Electronic reporting of rare endocrine conditions within a clinical network: results from the EuRRECa project

Authors: S R Ali, J Bryce, A L Priego-Zurita, M Cherenko, C Smythe, T M de Rooij, M Cools, T Danne, H Katugampola, O M Dekkers, O Hiort, A Linglart, I Netchine, A Nordenstrom, P Attila, L Persani, N Reisch, A Smyth, Z Sumnik, D Taruscio, W E Visser, A M Pereira, N M Appelman-Dijkstra, S F Ahmed

Source: Endocrine Connections, Vol 12, Iss 12, Pp 1-12 (2023)

Subject Terms: registries, databases, rare conditions, rare diseases, european reference networks, endo-ern, Diseases of the endocrine glands. Clinical endocrinology, RC648-665

File Description: electronic resource

Relation: https://ec.bioscientifica.com/view/journals/ec/12/12/EC-23-0434.xml; https://doaj.org/toc/2049-3614

Access URL: https://doaj.org/article/73005f645a7f4db899cce7d744b97d0d

Venous thromboembolism in Cushing syndrome: results from an EuRRECa and Endo-ERN survey

Authors: M Cherenko, N M Appelman-Dijkstra, A L Priego Zurita, N R Biermasz, O M Dekkers, F A Klok, N Reisch, A Aulinas, B Biagetti, S Cannavo, L Canu, M Detomas, F Devuyst, H Falhammar, R A Feelders, F Ferrau, F Gatto, C Grasselli, P van Houten, C Hoybye, A M Isidori, A Kyrilli, P Loli, D Maiter, E Nowak, R Pivonello, O Ragnarsson, R V Steenaard, N Unger, A van de Ven, S M Webb, D Yeste, S F Ahmed, A M Pereira

Source: Endocrine Connections, Vol 13, Iss 6, Pp 1-10 (2024)

Subject Terms: endogenous hypercortisolism, cushing disease, cushing syndrome, thromboprophylaxis, venous thromboembolism, Diseases of the endocrine glands. Clinical endocrinology, RC648-665

File Description: electronic resource

Relation: https://doaj.org/toc/2049-3614

Access URL: https://doaj.org/article/0d6f12c986c64a9489f0b3026c083007

Reference Percentiles and Changes over Time for Total Thyroxine in Preterm Infants: A Retrospective Cohort Study

Authors: Claudia M. Flores-Robles, Ernesto Roldan-Valadez, Nayeli Martínez-Cruz, Lidia Arce-Sánchez, Ana L. Priego-Zurita, Guadalupe Estrada-Gutierrez, Enrique Reyes-Muñoz

Source: Diagnostics, Vol 10, Iss 7, p 475 (2020)

Subject Terms: thyroxine, newborn screening, congenital hypothyroidism, hypothyroxinemia, central Hypothyroidism, preterm infants, Medicine (General), R5-920

File Description: electronic resource

Relation: https://www.mdpi.com/2075-4418/10/7/475; https://doaj.org/toc/2075-4418

Access URL: https://doaj.org/article/6bcea784bffa4a2db9785536940b4a17