, Rebecca Malpass, Gary McNamara, Sandra Mitchell, Saloni Mittal, Philip N. Newsome, Gary Price, Anna Rowe, Wilma van Reil, Anita Walker, Roger Wilson, Melanie Calvert

Source: Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-13 (2023)

Subject Terms: Electronic patient reported outcomes, Usability testing, Inflammatory conditions, Cognitive interviews, Early phase advanced therapy trial, Public aspects of medicine, RA1-1270

File Description: electronic resource

Relation: https://doaj.org/toc/2509-8020

Access URL: https://doaj.org/article/1f4183a1c1e54a1a8341cfe7200a5ed5

Outcome selection for tissue-agnostic drug trials for immune-mediated inflammatory diseases: a systematic review of core outcome sets and regulatory guidance

Authors: Olalekan Lee Aiyegbusi, Lavinia Ferrante di Ruffano, Ameeta Retzer, Philip N. Newsome, Christopher D. Buckley, Melanie J. Calvert

Source: Trials, Vol 23, Iss 1, Pp 1-15 (2022)

Subject Terms: Tissue-agnostic clinical trials, Core outcome set, COS, IMIDs, Rheumatoid arthritis, Rheumatology, Medicine (General), R5-920

File Description: electronic resource

Relation: https://doaj.org/toc/1745-6215

Access URL: https://doaj.org/article/d54d62ce295041858e8b838a735a30e1

Retaining public health volunteers beyond COVID-19.

Authors: Ameeta Retzer, Janet Jones, Sarah Damery, Habib Ullah, Modupe Omonijo, Justin Varney, Kate Jolly

Source: PLoS ONE, Vol 18, Iss 11, p e0294157 (2023)

Subject Terms: Medicine, Science

File Description: electronic resource

Relation: https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0294157&type=printable; https://doaj.org/toc/1932-6203

Access URL: https://doaj.org/article/b036a27f05aa4866b56a6b6293049b9c

International perspectives on suboptimal patient‐reported outcome trial design and reporting in cancer clinical trials: A qualitative study

Authors: Ameeta Retzer, Melanie Calvert, Khaled Ahmed, Thomas Keeley, Jo Armes, Julia M. Brown, Lynn Calman, Anna Gavin, Adam W. Glaser, Diana M. Greenfield, Anne Lanceley, Rachel M. Taylor, Galina Velikova, Michael Brundage, Fabio Efficace, Rebecca Mercieca‐Bebber, Madeleine T. King, Derek Kyte

Source: Cancer Medicine, Vol 10, Iss 16, Pp 5475-5487 (2021)

Subject Terms: cancer, patient‐reported outcomes, protocol, qualitative, reporting, trials, Neoplasms. Tumors. Oncology. Including cancer and carcinogens, RC254-282

File Description: electronic resource

Relation: https://doaj.org/toc/2045-7634

Access URL: https://doaj.org/article/bc075082c53c4442903d408c49f7cd91

Feasibility of a new electronic patient-reported outcome (ePRO) system for an advanced therapy clinical trial in immune-mediated inflammatory disease (PROmics): protocol for a qualitative feasibility study

Authors: Ameeta Retzer, Christel McMullan, Melanie Calvert, Gary Price, Sarah E Hughes, Elin Haf Davies, Anna Rowe, Chris Frost, Roger Wilson, Philip N Newsome, Anita Walker, Gary McNamara, Rebecca Malpass, Camilla Bathurst, Rosie Harding

Source: BMJ Open, Vol 12, Iss 9 (2022)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/12/9/e063199.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/7fd415117cb1499ca1fce27038899080

Development of a core outcome set and identification of patient-reportable outcomes for primary brain tumour trials: protocol for the COBra study

Authors: Ameeta Retzer, Melanie Calvert, Stephanie Sivell, Anthony Byrne, Annmarie Nelson, Robin Grant, Elin Baddeley, Hannah Scott, Kathy Seddon, Colin Watts, Linda Dirven, Richard Adams, Olalekan Lee Aiyegbusi, Samantha Cruz Rivera, Pamela Kearns

Source: BMJ Open, Vol 12, Iss 9 (2022)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/12/9/e057712.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/bac60d7de78c4d93b4cdf448d89ba6d2

The effectiveness of parent training for children with autism spectrum disorder: a systematic review and meta-analyses

Authors: Shoumitro (Shoumi) Deb, Ameeta Retzer, Meera Roy, Rupali Acharya, Bharati Limbu, Ashok Roy

Source: BMC Psychiatry, Vol 20, Iss 1, Pp 1-24 (2020)

Subject Terms: Parent training, Autism, Children, Systematic review, Meta-analysis, Psychiatry, RC435-571

File Description: electronic resource

Relation: https://doaj.org/toc/1471-244X

Access URL: https://doaj.org/article/7029278cb89241868dc98eca4bd8dd16

Real-time remote outpatient consultations in secondary and tertiary care: A systematic review of inequalities in invitation and uptake.

Authors: Janet E Jones, Sarah L Damery, Katherine Phillips, Ameeta Retzer, Pamela Nayyar, Kate Jolly

Source: PLoS ONE, Vol 17, Iss 6, p e0269435 (2022)

Subject Terms: Medicine, Science

File Description: electronic resource

Relation: https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0269435&type=printable; https://doaj.org/toc/1932-6203

Access URL: https://doaj.org/article/54956d88d94c4c4bad6bda1e7ce8a893

‘Give Us The Tools!’: development of knowledge transfer tools to support the involvement of patient partners in the development of clinical trial protocols with patient-reported outcomes (PROs), in accordance with SPIRIT-PRO Extension

Authors: Ameeta Retzer, Anita Slade, Melanie Calvert, Rebecca Mercieca-Bebber, Gary Price, Lesley Roberts, Claudia Rutherford, Olalekan Lee Aiyegbusi, Samantha Cruz Rivera, Richard Stephens, Rav Verdi, Roger Wilson, Philip Edge, Lesley Gosden

Source: BMJ Open, Vol 11, Iss 6 (2021)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/11/6/e046450.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/038859a02a1e4dfca5e27999a64b75fa

SPIRIT-PRO Extension explanation and elaboration: guidelines for inclusion of patient-reported outcomes in protocols of clinical trials

Authors: Kirstie Haywood, Joseph C Cappelleri, Ameeta Retzer, Anita Slade, Derek Kyte, Melanie Calvert, Jane Blazeby, An-Wen Chan, Rebecca Mercieca-Bebber, Antonia Bennett, Carolyn Ells, Gary Price, Galina Velikova, Heather Draper, Dennis Revicki, Julia Brown, laura Martin, Lori Frank, Madeleine King, Jane Scott, Sandra Mitchell, Grace Turner, Michael Brundage, Andrew Bottomley, Michael Palmer, Richard Stephens, Ingolf Griebsch, Donald Patrick, Lari Wenzel, Daniel O'Connor, Robert M Golub, Olalekan Aiyegbusi, E Basch, Jill Bell, Vishal Bhatnagar, Lisa Campbell, Amylou C Dueck, Amanda Hunn, Bellinda King-Kallimanis, Thomas Morel, Linda Nelson, Josephine Norquist, Antoine Regnault, Antonia Valakas, Maria von Hildebrand, Anita Walker

Source: BMJ Open, Vol 11, Iss 6 (2021)

Subject Terms: Medicine

File Description: electronic resource

Relation: https://bmjopen.bmj.com/content/11/6/e045105.full; https://doaj.org/toc/2044-6055

Access URL: https://doaj.org/article/781a2d9ef823452cb74c4e858f349f4c

Refining a model of collaborative care for people with a diagnosis of bipolar, schizophrenia or other psychoses in England: a qualitative formative evaluation

Authors: Elina Baker, Ruth Gwernan-Jones, Nicky Britten, Maria Cox, Catherine McCabe, Ameeta Retzer, Laura Gill, Humera Plappert, Siobhan Reilly, Vanessa Pinfold, Linda Gask, Richard Byng, Max Birchwood

Source: BMC Psychiatry, Vol 19, Iss 1, Pp 1-17 (2019)

Subject Terms: Collaborative care, Recovery, Schizophrenia, Bipolar, Psychosis, Feasibility studies, Psychiatry, RC435-571

File Description: electronic resource

Relation: http://link.springer.com/article/10.1186/s12888-018-1997-z; https://doaj.org/toc/1471-244X

Access URL: https://doaj.org/article/c9cbbf93dd5949db8804c0ce22c458e3

Development of a core outcome set for use in community-based bipolar trials-A qualitative study and modified Delphi.

Authors: Ameeta Retzer, Ruth Sayers, Vanessa Pinfold, John Gibson, Thomas Keeley, Gemma Taylor, Humera Plappert, Bliss Gibbons, Peter Huxley, Jonathan Mathers, Maximillian Birchwood, Melanie Calvert

Source: PLoS ONE, Vol 15, Iss 10, p e0240518 (2020)

Subject Terms: Medicine, Science

File Description: electronic resource

Relation: https://doaj.org/toc/1932-6203

Access URL: https://doaj.org/article/64b2565a6475420cb4818e4736b4edea

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